Spartan

This would have to be the most bullshit and insensitive post I have read in a long time. Its very disrespectful to real suffers and sufferers who are working so hard to get HPPD the attention it desperately needs from medical experts.

Hello All, I hope everyone is well.. Just going to post and share something spontaneous as have not posted in a while. I have had really strong HPPD for 28 years now. It has been been quite a journey and battle. At the end of the day, I'm feeling frustrated that more action is not being taken sooner to find an actual cause, treatment or cure. I know that some study's are being conducted although with Covid 19 it has slowed things down temporarily. I feel like people in general would have no fucking clue what having real HPPD is actually like, and likely could not handle it. I have learned to accept it mostly, live and get along despite all symptomologies although it really takes its toll especially over the long term. I wish we could do more, like more sufferers banding together to fight for whatever needs to happen to accelerate research. Like I feel enough is enough. Cheers

Hello, Have been using for approx. 6 months now. usually x 1 0.5 tab in evening I have found with the isolation thru pandemic I have been bored as and amplifying my HPPD to insane levels. Out of sheer boredom and frustration occasionally I will inject a dose of clonazapam (not heathy I know) Feel like im gradually increasing dosage and may need to get help. Thanks

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i have super bad hppd have had for approx 26 years now its a fucking visual nightmare , also have dp.. not sure how to express or what to say.. just saying hello cheers

yes, very exciting news! The protocol is fully developed and is seriously amazing/mind-blowing. I was asked to participate in some tests By Professor Mcconnell as the protocol was being put together which included a sleep-deprived QEEg (which was hell) As far as I am aware, the protocol has been put together as a collaboration of all the top authorities on HPPD from around the world. For something as big as this, its the nature of it that big things do take time. I speak with professor McConnell frequently and he has assured me that everything is on track and moving forward. In any case, I wish everyone could view this protocol. Definitely there are legit reasons why things can take some time, although it WILL happen. Yes, we need to respect the wishes /protocols of the researchers and not break rapport in any way.

@Visual Dudes post - I really love this and feel it is definitely key. A researcher was saying just the other day that the feels HPPD is a form of epilepsy / related to seisure activity etc It would be very good to share visuals post with him.

cool it sounds good. some other couple did a documentary, I had seen it although it was never released. I would be interested to participate too

one day soon that is...

real HPPD.. deal with it by crying.. or having my head in my mobile phone as a "distraction"...... one day I will kick HPPD in the Ass

full blown visual open and closed eye hallucinations.. being stuck in hellucination hell upon retiring with lights out... being completely fucked out and depersonalized, being isolated, feeling as not feeling in with "Normal society" Having these symptoms constantly is fucking hellest torture at times.. for over 29 years... lately I have been contemplating ending my life, I would not do it,.. tho its how I feel at times.. I'm that over it, its that chronic.. its cruel shit... id like to see your average joe blogs try and deal with this even for a day.. lucky I am a very strong human being.. no one can even comprehend what this is like.. (currently on no meds) tho feeling I will likely have to soon..

as well as all this.. have "made something" for all of you HPPD sufferers... (all will be revealed soon) also... , I will be publishing a book involving much of "my story" and life journey.

always make something of myself, champion athlete, coach , author, business owner.. etc etc ...... fucking tough times... tho I always keep on keeping on... and don't argue for my limitations.. I'm "superman" an ordinary individual would not last a day "in my body"....

Just wanted to drop a line and say helloo to the many HPPD endures, old and new.... I have not logged in here for years... tho have many fond memories of the moderators etc I used to be "oldschoolar, and before that "benza.. and likely before that it was the storm loader web site. oh yes and must-be-a-way-to-heal etc etc I still have Bad HPPD, nothing has changed unfortunately.. Its like my 29th year. I will likely try a new med soon lol... Wishing everyone best regards... and keep on keeping on..

im doing my best to rewire my entire brain with Holosync meditation LOL its been around a year now... meditation for an our a day.. have noticed some remarkable shifts.. Tho its always the choice of every individual for the approach they decide to take and i respect that.

cool...im still keen.. tho ill have to wear a cool costume or wig so im unwrekignizable as im steping up on the intenet with other projects ...

I was blessed by My Divine Shree MaharaJi

Thanks for shareing bro... It does not matter to me what faith a person is because GOD is ONE and has the ability to take innurmable forms and will take the form thats dear to the individual. I will commune with God in all failths as i know its only the ONE Father / Mother manifesting thru all of them. Whether is be ,Christ, Krishna, Durga, Buddha or Mohamad. If we realized we are all children of the one father / mother it would bing about peace and mutual understanding. If you dont believe me.. See for yourself intro 1 intro 2 Lecture from the Divine Master

Hey this is a great Topic... Yes i too have had a longing for God and Spiritual Illumination. This immense faith dawned upon me after i was fortunate to have the association of the Greatest Spiritual Master to Come to the Earth in the past 2,500 years / A God Realized Soul who who has complete mastery / Omnisiance over all the scriptures in existance... and has reconciled all seeming contradictions between existing faiths in the world today. Many deep and profound experiences took place in such association. I mediatate and pray daily. I felt that if it was not for HPPD i would have reached my goal of God Realization by now.. I feel as though HPPD is the only thing standing between me and knowing God, as it stops me from complete surrender of the mind, "Ananya" (one pointedness) so its one of many obsticles. For me suffering can also be seen as a form of Divine Grace as it can bring a person closer to God. So maybe hppd has forced me to look deeper into the Divine realm. Thanks for shareing.. Would be great to share more with you about this facinating topic. I feel its natrual for a person to seek happiness, bliss etc and long to know God, as we are the soul.. a fraction of God.. All souls natrually want Unlimited Divine Bliss / God. The soul cannot be satisfied with the transient material things of this world.

Holy F&8k ive been trying to post for the last 6 months and suddenley it works.. i wasnt expecting it so yay... will post and share more soon

Hi there awesome community.. how are you all