David S. Kozin

HPPD FOLKS. I have not talked about the physical research tests that are designed to be simple and create an easy diagnostic test to prove that we have, at very least, a legitimate physical disorder.

I have created the protocols in depth. I have even worked with vendors to get the equipment.

I have one year and a few months to wait until I can enter into a PhD program and conduct the research, including other ideas and not let someone speak for us,

The 1080HD version is available at resolution of my monitor. 

CLICK to SUBSCRIBE! I just recorded my screen and started showing some behind the scenes. I have a real camera, I can make audio but right now I wanted to just make something that shows how much research exists and was published on this topic and how can a researcher miss these papesr if I found them for my undergraduate thesis. Well, there is a self-biasing, and I have heard from very prominent researchers in the hallucinogenic research community that were surprised by the overwhelming amount of content and the quality of the content.

What is interesting to me, is when new research about HPPD is published and none of this history is included. It is almost as if the only research on the topic was selected by the researcher to validate their point.

Well, I read the papers. I paid $35 for a lot, and admittedly thank you to my two sponsors and the MANY sponsors over the years that kept and still keep the web site up. 

I have finished what I needed to do before I could dedicate my life to HPPD, and so I invite you to a 40 minute video of me just clicking around at some of my links, showing the actual papers, using my mouse as my voice and pointing out passages that are tremendously interesting and it blows my already altered mind on how researchers are unable to use research services.

PLEASE GO TO MY CHANNEL AND SUBSCRIBE. I have a place donated for me to live in my area to allow me to dedicate a day's work to HPPD research, web development and my personal withdrawal to lower my dose of klonopin. I will record this. I am sure it will horrify/entertain you or perhaps you can put a face to the web site and past comments and I will be honest about what is happening to me. 

This video is a FULL image of my desktop while I navigate through files. So, as I said you will see some personal things (nothing obscene, but I have no problem with anything you will see. I am not adding music, so you can feel the freedom to choose to look at different sections at your leisure. Just skip around. If you find something that you want to point out, then highlight and comment it on the actual channel. 

I NEED 1,000 SUBSCRIBERS. I have 32. If you want videos that will break down this information and include updates and opportunities to work together, then subscribe. Subscribers are hidden (unless you opt to let it be show. It also is not a channel that says anything about HPPD. It is my channel, and will have topics of perception.
This video will contain simulators that you have never seen. I will show different types of visual snow. I will show you a sample of many of the papers that I have in my library. You will see articles from 1969 on HPPD that describe the symptoms in almost the exact way we do today. 

I will show a military research study. I will include related studies, hints at multiple biophysics studies I designed. You will see some links and bookmarks that I am not bothered by, so you have no "gotcha moments" in the comments. 

Papers covering all aspects of this disorder. 

Enjoy, fast forward, comment on a section time and ask a question.

I will have more videos.

I am so uplifted to see the positive videos about HPPD from individuals with this disorder, and also I am excited to see the positive momentum of the Visual Snow Community. Similarly, I am glad the work we did with Depersonalization and Derealization had an impact.

What I did not want to do is tell you, "HPPD is this or that... We only have this much evidence..." or other surface level washing of the topic. 

This is my personal desktop. (Yes, I like writing music and flight simulators)  This is what I have in my online drives. 

This is what exists. This does not include the many gigabytes of data from the hppdonline.com web site, but that is protected. 

Please subscribe. I have this checkmark, and it enables me at 1,000 subscribers to do much more with my channel. Typically, 100,000 subscribers require a verified account or celebrity. I guess having 1000's of pages with you name on it because of HPPDonline.com pages and publishing research or paying off my Google rep (jk) earned me this badge. 

It is time to get REAL serious about HPPD research. 

I have taken my vacation. I have read much of the new theories on HPPDOnline.com and I am so  excited we are on the same page without talking to each other. We are looking farther than the GABA inhibitory system with the 5ht inputs and GABA outputs and looking at activation cells and the role of Dopamine. Functional structures and pharmacological observations.

