brake

New brain scan study discovers possible biological basis of visual snow syndrome

Has anyone ever mixed Xanax with Lamictal? Is it safe to do so?

I took lamictal for a week and I already noticed a difference in all of my symptoms besides visual snow. My visual snow is pretty bad. Like when I was in a very cold northern climate the visual snow would make me semi blind in dark places at night. I feel like I want to live again. I was just waiting to die lol and the current dating market is terrible and a joke nowadays.

I've had HPPD and visual snow for over 10 years and I'm finally trying lamictal. So far it has not affected my visuals at all but I feel better. At least you have a house, wife and kids. I think I'm going to be single forever.

HPPD, bad for you and me.

"When researchers administered her the first dosage of lamotrigine, all the visual disturbances she had reported beforehand receded immediately and almost entirely. Continuing drug therapy for 6 weeks solidified these effects."

This sounds promising.

Has anyone tried Brexanolone? It is mentioned in the article.

I think I agree. Anything that boosts GABA in my brain makes me less depressed.

https://neurosciencenews.com/gaba-depression-cognition-23748/

My driving is still good. I even co-piloted successfully. Not a commercial flight obviously. Lmao! The eye doctor says my eye sight is above average. How ironic. I was always a decent driver though.

On 8/3/2023 at 3:05 PM, Sharlot said:

That is, after taking mdma hppd did not go away, but the condition is better? I'm afraid of making my condition worse

It didn't affect my HPPD or visual snow at all. It didn't make it better or worse short term or long term. For some reason I felt like MDMA isn't the culprit for me. Everyone has different brain chemistry though. Although I only did it twice since onset. Some people use MDMA during therapy to overcome PTSD and some want to make it legal. I can see why.

7 hours ago, Naldarrin said:

gotta say though, 

after dealing with this for 27 years and thinking i was all alone, its kinda uplifting to know that you guys have ups and downs with it too.  been dealing with the worst symptoms have been in 7 years...the cycles come and go, kinda like having to ride out the waves in a storm.  But seeing your lights out there too, going through the same storm...what we have is rare and not very well understood, but we arent alone in this.  Raise your heads folks, you've made a difference in My life.

This post has touched my heart. Honestly I felt way better knowing that there are official articles about this disorder and many people on this forum.

Surprisingly MDMA had no affect on my visual snow and HPPD at all. It did make me feel better subjectively though.

Yeah dude after 10 years of different diets and therapies and meds.... the other day the floor was still moving and warping. I haven't even seen a psychedelic since onset.

On 7/6/2023 at 3:29 AM, Beefol said:

Hi!

Tinnitus is known to be a common symptom of HPPD.

Has anyone here ever heard of hyperacusis, i.e. (extreme) noise sensitivity in the context of HPPD?

I've been trying to figure out for months if my problem has something to do with my mild HPPD, or just happened to start in the 1-2 months after without any connection. 
 

Stay strong..

Yes I was sensitive to certain noises and lights as well. I kind of became less sensitive as time went on, but it took many years.

Yes HPPD and Visual Snow should be on warning labels of all psychedelics lol

Hey welcome, interesting story. I can't drink coffee or smoke weed anymore and it's been over 10 years. I can't do any drugs anymore besides certain pharmaceuticals. My visuals bother me everyday. I surprisingly can tolerate MDMA but I only did it twice since HPPD and visual snow onset. I can also tolerate alcohol and cigars/hookah but not cigarettes.

On 6/14/2023 at 7:52 PM, brake said:

Trying this tomorrow for the first time. Currently having intense neck and back pain for no reason.

I took Cyclobenzaprine for 6 days and although it helps with neck and back pain and it does improve sleep, it did not decrease visuals, anxiety or depression for me.

12 hours ago, joegives said:

that being said - this seems to suggest that theoretically it could work: https://www.thieme-connect.com/products/ejournals/abstract/10.1055/a-1882-6802

 

But it does give me pause - since the article mentions that apriprazole (abilify) may be a good treatment for HPPD - which we know to not be a fact for the vast majority of people. It is also a 5HTP2a antagonist (a less pure one - it's also a partial dopamine agonist and does a few other things which may account for the worsening of symptoms)

 

I'd imagine when it gets approved for schizophrenia in the later part of this year it'll be added to pharmaceutical benefits schemes for countries with subsidised medications programs like UK, certain countries in the EU and AUS: https://acadia.com/pipeline/

Abilify was a horrible treatment for me...

