Ghormeh Sabzi Posted February 8, 2012 Report Share Posted February 8, 2012 I'm trying to find someone who understands this condition in the UK, can anyone provide any recommendations? Link to comment Share on other sites More sharing options...
Danny13 Posted February 8, 2012 Report Share Posted February 8, 2012 In my experience there are none. I have seen Dr Sierra at KCL who is an expert in DP/DR. I cannot praise him high enough. To see him you will need to get a referral. Link to comment Share on other sites More sharing options...
Ghormeh Sabzi Posted February 8, 2012 Author Report Share Posted February 8, 2012 As it happens, I'm a student at KCL and emailed him yesterday. However, I do not suffer from DP/DR - my problems are mainly visual. How long did it take you to get referred once requested? I am also investigating other possibilities. I have emailed some professionals here in the UK, and a couple have got back to me saying they are aware of this condition or at least the symptoms of it (visual snow, etc). Of course, I can find out much of the info with regards to medications etc myself, I just need someone to prescribe them for me. Perhaps a psychiatrist is required for this? Link to comment Share on other sites More sharing options...
Danny13 Posted February 9, 2012 Report Share Posted February 9, 2012 the referral took about 6 months I would be interested to know which professionals have responded to you? In my experience most psychiatrists just wanted to put me on anti-psychotics - no no no Med I am really interested in trying is Sinemet although my doc has warned me about the potential long term side effects specifically tremors Link to comment Share on other sites More sharing options...
Ghormeh Sabzi Posted February 9, 2012 Author Report Share Posted February 9, 2012 Dr Dominic Ffytche runs a visual perception disorder clinic at King's and advised me that I could get referred by my GP, but that funding is given on a case-by-case basis. Dr Gordon Plant has told me that he is aware of this condition and would be happy to advise me either privately (£350 for the first consultation, £175 thereafter), or through the NHS (if my GP writes to him). Link to comment Share on other sites More sharing options...
Ghormeh Sabzi Posted February 16, 2012 Author Report Share Posted February 16, 2012 My regular doctor is so frustrating ... will not take me seriously at all. I said I was having a consultation with Dr. Abraham and he could communicate with her - she said this would not matter as he is just some guy who she doesn't know. I will been changing to a different doctor. Link to comment Share on other sites More sharing options...
alice-acid Posted February 17, 2012 Report Share Posted February 17, 2012 where is KCL?! and doctor gordon plant? either of these anywhere near manchester by any chance? my guess would be london ): Link to comment Share on other sites More sharing options...
Ghormeh Sabzi Posted February 17, 2012 Author Report Share Posted February 17, 2012 KCL = King's College London Gordon Plant is at UCL = Univerisity College London So yeah, both in London If you have the standard visual problems (snow, starbursts, etc), it may be worth seeing if you can get a referral. Worry about geting there if you are successful. I don't know if the Visual Perception Clinic can provide treatment, and so Gordon Plant is probably the way to go if you want to be prescribed things. I don't know how much he knows about HPPD, but I told him all of the symptoms and that I thought I had HPPD, and he said he was aware of it. He's a neuro-ophthalmologist. Neither of these are for non-visual problems (DP/DR etc). If you want treatment for that you should ask to be referred to the Dr. Sierra that Danny refers to. Link to comment Share on other sites More sharing options...
Ghormeh Sabzi Posted February 17, 2012 Author Report Share Posted February 17, 2012 In my experience there are none. I have seen Dr Sierra at KCL who is an expert in DP/DR. I cannot praise him high enough. To see him you will need to get a referral. Out of interest, did Dr Sierra have anything to say about the visuals? Link to comment Share on other sites More sharing options...
Ghormeh Sabzi Posted March 15, 2012 Author Report Share Posted March 15, 2012 My doc has agreed to refer me to the visual perception disorder clinic at King's. I could only be referred to one. I may see Gordon Plant privately at some point. Link to comment Share on other sites More sharing options...
2muchmandy Posted March 15, 2012 Report Share Posted March 15, 2012 My local doctor didnt have a clue, i had to explain to her what she should do, told her the drugs she should offer me ( i didnt want them just now though ) shes refered me to a drug addiction specialist who " might be able to help " i feel so hopeless. plus i live in the north of scotland, londons hardly a 5 minute walk Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now