The first paper I was a primary researcher and author (and programmer and CEO of the non-profit that paid to host the research for Mount Sinai School of Medicine) has nearly 100 citations. It is a landmark characterization of the disorder and contributed to validation DPD/DR for the DSM-5.

I have this designed for HPPD. You saw bits of it and the many revisions on my drive. I have updated more and I have completely re-hauled it. 

I will need help from the community. I am awful at raising money. I feel guilty for asking for money, even if that money is what will make this work. Unlike what many may believe, I would be homeless if it were not for my family's home. I have been a caretaker for a few years, and dealing with my ADHD symptoms that have been disabling for so many years. 

I am ready now. We are all definitely ready. I have never thought I would see the day there is TOO much information about HPPD on the Internet, but that much of it is garbage.

I promised I would dedicate my life to this, and this is where I feel most energized. 

CLICK SUBSCRIBE! 

- David S. Kozin

I have noticed a very temporary (about 10 minutes) crystal clear vision with MDMA after having HPPD for a long time. However, after 10 minutes it was back and for at least the next two weeks higher than before.

This is not reported very often, and it only happened to me once. 

I do know that I hated pot, but I smoked it after HPPD and my symptoms jumped twice fold and that level became the new baseline.

Here are some examples. I put up one. But, adding HPPD/Visual Snow can get a lot of visibility (that was not a pun on purpose) for no cost.

 

, will notice that it starts to become harder to see things clearly up close http://bit.ly/2RHK7hW  #WorldSightDay

atient records are a valuable source of information for planning care services. They can identify, not only how many people are receiving eye care, but also socio-economic and demographic information about the patients http://bit.ly/2RHK7hW  #WorldSightDay

“Of all the senses, sight must be the most delightful- Hellen Keller.” On #WorldSightDay, let us focus on helping raise awareness about blindness and vision-related impairments, of which 80% can be prevented or cured. Take care of your eyes for they are the window to your soul.

Being able to see clearly is a blessing! On this #WorldSightDay, promise to maintain the health of your eyes with our ‘Eye Care’ feature. Download http://Medicalwale.com  app today: https://land.ly/medicalwale 

 

I will be live streaming my Trip to the doctor and if I am not violating a law, get real time good or bad news about sleep study and watch how amazing Dr. Baker is with managing HPPD and ADHD. 

- David

I am scheduling a sleep study, but based on pretty good data: my girlfriend has observed me stopping breathing at times. Additionally, other symptoms of sleep apnea are there.

Please forgive me if I repeat other posters, it will take me a little bit it get a feel for where we are at on the board, so...

One of my close friends has Narcolepsy. I realized that I was having some similar issues, but I am also on a unique combination of medications that could mimic issues.

However, often associated Sensory Processing disorders and Attention disorders accompany HPPD individuals at higher rates than the norm. One caveat, is individuals with ADHD (including me) self medicated with stimulants not realizing how severe my ADHD was. ADHD and impulse control, feeling misunderstood and other parts of our ADHD Brain are ripe for a personality drawn to hallucinogens. The chicken and the egg problem. I do know I had ADHD before HPPD, just undiagnosed. 

I have a Dopamine hypothesis, and it is similar to why sinemet was studied open lable..

I have such excessively high frontal cortex theta power witgout assymetry that my qEEG/EEG reading suggested the possibility of a more serious issue. Theta power is now formally accepted as one indicator for ADHD. I also think it is why I am able to have some "super powers" that can also be awful. 

Anyway, the post is essentially self-diagnostic of a positive ADHD diagnosis. I went way off topic there. 

- David (writing unedited posts since 1998).

Constant Zapping, standing up and sitting down, tremors, vivid hallucinations in edges of my eyes. Sleeping feels like it will NOT easy, but I also  fall asleep holding my phone in my hand playing a game or reading news. 

UPDATED RATING:  

Even it has dilated pupils.

The following is my experience with drug. Everyone is different, but the board is a source of information when others input their stories and the user can make better choices with their doctor about what therapies to try. 

Now that is out of the way. . . 