When Drugs Fuck You Up Forever

A Bad Batch of Drugs Made My Eyesight Chronically Grainy
 

3 hours ago, JH Psychedelic said:

Hi all

Just a plug for our survey study which includes thorough analysis of treatment efficacy. We would very much appreciate your participation if you have feedback to share on efficacy or lack thereof of different treatments. Info below!

With gratitude,

N

Johns Hopkins survey on HPPD: Help us uncover new insights into the condition and its treatment

Researchers at Johns Hopkins are conducting a survey to better understand the experiences of people with HPPD (Hallucinogen Persisting Perception Disorder). HPPD is a condition where people who have used hallucinogenic drugs experience ongoing visual disturbances, such as seeing halos around objects or seeing colors more vividly. This survey will ask about risk factors, symptoms, treatment experiences, and how HPPD has impacted your life. Your participation in this research study can help improve our understanding of HPPD and lead to better treatment options for those who are affected by it.

www.HopkinsPsychedelic.org/hppdsurvey

Protocol: IRB00384491, Principal Investigator: Natalie Gukasyan, M.D.

I took this survey. It was a good survey. When will the results be released?

1 hour ago, Spartan said:

Thanks for recommendations and support Cosmic and everyone. 

To be honest my baseline has been taken to a completely new level all together.

Meaning my condition has been worsened due to what I have been through. 

Severe stress and trauma over time that I won't go into here.

Like my visuals are completely off the wall / charts (insane shit) DP is at a whole new level.

It's really scary. 

This is after abruptly stopping Klonopin / being hospitalised and with no taper.. 

I was using the medication as a patient to treat a chronic condition. Now what do I have.... nothing.  

No discharge after care plan, nothing.

WTF

Thankyou doctors. For the damage you have done.

I really recommend Buspar (buspirone) because it decreases my anxiety and panic and improves my mood. Doctors don't hesitate to prescribe it and it's not addicting at all. Rarely has any interactions. It is nowhere nearly as strong as benzos though.

23 hours ago, Spartan said:

I feel like at this point in my life my symptoms are more vivid now and more intense now than they have ever been in my entire life.

I'm just wondering if person goes through serious life crisis or trauma can the condition be permanently worsened ? 

Quite concerned for this..

I don't mean to be Mr Neg or Debbie Downer lol

it just how things are. 

Yes sometimes when I'm angry or stressed out my visuals temporarily increase and it like comes over me in a wave but then my baseline is always less than that. Sort of like a "flashback" I guess but not really.

On 10/9/2012 at 2:41 AM, mgrade said:

[cs1234 said: Try Cyclobenzaprine. This is starting to look like an interesting drug.]

Trying this tomorrow for the first time. Currently having intense neck and back pain for no reason.

On 6/14/2021 at 7:23 AM, NRFAdmin said:

The HPPD research protocol has been approved. The NRF is accepting donations, 100% of which will go to fund it.

https://researchers.mq.edu.au/en/projects/hallucinogen-persisting-perception-disorder-hppd-protocol-multimo

Considering federal funds are non existent to pay for the research, it is up to us, family, friends and other loved ones to support it. Please donate here:

https://www.neurogroup.org/donate/

Click this link to sign up if you would like to become a participant:

https://www.neurogroup.org/the-foundation/register-with-the-nnrf/

It finally happened...

 

 

 

 

Dude my sensitivity only slightly improved. I don't drink coffee or smoke weed at all anymore. I can tolerate cigars, cigarillos and alcohol though.

On 10/28/2018 at 3:08 AM, LethargicAcid said:

My hppd and dp went away today. I used thianine and valerian root and my meds.

 

meditating, I resolved a lot of unresolved issues after therapy. Meditated for 5 hours to deal with some ptsd and psychosis and dp and straightened my posture

What meds did you take?