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jat

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  1. Hi  I have had hppd for 2 years and its been a dessent into hell.. It started very mild  then anti histamines celexa made it worse..then i tried for a year to make it better  clonapam was always my go to but was aware of dangers os treated with respect.. The next big spike was lions mane... gabapentin as working untill inclusion of lamotragine and then boom up another level.   im no longer ina space where i can just live with it.  intense snow visuals  flies buzing around  tactile bugs 247 makes my life unbearable..  gutted as two years ago i could barely see any snow let alone the rest... I decided as a last resort before ending things to move to a hot beach and see if the weather and see might rebalance my nervous system.. every spike i have had never came down  just pushed me up...

     

    Right now i started keppra 1000  take clonaspam every other day  and started risperadone for tactile ahllucinations (  i am aware of the risks but i have no choice)

     

    I have carbomazapine clpbazam topimerate and phenoarbital as back up. i am thinking antipeileptics are my best chance for relief...  

     

    Would appreciate any advice  i eat well relax  etc  but ignoring my visuals and ignoring the tactile sensations is not piossible..I need treatmentt I know some people used peptides.. Im basically trying to save my life...so any thoughts ?

    1. jat

      jat

      risperedone has bad effects in a lot of people so im holding off in that now.. stopping keppra and sticking to low dose kpin... i think i will try to heal naturally wit brain retrining and it feels like im stuck in some trauma loop so when i start to address that maybe i can see imrpovement  so good eating   healing immune system and getting out of limbic system loop.. that seems the best way to me.. most meds apart from kpin make this condition worse.. im just praying the spikes are temporary and not permenant

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