From 1 to 10, where 1 is the worst outcome and 10 is the best outcome, here is my score for this muscle relaxer:

3️⃣ I WILL SEEK AN ALTERNATIVE MEDICATION FOR THIS IF POSSIBLE, AND UNLESS MY PAIN RATES a 9 or 10 then I rather deal with the pain.

⚡ - Today, the Head Zaps have started. If you have taken an SSRI, you are probably all to familar with the feeling. My best description would be that this feeling is how you imagine the first 1/2 second of a seizure.. Turning my head up and down or left and right will induce the zaps. Zaps are bad. My back is feeling better and this morning is my last dose.  I AM GETTING THEM RIGHT THIS SECOND. About 5 to 9 full body. chest notable and head. 

? With the zaps and head fog, I will get dizzy for a brief moment and then be ok. 

? The DRY MOUTH is awful. I do take gabapentin, which is also notorious for dry mouth, and I am comparing my normal state to what changes occurred after taking the medication.
I have a bottle of Biotene Dry Mouth Oral Rinse. It is a great product (but overpriced) to help with dry mouth. However, this feels like trying to make the Sahara Desert into a body of water. Lemon Ice or just ice is good for this.

☣️  Overall, the experience of side effects at 100mg Extended-Release taken twice daily feels like an SSRI "head energy buzz that isn't comfortable: 

I have no active affiliate account with Amazon. Here is a link for convenience for anyone with dry mouth. I do think they changed the formula.

   A few days ago, I ended up in the Emergency Room after a hip/back injury two days prior was increasing in pain and I could not sit up without assistance. 

Luckily, CTscan and other tests showed no organ damage or issue (hernia/etc) but there are three muscles that cross in that area and the deepest layer is often what causes that pain. After getting IV opiate of some sort, I was discharged.

It is a few days later. and I just returned from my doctor's office. My back was exceptionally tight at the location, and I consented to a therapy with lidocaine and multiple injections at different sites (Graphic description: It felt like a meat tenderizer, but in the best way possible). Then a steroid shot. 

Lastly. prescribed Orphenadrine, 

Orphenadrine is toxic when overdosed and typically induces anticholinergic effects

I have 100mg Extended Release tabs. Honestly, based on the action of this older drug it probably would not be a great choice for a person with HPPD. However, I don't like cyclobenzaprine because it makes me feel awful in the morning. 

I will report tomorrow how the entire experience impacts HPPD.

When writing reports with medications, make sure to tag the medication and that will allow for very easy searching of medication info for people.

So far, I do feel a little dry mouth. I have Biotene for this, which is a smart thing to have around. Actually, I am definitely feeling "altered" and it is T + 40 minutes. 

 I just spent a minute or so lost in my bouncing leg and thinking about the tingling. I am going to lay down for sure.

- david

THE GOAL: To return to the roots of the HPPDonline.com website by adding easily accessible information, a non-forum section, etc.

Friday, I discover in I am able to afford and begin my graduate degree in Clinical Mental Health Counseling. The next step is Certificate in Advanced Addiction Counseling and to pursue a private practice to cover individuals with HPPD with a license recognized to enable me to diagnose, treat and counsel individuals and the last degree provides a significant boost to my area of specialty and opens up to a possible HPPD and private practice.

In the interim, I am working on this website and have a few projects that I have been working on over the last 7 years in addition to my own chaotic life. 

I am working on a personal website and also layered over that a site for Perceptual Psychology in general. I am not sure of the strategy, but the system I am using is excellent for creating community outreach. I will discuss more later. 

- dk

I am changing some things. Nothing will be deleted. Nothing that you see is a guarantee that it will stay or suggestive of an idea. 

I know there are members out there that remember, but if not here is the first post I wrote to the HPPD community that was started by a gentleman named Andrew. 

I have not heard from him in a very long time. However, I am giving him an Honory account and title. 

Many of the new items do not have specific terms and condition associated with them, so please ask before you test them. 

I realize many of the users use their smartphone to operate the message board, so I am looking at two different themes. I will consult with the other Admins on anything lasting, but if you notice a "Feature" appear or disappear it is not your HPPD, but just me.

