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Posted

Many posts make it to 100+ views with little or no reply. Would most of these users be lurkers that have hppd? Do we have stats on unique visits? Im curious why people would refrain from speaking out.

Even just talking about it is therapeutic in a way imo. I mean if you're visiting the site and reading the posts, join the community and share experiences and get some support. :) 

Posted

Potentially quite a few people stumble across stuff we've written when searching for all sorts of things neurological. I quite often search for things without using the term HPPD and get brought back to this site.

Posted

i imagine alot of people are still in the "i just dont know how to talk about these things wrong with me" phase too. Had this site been around 7-8 years ago I probably still wouldnt have been able to comment about my hppd at the time. it was only in the past few years I became able to talk about it, even with friends who were there with me on the night things all went wrong for me.

 

 

edit:: and synth... part of the reason for that is if you use google it will always bring up relevancy ratings of websites you've previously visited when searching similar sites. especially if you've visited frequently. Thats why sometimes when you google something after just having recently viewed something else, you get wierdly related results making it feel like the world is strangely too connected. 

 

well that and good old fashion paranoia :D

  • 1 year later...
Posted

I don't know I stumbled upon the site and just lurked for a few days then decided to join. I see that a lot of times there will be like 10+ guests and under 5 members online. that's so annoying because this forum is so dead. more people need to join so it can be more lively!

  • 9 years later...
Posted (edited)

I agree with what everyone is saying 100%  

Tho common guys and girls...do your best not to be a "lurker".

It does take courage to speak up if / when you maybe experiencing symptoms etc 

Even if you don't have hppd feel free to drop on in and say hi 👋🏼🤭

Edited by Spartan
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