Ghormeh Sabzi

Yes, cinnarizine is very similar to flunarizine which can also case Parkinsonism. Probably best avoided, which is a shame!

For those on this drug, what's your dosage? I have 12.5/50 tablets.

Flupirtine doesn't really have too many side effects from my research prior to prescription. There are possible side effects as with all drugs, some of which can be nasty, but it looks pretty safe in general. The only thing to look out for really is liver problems, and as such I will have my liver monitored by way of blood tests. Even then the incidence is very low. No tolerance or addiction either. The only problem is I'm getting it imported from abroad so have to pay £70 per month, as opposed to the £7.80 NHS prescription charge.

I am currently on an indirect NMDA antagonist (flupirtine) for pain. It's also a potassium channel opener. Takes the edge off the pain I experience but doesn't alter my other symptoms in any way. I am not on benzodiazepines so do not have any dependence. For reference, I do not experience DP/DR.

A lot of us here get ghosting double-vision, something like this: My eyes are not crossed, though.

Latest update is that Pizotifen is not helping much after she came off cinnarizine, suggesting it was cinnarizine that was causing a reduction in symptoms.

It only gets better as the seasons progress! The plot becomes more clear over the course of the seasons as well. Its potential realism - things which may be theoretically possible - is one of its great qualities. Some things do raise an eyebrow, but generally it's pretty logical.

FRINGE. Based on what little I know about you I think you would enjoy it!

Potential diagnosis after seeing a private rheumatologist - ischiogluteal bursitis. Possibility of injections to cure it. As it happens, I am already seeing an injection specialist next week through the NHS (free healthcare) next week, so this diagnosis will help a lot. In the meantime, I will be trying a new medication (number four) - flupirtine.

I also saw that you said you had Lyme disease before. What's the situation there? Have you been fully treated?

Hang in there mate. I don't know when but one day we will get some relief from this condition. A few members are trying out some new meds soon and maybe something will come of that. Try and stay positive, if you can. Watching some comedy always puts me in a good mood! In the short term, you might want to consider some medications to help you get through this tough period. Where do you live?

Terra Nova actually only got half a season before it was cancelled due to poor ratings. It had a massive budget as well. I was looking forward to it a lot before it came out, but once I watch it, I was left extremely disappointed. I disliked it so much that I couldn't even get through the half series - only watched about half of that. Firefly was also cancelled many years ago, but it is hard to understand why, because it's pretty damn good. A film (Serenity) followed it and is also very good. I highly recommend the series Fringe. It's finished now unfortunately, but I suspect a few on this site would enjoy it very much.

Yes, being healthy in general is important. Watch what you eat, drink and try to exercise. How much weight have you lost? I have HPPD, yes. I've had it for nearly two years now. There are some on the forum who have had it a lot longer. Of course we all hope to be healed or treated at some point in the future (indeed some have been treated or got better), but acceptance is important too.

Do you consume lots of caffeine, by way of tea, coffee, coke, chocolate, or otherwise? If so, some members report that caffeine makes their anxiety worse, and so it is better avoided. You might want to look into supplements to treat your anxiety, specifically magnesium (good quality stuff, not oxide), l-theanine and valerian root. These should be safe to use. If these don't work then there are meds we can recommend, but it is best to go down the supplement route first. If you can get yourself down to London there is a drug clinic that may be able to help. They didn't do anything for me but another member had some success with them in getting prescribed Keppra (one med which may be helpful). http://clubdrugclinic.cnwl.nhs.uk/ - you can refer yourself and your GP does not need to know about it. However, you might want them to write to your GP confirming that what you are experiencing is a very real problem. See another GP. This is your right. If you are not happy with your current GP you can see another. There are some other things I could possibly suggest in terms of paid consultations, but this would depend on whether you could afford to pay for these (I don't know your current situation).

I'd like to echo what onedayillsailagain has said, except personally I'd recommend avoiding all drugs, including alcohol. If your aim is to heal, alcohol will not help matters. That said, you haven't given any indication that you do drink. Once you provide some more information then we may be able to help you a little more.

I didn't ask straight away. I built up a relationship with my GP first. Keppra did not work for me.

Whilst you'll do well to ever get Sinemet prescribed (and I'm not even sure that's a sustainable treatment), Keppra is not as difficult to get hold of here in the UK. My GP prescribed it to me, and my previous one before my current GP offered to prescribe it to me but at the time I wanted to be med free. I know others here in the UK have been prescribed it as well. But you can't just say, "can I try Keppra?' You have present information to your doctor in a way so that they can trust that you know what you're talking about.

I went blind for a couple of minutes many years ago after pushing myself too hard whilst running. When I finished the final lap I stopped and that's when I went blind. Strange experience!

One user on this site tried this already without success. But as we know all too well, what does not work for one may work for another. http://hppdonline.com/index.php?/topic/888-70-95-reduction-of-symptoms-keppraflunarizine/?hl=pizotifen

Someone on the VS FB group experienced improvements in symptoms with this drug. I know there are a few other cases of it helping on the VS forum as well. Possible involvement of other meds as well (notably cinnarizine, similar to flunarizine). Pizotifen is a 5-HT2A and 5-HT2C antagonist. Potentially useful for serotonin syndrome or MDMA overdose, according to Wiki.

I have experienced this, yes. Actually it preceded my full-blown HPPD by a week or two. You soon get used to it. I don't experience it these days, though.

This might require further investigation by David. Another forum I use recently got hacked and had spyware inserted into the site. I don't use McAfee. Does it say anything else?

The problem is fixed. I was 100% sure I didn't have a virus or any spyware. It seemed to be a problem with Google related services only (which this and many other sites use). Any ping to google.co.uk timed out. Turned out to be a problem with my router - I don't know exactly what went wrong but I reset it and all is well.

You don't have visual snow, which is quite different from what you describe. It sounds more like blue field entoptic phenomenon, which is perfectly natural when looking into the bright sky. Some people with HPPD see BFEP at increased levels, but it sounds to me like the level which you are seeing it at is natural. Try not to worry.

I often get 'waiting for ajax.googleapis.com...' appear at the bottom of my browser and when this happens the site loads very slowly / does not load at all. To fix the problem I manually refresh the page and it usually works, but it is a bit annoying. Anyone else experience something similar?