- David K.
 

Screenshot. October 16, 1999 

It is 491 days

Until the 20 Year Online Anniversary.

Screenshot of very early beginning and 1st Version of HPPDonline.com  

The founding day would probably be November 2000. Making this web site operating for 18 years. 

I am reading threads, and this one does have merit for discussion. I know of a few HPPD individuals also diagnosed with IgG and other immunoglobulin deficiencies. This is an interesting thought at best (at least at this stage), but while diving through articles related to this thread that ended up meeting up with research I intended on investigating. 

I don't want to bias the research (although, I think it would be difficult based on the protocol), but a measurement related to acetylcholine is a significant role in measured variables along with the system for Dopamine in an area of the brain alluded to in the discussion for using senemet for HPPD. 

Discovering Narcolepsy is autoimmune is still very new. 

I forgot. Those images are not very clear, but anyone can look up hppdonline.com at the Internet Way Back machine, and see how much this community has done. 

There is some very useful information contained in this archive, which would take forever to download unless someone who is very savvy could obtain the files they have in their archive.

I have begged people to follow my youtube channel, and I realized I wrote about this in the message above, but YouTube is ADHD crack, and I forgot to include the link. AND CLICK SUBCRIBE. Click Watch on the boring watch video. 10,000 Views is an important Metric. I will put up more videos, but these 2 are classic:

CLICK ME TO SEE DR. ABRAHAM VIDEOS: https://www.youtube.com/DavidKozinVerified

I am making some cosmetic, functional and other changes to the website to test features and see if it will handle some future plans.

I have had some very challenging years, but now I have the plans to implement and I am fearless. Also, I get really pissed off when the HPPD story is told incorrectly on large government-funded websites, drug treatment centers and places I would never have thought HPPD would even appear.

Even to the relatively educated Psychadelic class, the idea that LSD could cause HPPD was at best an overstated condition, and at worst (most common) it was considered to be a myth.

I must admit that the "Millenials" have really tried to reduce the stigma associated with the disorder just by joining Facebook groups for HPPD. Some of you have created videos, music, blogs and for me to see HPPD listed in online pamphlets for drug-addict treatment centers is AMAZING and SCARY. It is amazing that the information I have noticed is stating that HPPD of the Consistent Visual Type is real. Previously, flashbacks were recognized, but not the long lasting visual disturbances. 

That is Amazing. We owe it to you, the members before you and to the majority of the researchers who haven't slanted their datasets.

This is Scary. I would rather have no study that a bad study. If a case report is published where a person is diagnosed with HPPD based on two criteria (1. Patient states they are experiencing hallucinations & 2. The patient stated the hallucinations began with the drug). The individual is treated with Risperdal (risperidone), which is recognized in multiple reports in the Archives of General Psychiatry and other literature (and many of our/my personal experience) to exacerbate HPPD. Consequently, there is a study that states a person with HPPD was cured with a drug normally contraindicated for the treatment of HPPD. The error is the diagnosis. If this was a freshman in college with a family history of schiophrenia, and who had early signs of a disorder belonging to psychosis, it should have been identified as Hallucinogen-induced Psychosis and part of the HPPD syndrome is that drugs like Risperdal make it worse. 

So, I have three studies. I am applying to a clinical mental health program and seeking an advanced graduate certification that would enable me to open up a clinic, practice counseling with a  legal clinical license and this is my life plan. 

I would like to get hired at the Lab of the school I am applying to, and do so with my own research funding. 

(I know, I have promised a lot of things lately, but it seems there is always a crisis, but if I can eat and spend 4 hours a day to this project we will have these studies completed before I am finished.)

Additionally, the degree will allow me to legally diagnose individuals that have HPPD with the formal diagnosis of HPPD. I would be a dedicated clinician to HPPD and related disorders, and if that doesn't use up enough time then I will work with individuals with opiate and benzodiazepine addiction. Creating a humane Withdrawal Protocol for Benzodiazepines in America would be one of the most significant contributions to addiction medicine since the biological model. 

