must-be-a-way-to-heal

ok  yes,, the sinamet has done nothing unfortunatley

Im also upset that there seems to be such slow, little progress in HPPD treatment research/information/experience/  as mentioned above... what to do ?

i will most likley be trying more meds when i can get back to see the specalist

Curious to know if aneyone has tried or experimented with this med... Thanks

thanks man

i have tried everything

and i have everything

Isnt that what homeopathic healing methods are about.. giving a person minute doses of a substance to facilitate healing...?

In some ways healing can be a shift in perception ... tho it sitll does not chance the fact that my vision is impaired and prevents me from fully embracing certain aspects of life.

Shamans enter into state at will .. Definition of shamanism is "MASTERY" of EXTUSY and MASTERY OF SPIRITS they are masters of there state / the spectrum of consciousness ( Eros and Thanertos )... and have the ability to journey at will,,,  and MASTERY of SPIRITS ability to acess resources from Spirit.. usually in the service of comunity for healing purposes.

HPPD is very diffrent from true shamanic vision. For one the sufferer has no control over hppd.

I have worked and studied with real shamans " not charlotens" there are too many fake gurus in todays world

basicly i just feel like venting...

This is really fucked up and beyond a joke,,,

This is really serious, i need some help, it has been too long dealing with this.

It is really fucking with my life -

Something needs to be done, i need help

I dont speak to aneyone about ot apart from my pearents

What to Do?????

thanks,    no improvements unfortunatley

the pre workout product is called "the one" from BPM labs   thanks man i appreciate it

ok good, many thanks jay...   its a good tip

Im not working at the moment.. i find im useing face book as a massive escape from HPPD (tho its not really escaping)   How bad is this for my head ? I need to be re-training my brain  with reading and other exersizes... i suppose looking into  screen alot of the time is really not doing me any good .. Thaughts please...   fuck its cronic,, like its an 'escape' tho a bad one

ok cool, that may be some helpful resources i can utilize

thanx

agreed.. yes i have been on high doses of Keppra.. at high doses it made my skin react in an unplesant way as well as rage that was quite hardcore.. i was on the edge of getting into fights etc. Unfortunatey it did not help visuals.

Just curious, what type of pain do you suffer from?

Ok,,, yes agreed... anti psycotics are no good. I have stopped taking them. they were just helping with comeing off valium. Its horrible this HPPD,, especially lying in bed at night and its just in your face all the time, that why i want to self medicate .. to nock myself out to get some relief... its very uncomftarble at times im sure as you know.

Other option is just not to take any drugs,... Id really like to know if pre workout intensifiers containing caffine are making things worse...

Thanks, yes benzo withdrawrals are really not nice, and freaky... Thanks for your empathy, i appreciate it.. ill be fine, im a strong person .

ok sure, yes can well understand.. tho at least it will help me get off benzos.. so will likely only use for only 5 days or so.

"Shaman vision" LOL ok  well i suppose that’s putting a positive spin on things.

yes agreed,,, drugs are not good and basically have stopped  taking all drugs, apart from the above mentioned.  yes of course i want nothing more than to have this HPPD go once and for all.

Im corruently doing a benzo withdrawral... Not from a large dose tho i have been on them fo around 10 months. This is my 3rd withdrawral.

I have been using Seroquel ( 25 ) at night to assist in relaxing and nocking me out to counteract some of the withdrawral symptoms. Seroquel   has been knowen to be beneficial when dealing with alchol withdrawral too.

Hopefuly it wont nock me out too much and hopefully will not exaserbate hppd visuals too much also.

yeah its a great letter and all important..

Thanks and wish you all the best too !

wow its Big.. great effort... i did not quite get through the whole thing..  tho you are sure to find someone with experience  with HPPD. 

cool thanks, it is really up to my docter.

One thing im wondering about is that... obviousley now i do not do any drugs or alchol. Athough i am right into my elite fitness /  natrual bodybuilding..  One of the products i take is a pre workout intensifier, it contains caffine and a few other ingreedients. Does anyone think this could possibly get in the way of the treatment i am undergoing with clonadine / or do you think it will be cool? The supplament name is "the one" from pbm labs...   i do like my fitness

Cheers-

Thanks

Thnks mikezero... appreciate it very much,, wishing you all the best !

yes just started clonadine starting on x2 100mcg tabs per day.. will have to monitor my blood pressure, great that she is a hot nurse  lol wish me luck.

hey thanks for that David and everyone,,,

Does it cost money to participate in medication trial ?

yeah man hunt here down, true.. ive tried to find her on face book yith no luck yet LOL

True,,, karma will kick her in the ass.. if not in this lifetime, the next

Thanx .. yeah i am a strong dude.. i have mearnt many tequnices to live with and manage it, although the past week has been bretty intense / amped, thats one of the resons for posting...

Yeah, its difficult, because my brother was the culprit.. he introdduced me to acid and took me mushroom picking.. also send me sheets from the U.S. Its difficult because he is family.. tho he is still just as much of a dick head now,  he has not changed so i have recently decided to disconnect and not speak to or see him. I find him suppresive and he has no comprihension or understnding what hppd can be like.

Thank you Sir, do appreciate the feedback.. have an awesome week. take care!

yeah opiates realax u ... tho , most likley you will have out of body experiences .. I do like opiates .. tho they are so addictive .. so i dont take them

Hey there everyone...

This is benza.. im a really old school HPPDer

I have not been on this site for sometime...

Im wondering how people are going, I myself am still suffering bad from HPPD... will there ever be any treatment or way to get thru this?

I am off all meds now appart from occasional small dose of Valium in the evenings...

My symptoms are still full blowen, extreemly vivid after aprox 25 years    fark that is a long time.

I seen a psychaitrist today just for someone to speak to about it. He said it was beyond him and refered me to a neuro psychaitrist.

This is serious shit man, its fucking hardcore.. i dont have any support, no one to speak to about it.. Its like im always hideing.. Its farked, i just want my life back.. hppd is some cruel shit and i wish it upon no one ever.

Soooo fucked up that my elder bro introduced me to acid at the tender age of 13.. What a fucking dick head, what the fuck was he thinking???     and turns out that the trip that triggered HPPD ... was placed in my mouth ... me being completley unaware what it was... at 5 am after a rave by his fucking girlfriend..   holy fuck, this is beyond me, i want to kill that bitch LOL

Anyhow, things have been pretty bad the past few days... I just wish there was some type of help or reaserch going on?? I know HPPD is rare, it really must be extreemly rare, i have never met aneyone with full blowen real HPPD like myself.

This is difficult, any support greatly appreciated.. dont mean to bitch and whine, i just need somewhere to express what im experienceing in an attempt to find some resoloution...   

Anyhow, i hope everyone is well..

Thanks

Hi People

hope everyone is well,

Its all good, just emailed David directly.. thankyou

ok awesome,,, please inbox me david kozins email aderess asap .. thanks.

i agree, great post / reaserch Visual..

Ive been living with this for 20 fu*king years now... from 15 to 35

something really does need to happen..

I have discoverd a web site where people give money for associated causes and projects. People upload a 3 minute video on to the site, explaining the cause / idea .. and people from around the Globe donate / give 10s of thousands of dollars ... many many thousands of dollars for the cause.

Visual... please inbox me so i can pass on the details just to you .. you can possibly give it to David Kozin and possibly Dr Abriham ?? we can work as a team.. maybe more affective than protesting at this stage.

At least worth investigating..

If we are going to mke noise, then something needs to happen... possibly uploading documentarys via u tube and make it go "viral" to bring more awarness to the world... who knows.. just ideas.