Ghormeh Sabzi Posted July 22, 2013 Report Share Posted July 22, 2013 Someone on the VS FB group experienced improvements in symptoms with this drug. I know there are a few other cases of it helping on the VS forum as well. Possible involvement of other meds as well (notably cinnarizine, similar to flunarizine). nearly 6 weeks on Cinnarizine, over two weeks B2 and magnesium, nearly 3 months Cyclo3Forte and today is my 5th day on Pizotifen. Don't know which one did it . I see VS only in the dark and very dim light. BEEP is much milder than it used to be. I don't have any headache or balance problems/unsteadiness. I feel good. Pizotifen is a 5-HT2A and 5-HT2C antagonist. Potentially useful for serotonin syndrome or MDMA overdose, according to Wiki. 2 Link to comment Share on other sites More sharing options...
Ghormeh Sabzi Posted July 22, 2013 Author Report Share Posted July 22, 2013 One user on this site tried this already without success. But as we know all too well, what does not work for one may work for another. http://hppdonline.com/index.php?/topic/888-70-95-reduction-of-symptoms-keppraflunarizine/?hl=pizotifen Link to comment Share on other sites More sharing options...
chrismo Posted July 22, 2013 Report Share Posted July 22, 2013 Interesting. Although as you indicate the other medications/supplements could have been responsible or contributed (quite a few people on the VS forum have reported improvements from magnesium). I'd certainly give it a go, though. Link to comment Share on other sites More sharing options...
Ghormeh Sabzi Posted July 30, 2013 Author Report Share Posted July 30, 2013 Latest update is that Pizotifen is not helping much after she came off cinnarizine, suggesting it was cinnarizine that was causing a reduction in symptoms. 1 Link to comment Share on other sites More sharing options...
StateOfRegret Posted August 6, 2013 Report Share Posted August 6, 2013 Thanks for keeping us updated - very interesting stuff :-) Link to comment Share on other sites More sharing options...
onedayillsailagain Posted August 7, 2013 Report Share Posted August 7, 2013 Hmm I just saw Cinnarizine is OTC when I went to the pharmacy.Though I read something about how piperazines can cause parkinsonian syndrome or something like that. Anyone tried this? Indications are for balance problems. I have these, which are quite annoying if you're trying to walk (I just feel like my body is all over the place making strange choppy movements). Link to comment Share on other sites More sharing options...
StateOfRegret Posted August 7, 2013 Report Share Posted August 7, 2013 I suffer greatly from dizziness and feelings of movement as well, so I'll look into it as well. Wasn't flunarizine known for causing parkinsonism? I'm on the phone (on the bus) so I can't be bothered to look it up right now. :-P Link to comment Share on other sites More sharing options...
onedayillsailagain Posted August 7, 2013 Report Share Posted August 7, 2013 Cinnarizine is also known to cause acute and chronic parkinsonism [30] due to its affinity for D2 receptors, which strongly counter-suggests its actual usefulness for improving neurohealth. Link to comment Share on other sites More sharing options...
Ghormeh Sabzi Posted August 7, 2013 Author Report Share Posted August 7, 2013 Yes, cinnarizine is very similar to flunarizine which can also case Parkinsonism. Probably best avoided, which is a shame! Link to comment Share on other sites More sharing options...
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