I asked people to sign up to my YouTube channel, and I am at 25. However, I had nothing of value posted on my channel yet. Now, it has changed. Two sections of an interview with Dr. Henry David Abraham, where I asked questions and Dr. A answer about two very important sections on HPPD. I found them after many years, and they are from 2001. 

My youtube page is: 

Here are some images of HPPDonline.com and NODID through the years.

Here is the article that appeared as a book chapter. I am sharing it for the purpose of academic and general research for the benefit of the human condition.

I do not want to give away the details that I will present, but I will be giving a critical analysis of it, which can have good and bad points. My video review will be part of the series of videos I will provide that will cost a nominal fee per viewing (for the first 6 months or so, and then it can be open to everyone.) However, it takes a lot of work to create, read, pay for the articles, student loans and put together the content so I have to stop feeling guilty for asking for money. This one is free, but as  I discussed on the Facebook HPPD and DP/DR group, I will be returning to research and providing research reviews on my youtube channel, opportunities for individuals to learn research methods as a lay person or for work to design and receive funding for their own or co-designed research.

If you have issues with the article, good, bad, in between you are encouraged to try and work through reading a research article and make notes either publicly or for yourself.

I will go through it from a unique perspective. Even the general emotion it gives you.

You get to be the judges.

- David Kozin

                                                                                                                                                                                                                                      THE LINK IS BELOW: A copy will also be placed in the section for documents also.                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                 

Current Topics in Behavioral Neurosciences pp 1-28 (2).pdf

The potential for problems with the downregulations of serotonin receptors with LSD and epigenetics. I am going to need an aid to help with research compiling.                                                                                                                                                                                                                                                                                                                                                                                                                

I'm going to address this in a post,  but I do want to say that I need you need to read for my answer  (It will take me a little bit of time tonight to write, and I need to read a few things on the board afterwards before I release a video, but I am excited. 

As, GS stated above and to further add that visual processing goes through multiple stages. 

The retina is the only part of your brain that you can see. Also,  the retinal cells work backwards and are constantly firing and stop firing when activated by a photon. 

Just adding my two cents that case studies are the lowest form of convincing research publications. They are helpful and can inform further ideas for controlled research.

Fantastic to hear.  People do have symptoms go away. 

Lowered anxiety can reduce symptom severity by reducing activity in the theorized GABAergic disinhibition system.  

Thanks for sharing.  

I had a serious leg injury and was on 10mg Oxycontin every 4-6 hours plus Morphine IV prn. I was fine.  

Honestly,  I take Excedrine for headaches. Excedrine would stop headaches caused from MDMA abuse,  Opiate induced headaches, Alcohol Hangover,  Tension Headaches and Migraine. 

I know and worked with sufferers of Cluster Headache. One of the substances that is added to a compound thay works is Caffeine.

Excedrine has Aspirin,  Acetaminophen and Caffeine. 

It is more effective than Morphine for headaches for me.  

INTRODUCTION TO PHARMOKINETICS (With Specifics for the United States FDA rules and regulations)

The half-life of Klonopin averages 40hrs. So, on day 4 you still have 50% of the dose you took 2 days prior in your system. 80% of the day prior. The value obtained with humans for available active clonazepam is a 3.3 fold increase from your daily dose. 

So, if you are taking 1mg/daily you achieve a steady state dose of 3.30mg. 
If you are taking 4mg/daily you reach 13.2mg. 

If you are taking .5mg a day, the steady dose = 1.65mg

I created a calculator you can enter in a dose and it will calculate your body dose equivalency for 7 days. It is a google doc, I am pretty sure I locked  the formulas, so only change the one value and press enter and it will change automatically for you.

https://docs.google.com/spreadsheets/d/1EjTl8-ldbA_ZVaAgwrzjT613wKl3jAZxha2muLlkl8U/edit?usp=sharing

Another very simple way to achieve the same thing is to take your daily dose and multiply by 3.3 or even more quickly by 3.

