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jat

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  1. jat

    benzos

    you should go on the benzo groups and see what they think...if you take two weeks off and dont have any withdrawals that doesnt mean the benzos are not working i the backgrund continuosly...you need to go far longer to see if withdrawels kick in im guessing you have never gone longer than two weeks ..look up the kindling effect with regards to benzos...taking them on and off and on is like waves in a pond the more infrequent the use the bigger waves you create and ultimately the more damage you do to yourself in terms of neurotoxicity...by taking a lower dose at regular intervals the
  2. To cut to the chase I have made my hppd ultra severe after 2 years of messing around trying to fix it with medications. I wont go into details but every day it feels like my visual cortex will explode and tbh i am suicidal every day. I have used benzos off and on for 2 years when things got bad but now i have no option to take daily. Its either i off myself or ride the benzo train as far as it goes. Im in my 40s so if i could get a few years id be happy and if the hppd heals in the meantime then t will have been worth it. I dont believe in regimes for benzos 3 days on 4 days off etc it doe
  3. Did you go n benzos becasue of hppd ? has your hppd healed over time. was it severe. I have really severe hppd and think about suicide daily due to my visual cortex about to explode. I have been on and of benzos for two years but now thinking fck it and go on daily and ride that train as far as it goes.. if i could get 13 more years of life i would be happy be good to hear your thoughts
  4. can i ask wht your symtoms are have any meds worsened your symptoms.. are you planning on trying any ?
  5. hey man i think i do Hi I have had hppd for 2 years and its been a dessent into hell.. It started very mild then anti histamines celexa made it worse..then i tried for a year to make it better clonapam was always my go to but was aware of dangers os treated with respect.. The next big spike was lions mane... gabapentin as working untill inclusion of lamotragine and then boom up another level. im no longer ina space where i can just live with it. intense snow visuals flies buzing around tactile bugs 247 makes my life unbearable.. gutted as two years ago i could barely se
  6. Hi I have had hppd for 2 years and its been a dessent into hell.. It started very mild then anti histamines celexa made it worse..then i tried for a year to make it better clonapam was always my go to but was aware of dangers os treated with respect.. The next big spike was lions mane... gabapentin w as working untill inclusion of lamotragine and then boom up another level. im no longer ina space where i can just live with it. intense snow visuals flies buzing around tactile bugs 247 makes my life unbearable.. gutted as two years ago i could barely see any snow let alone the rest... I
  7. Hi  I have had hppd for 2 years and its been a dessent into hell.. It started very mild  then anti histamines celexa made it worse..then i tried for a year to make it better  clonapam was always my go to but was aware of dangers os treated with respect.. The next big spike was lions mane... gabapentin as working untill inclusion of lamotragine and then boom up another level.   im no longer ina space where i can just live with it.  intense snow visuals  flies buzing around  tactile bugs 247 makes my life unbearable..  gutted as two years ago i could barely see any snow let alone the rest... I decided as a last resort before ending things to move to a hot beach and see if the weather and see might rebalance my nervous system.. every spike i have had never came down  just pushed me up...

     

    Right now i started keppra 1000  take clonaspam every other day  and started risperadone for tactile ahllucinations (  i am aware of the risks but i have no choice)

     

    I have carbomazapine clpbazam topimerate and phenoarbital as back up. i am thinking antipeileptics are my best chance for relief...  

     

    Would appreciate any advice  i eat well relax  etc  but ignoring my visuals and ignoring the tactile sensations is not piossible..I need treatmentt I know some people used peptides.. Im basically trying to save my life...so any thoughts ?

    1. Onemorestep

      Onemorestep

      Okay first off you must only try single medications at once. Otherwise you don’t know what hurts or what helps. 
       

      trial the Keppra first. It may take some time to start working. 
       

      we don’t know what causes hppd and this stuff is very very complex. I don’t pretend to understand what it is, especially for the individual. Just off the bat, I assume there are over 120 different types of hppd so that’s why everyone has unique reactions to medications. Not sure what drugs caused yours either!

       

      You call something an “epileptic”, like Keppra, but what I see is a drug that has about 15 different actions on the brain and several immune system modifiers. Just remember a drug could work and you won’t even know why because the mechanism of action hasn’t been studied in that brain region etc. 

    2. jat

      jat

      risperedone has bad effects in a lot of people so im holding off in that now.. stopping keppra and sticking to low dose kpin... i think i will try to heal naturally wit brain retrining and it feels like im stuck in some trauma loop so when i start to address that maybe i can see imrpovement  so good eating   healing immune system and getting out of limbic system loop.. that seems the best way to me.. most meds apart from kpin make this condition worse.. im just praying the spikes are temporary and not permenant

  8. Hello Not sure if anyone is still monitoring ths but i feel like i am at the edge f the void right now..my formerly mild hppd was made ultra severe through antihsitamines and lamotragine ?gabapentin..my snow is ultra severe tgether with head pressure and tactile biting which makes life unearabale Lamotragigne, antihistamines,gabapentin made it worse Levedopa celexa no change Xanax and kpin help a it but not long term viable soln Sulpride i tried for a week no change Im now looking at maybe sertaline an antipshc or low dose naltrexone
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