Hello everyone,
I re-discovered the board in it's new form (re-registered under my former username) and perhaps this is fitting. Here are the bullet points:
- contracted HPPD in 2007. It was long before I knew it was HPPD and then I finally found the original board and learned everything there is to know. After a year and a half of living a life of horrible symptoms which you all no doubt are familiar with, I got on clonazapam and once I got to the right dosage, one might say my HPPD was something that had virtually disappeared.
My initial symptoms:
- EXTREME muscle tension, dizziness, head pressure, VS, floaters, mild after imaging. Most of all it was the feeling "out of it", the pain from the muscular symptoms and the loss of balance which is in a way one big symptom. It was very severe.
I never took a single drug again. This meant strict self-restraint as most of my friends still dropped and smoked and of course no one ever believed me about what I was going through. I essentially lost a good 2 years and at a crucial point in my life but once I stabilized my symptoms with klon, I was able to resume life. BTW, my hppd was due to (speculation but pretty obvious given it was a process of exclusion) MDMA + weed and not even in high or frequent doses. It was one night that acutely affected me.
Anyway, I was going to come on the board last week to announce that I had just completed my first titration off of clonazepam because I felt I was ready to get off. I had come down from 4mg/day to 3.5 in 10 days with absolutely no hiccups. Then the weekend hit, my friends had a party, and you're not going to believe this....someone spiked me (either unaware of the seriousness of my condition or just didn't believe me) with a pure cap dissolved in a drink. That's 4 years of never even coming close to a joint, going to multiple music festivals and never dosing, etc. and then all of a sudden, removed from your control, being bombarded with the one substance you've been avoiding like the plague.
Even though it had been so long, I hadn't forgotten what it felt like and I was able to tell it was a clean pill and I obviously didn't smoke or do anything else. It's been 4 days and although my visuals are pretty much the same (moreso because I think I'm just used to them), my dizziness, loss of balance, tunnel vision, head pressure has returned.
I am trying to keep myself grounded and not freak out. These are the things I'm optimistically telling myself:
- they are common side effects of MDMA anyway and in many people (some who have temporary HPPD, which I realize is an oxymoron within the 3 month limit) these symptoms manifest, but subside.
- the next few weeks are going to be rough, but over time they will abate, mostly because they are not as intense (perhaps 50%) of what I felt the first time around
- the clonazapam may play a role in helping the symptoms go away faster than they would otherwise, even though it's a basal level of the medication
Of course, the possibility exists that I have dug a huge hole for myself (well, not by my own accord, rather been plunged into a deep hole) and this is going to be a long recovery process complicated by the fact that I'm already on 3.5mg of klon.
I'm sure many of you will have differing opinions and hopefully some personal insight into similar situations, and I'd like to here as many as possible. I might post this on hppd.info just because at the moment, it seems people haven't really transitioned, but I appreciate all the help I can get.
RR