This is a quick way to see why recommendations are for lower dose ranges. 

Dose Daily                 Effective Dose Potency at 7 Days

Typically, these are measured in nanograms per milliliter. This is only for clonazepam, and the half-life of a 2mg dose in a 2003 study was approximately 39 hour +/- 9 hours. Use of antacids can affect this number, liver function, kidney function and food.

The average difference in C(max) and AUC between generic and innovator products was 4.35% and 3.56%, respectively. In addition, in nearly 98% of the bioequivalence studies conducted during this period, the generic product AUC differed from that of the innovator product by less than 10%.

It also explains why having a day or so lapses in a Klonopin script are infinitely easier to handle than a Xanax script. Because the drop in concentration takes the same reduction, but Xanax half life is 11.2 hours. 

Klonopin Dose Calculations (Rough Estimations)

I would discuss these with your doctor, and I also call them rough because other medications can potentiate the level or medications or supplements may occupy the enzyme in the liver that break down Klonopin, so it stays in the system longer. There are many variables, but this is a good general demonstration.
 

.

The question is not random at all. It is a great one. 

(I am going to speak to those without significant DP/DR, but the individuals that have lasting altered perceptual disturbances that at least in the early part of the disorder result in significant distress.)

I started talking on the original forum in 1998. I was less than a year into the disorder, and happy that somehow found a name for it (Thanks to the old HPPD board by Andrew). So, I know there are many who have had HPPD for 40+ years like MadDoc above. I can say that the vast majority of them have adapted to the symptoms, and some of us *cough* may be better off with HPPD having affected out lives vs. death or the other few awful outcomes that accompany substance abuse. 

How are the Visual symptoms? Do I still have the same visual symptoms? 

Generally, the symptoms do reduce with time. I do take clonazepam, but admittedly I am unable to honestly say if it has caused me more trouble than if I had not started taking it. I think there is a place for benzodiazepines, and a meta-analytical look at posts on this message board could yield an interesting paper or an easily designed research project could shed light on some empirical data on this question. For me, it was the thick static (a severity that I saw figures and cartoons in the spinning pinwheels of the static when I closed my eyes) that prevented me from driving at night and my night vision made looking at the sky impossible and all but the brightest stars and planets would be distinguishable. The purple afterimages at night would take over my vision if I stared off into space. It would be followed by a neon green "veins" in the shape similar or = to  Kluver shapes. I can tell you that during times when I did not have access to Klonopin, the anxiety and body feelings are far worse than the visuals, but the visuals are worse as I would expect because in a withdrawal the brain has not had a chance to adapt to the normal receptors.

However, my vision would only be an issue at times it would be for any person with or without HPPD when they would be more aware of their vision (e.g. driving at night on a two-lane road with oncoming lights, staying up too long or looking through a telescope. Excessive glare.) my symptoms have not changed. Truthfully, they are worse, but (NO PANIC) I am certain they are the result of my vision actually getting worse and I need glasses. But, I have been putting off going to get my eyes checked. Iff in one month I haven't made the appointment and can report to anyone about it, please call me out on it. Right now, I have trouble with street signs, reading text close up and my vision was impossible to determine a "number" when I was last tested in 2004 because of the visual issues, and I make sure to take my medication before getting my eyes tested for when driving (and at least I pass these for now). 

(I have a lot to say, so I will try and stay on topic the best I can, but you wil get more than you asked as a result.)

Perception of our environment is one of the strangest and most interesting parts of PSYCHOLOGY that I know. I can go a few days without my symptoms becoming a thought that reaches my conscious awareness. So, did I see haloes, walls move, and other visuals during those few days? I would say I saw them just as much as I was consciously aware of the birds chirping around me (they do all the time, but how often do you notice them?) that I had absolutely no real recollection of. We can attend to only so many things, so if I am having sex then I can tell you with 100% certainty that at this point I don't think about HPPD during or after! When I am writing on this message board, I can write for a few hours and talk about the symptoms but not be occupied by my own. However, just as I can now -- I look away at the wall and I see the monitor after image, the wall is moving upwards, everything is still in ghosted vision, Haloes and afterimages follow everything I see -- have these visuals they do not cause me distress.  I am more concerned for those who are going to get HPPD and for the individuals who received it only after a few uses and for the people where other disorders interact with the mechanisms of HPPD to make it more difficult to accept that I am my own.

