Naldarrin

So, I've stumbled onto something that seems to help...at least for me. My therapist suggested color therapy to help with ocular migraines from visuals. We have tried glasses with different color lenses. So far, we have tried: blue, green, rose, yellow, purple and a dark violet. Been wearing them for 1 month now and i have noticed some difference. Colors and objects seem to keep their shape better (less of the bleed over effect if that makes sense), and my family have said my mood seems lighter. I know it's a small thing, but small things add up. Just wanted to toss this out and see if anyone else has given this a shot. Opinions? Comments?

Just saying....I know how you feel. but i do have to rephrase Jay's earlier question... Why come on here and tear into folks? It's one thing to say get off your butts and do something, but did it ever occur to you that people supporting each other IS doing something...just not that your assigning urgency to. Ya know...try not to judge where someone else is in their journey. Your right. Having this is hell. I cant do much. But I can offer support in words. it's all i have. I'll support those having a shitty time adjusting to this condition, I'll listen to the venting when we get tired of having to live this way, I support your drive to raise awareness in the medical community as well. \ You want to know what will get people's attention fastest? If we show them something different. People who suffer from a condition, yet all support each other.

A cure would be incredible. However, I am no groundbreaking scientist. Im not one of the famous heads in cyberspace or meatspace. I'm a guy who is trying to make the best out of Mr. Toad's Wild Ride. I have no cures to offer, or great things that have helped me in life. I have no way to further research into this. All I can offer is words of encouragement, words I never got. I've spent most of my life living with this and feeling isolated and cut off. I may not be able to provide a cure or medically help, but please remember sometimes someone can be hurting and just need the Kumbaya group hug. I know theres a lot of dark times in my life where just a voice saying they understood would have been like water in the desert. So, yes...raise awareness, make people understand. Yet, dont forget each other. especially in places like this. We have all had a harder road, shouldnt we above all others be concerned with each other's ups and downs? Those of us here have something others dont...an actual frame of reference. In 27 years, i've never met someone else who suffered from this. Yet, here we are...able to connect and talk with others who understand. All I'm saying is that if your lives are as difficult as mine....i think we deserve to hear some warm fuzzy from time to time.

gotta say though, after dealing with this for 27 years and thinking i was all alone, its kinda uplifting to know that you guys have ups and downs with it too. been dealing with the worst symptoms have been in 7 years...the cycles come and go, kinda like having to ride out the waves in a storm. But seeing your lights out there too, going through the same storm...what we have is rare and not very well understood, but we arent alone in this. Raise your heads folks, you've made a difference in My life.

Giving this a shot. Hi. I'm V. I've been dealing with this for 27 years now. Today, I stumbled across this site, and it's been mind-blowing. I've never met anyone who suffered from this as well and thought I was alone. My story is strange, so I'll get the nasty part out of the way. When I was 13, I was kidnapped, force fed LSD, raped, and eventually suffocated and left for dead. I don't know how I'm still above ground. I should probably be a drooling wreck. In all honesty, I only partially knew what happened until about 2 years ago. Answers don't always make it better. Ever since, I've lived life with these effects. Colors change, shift and flow. Dots or snow that fades in and out. Shadows that skitter around on occasion. The Nausea inducing kaleidoscope effect that certain patterns make. I could go on for a while. Most times, you learn to ignore it. On good days, I've learned to enjoy the colored lights and the world the way I see it, almost magical. Bad days, I'm hiding in my home because everything is overwhelming. I've never told anyone about these. I put on a mask, who I thought everyone wanted to see, and lived my life with the rule that the mask must never slip. That meant allowing everyone around me to think whatever they did...just so long as no one ever found out. My life was ruled by fear and insecurity, though you'd never known it. I shoved it all deep down and did my best to pretend it wasn't anything. 3 years ago, my marriage ended. I had pushed my mental health to the backburner too long. Memories began to return and for the first time, the hallucinations began to get in the way. I honestly thought I was going crazy. I finally told everyone what had happened, what I see daily, tried to understand. With the exception of my ex-wife, everyone has supported me. My teenage kids opted to stay with me, teir acceptance and love have elped me be able to take the mask off. They have even helped me learn to actually make jokes about what i see. My entire family has gone out of their way to understand what is happening with me, walking step by step with me. Then, today, I found this site. I don't know how much I'll post, being open with people is not something I'm good at. Yet, I wanted to say this. Even during my best years, I was isolated. I thought I was the crazy guy hiding in plain sight. But reading things on here, I've realized that I'm not the only person with this. Kinda hard to be the only person who deals with the visuals when you learn there's an actual term for it. Thats the biggest thing I wrote this to say. Nothing isolates a person like thinking they are a freak. Opening up about this has been more frightening than living with it. Reading some of the intros and discussions on here, I'm finding descriptions of things I've never told anyone. Then it hit me. I'm not alone in this. And neither are You. I thank you all for this. For making this site, for being courageous enough to share. V