In general, I know people in almost every class of profession and life but notably, none are jet pilots or dentists and also not aware of any of us being a military sniper, and these others where perfect eye-sight is required are doing very well in their lives. When they are not, the cause is usually linked to anxiety and depression that exist with HPPD and experiences of depersonalization or the visuals staying distressful can be an issue without addressing the other disorders. I have ADHD (which is finally getting research to support it as a biological brain disease, so I don't need to validate it but I am 38, have 4 papers in medical journals but live in my family's basement) which is the reason I have been gone so long. I designed the PHP front-end and MySQL backend for the Depersonalization research with Dr. Simeon in a hyperfocused binge and I designed and published research because either I was illicitly taking or finally prescribed Adderall to provide me the ability to complete a task). I also have a "lasting disorder" but it is "cured" which is my right leg's tibia (shin) had a complete spiral fracture and fibula broken like twigs and I almost required amputation, but instead, they used a scalpel to start a 25cm or so cut along my calf and then used surgical scissors and cut through my fascia to prevent compartment syndrome, put a rod through my knee cap down to my ankle and screwed my leg together and I had to wear a wound vacuum 24/7 for 4 or so months until the wound reduced dramatically in size (three times a week I would have the sponge changed by specialists) and then I could get a skin graft to be the fine leg they saved. I was very lucky. However, It causes awful restless leg symptoms (all of the little nerves slowly coming back, and a lot of feeling still doesn't exist on that area of the skin that is a giant scar) and standing for a day will cause me to feel like my knee is locking up, I can't go up and down stairs without using my arms in that case and I have to rest for a day (I can manage the pain if I am not moving, but if it gets too bad I do take tramadol and I will take it to sleep). Before this, I was taking 10-20mg Oxycodone every4-6 hours including when I would suddenly awake as it wore off. Eventually, I asked to step down and I am only telling this story because I am an Addict, and telling your doctor to reduce your narcotics is something I am proud of. However, I am still taking a combination of meds that we were reducing in small steps (until my father was diagnosed with brain cancer and so far we haven't decided it is good to rock the boat)  that a substance abuser would consider a dream to have each month: d-Amphetamine, Clonazepam, Tramadol but I can promise my opinion of these are completely different. 

Do I still forget my keys and it has been over 2 months and I have yet to get a replacement to my driverse license I lost somewhere? Yes. However, I did keep excellent records and cared for my sick father in a way that I managed his medications, condition where nobody would have said I was inattentive. It is just how my brain attends to things, so like HPPD it is part of my biological situation (but we can learn to adapt and even take advantage of some of the things.

If hearing 1000+ stories from people with HPPD makes me an expert on the topic, then I can tell just from your last sentence tells you already understand our best defense. Humans are generally very resilient and adapt to a lot of weird conditions. I will may not have daily leg pain, but I still have a titanium rod and I wouldn't try competition cycling, and I can't finish a book until I started taking meds so I can function in our world and did I overcome ADHD? I am getting closer, but as my psychiatrist said, "Your brain is special. That is all you will get for my diagnosis on you. I fill out numbers for your insurance."

So, in my opinion, you are going to do fine. Very early on, about 1 year into it I was going to stop looking for my own cure and worrying if it will go away, and it enabled me the freedom to study it and observe it without excessive bias towards seeking a magic bullet cure and be realistic about what the challenge will be. Your only real limit is not landing jets on aircraft carriers at night.

- dk

There is news. I can't explain yet, but in short, my biggest barrier to work no longer is an issue. 

I will have a re-introduction post, I will cover some of that there.

I have a plan.

This is an image of the message board for HPPD that I was running on a server and we were pretty active. 

Sadly, to be honest, I am in the same position looking for a position as a research assistant.