mikemeas

On 7/22/2013 at 5:28 AM, buccosfan2004 said:

Thanks! 

 

I suspect I'm one of the one that just can't go near herbs. But that depresses the hell out of me. I mean, I've had this for about 10 years now -- and I STILL miss the herb every single day. It's like, shit, if I could just get that back -- I'd be damn near as good as new.

 

Appreciate your thoughts on the daily knowledge -- it's tough. I try to read about mindfulness, insight into oneself, all that -- sometimes it gets to be too much and I remember that too much insight into this can sort of freak me out -- but for the most part it helps.

 

The other thing I remind myself is that goddamn -- I have been through hell and back. And no one that I know - NO ONE - knows it. No one one understands that white-knuckle pain of thinking you're losing your mind. That you had so much promise, and one dumb mistake took it all -- not just your freedom or something, but your fucking sanity. It's crazy.

 

But still -- every day is new. Everyday I work to get myself back to whole.

this is to real lol

MCAS having all the same triggers as HPPD and some suspect it being linked. Maybe find success in it? 

Likely will be a histamine reaction or mcas. At least thats it for me. 

Try low histamine diet (maybe also avoid non food triggers if histamine really is your problem). Check the sighi list. 

For sure ask a doctor. 

Been struggeling a lot lately with it. I guess stress from HPPD, bad consumption (sugar, unhealthy) in the past have lead me to now terrible symptoms and gut pain. Gonna check by a doc the next few days.

LG 

Also there are people who have "HPPD" like symptoms normally 

"I'm 17 I have visual snow, probably my whole life I thought it was normal until I noticed that everyone thought I was crazy for saying I saw weird dots on my vision, mine is worse with anxiety! God bless everyone and hope we find a cure for this"

The good thing is, humans normally dont take long to get used to things. I am like 4-5 years in and I dont even look at it like that no more. I am so used to it, I dont even remember how it was before. I rarely think about it. 

Back in the days, when I wanted my normal vision back for at least some seconds, I used to watch this video, and it helped for 30 seconds or so

How old you is? 

What you think? I passed the vision test, do you guys drive? 

Hey, 

anyone of you guys also got problems with diabetes or neuropathy whilst having hppd. I wasnt aware of it, till I recently payed more attention to my eating habits and the effects it has on me. Since high blood sugar can damage nervs, also in the brain, I could imagine it being a negativ indicator for getting HPPD. This is just theory. 

br

hindy

@Hall89 maybe you like to participate in some surveys, you can find them here in the forum, since I think it is very important people get to know about this. Especially with the upcoming legalization of cannabis in many countries. In germany we are also planning that, people dont seem to believe the obvios risks and already official politicans are talking nonsense, cannabis as a healing or something (there is no advanced studies on that, only on chronic pain, which doesnt leave out the side effects of course). 

I think with HPPD a lot of people seem to hide, I think you should accept yourself having HPPD and go on, that also means, giving others advice on the negative effects of drugs. Maybe some users get prevented from developing HPPD if they know beforehand that that could happen. 

Yes. * I dont know.
 

But I can only speak for myself and it can have different reasons for sure. I do not think HPPD supports not having the side effects, lets say it like that xd

but I am a pretty sensitive person anyways. 

1 minute ago, brake said:

Dude a small percentage get serious side effects from Gabapentin. Also a small percentage get HPPD and visual snow, I don't want to try my luck again. With Gabapentin and Buspirone, I had trouble breathing, hives and rashes. What's interesting to me is that although benzos and anti-seizure medications do help a lot, I feel like they aren't specifically targeted for HPPD and/or visual snow. I am that 1%!!!! lol

I think with HPPD the percentage for getting side effects goes up by a lot.

But insomnia also comes from a different illness maybe? Maybe you have food allergies or consume stuff that has a bad impact on your body. Maybe you do not eat that well, do not move enough. Avoiding sugar could be helpful. Avoiding cigarettes and caffeine, also found in dark chocolate. Consuming stuff with bad impact can also be porn or other internet stuff. Being in front of a computer all day really has a negative impact. Staying active will help life quality to stay up.

Most likely you needed a change in life. Sadly the drug propaganda is so far now, that you were convinced you could find it in drugs. 

That is life, it is tough.

A lot of these problems can be solved. Insomnia and pain could be psychosomatic symptoms. Most likely I think people who develop HPPD have mental problems before that. So please do not project every problem you have on the visual disturbances and perception changes coming from HPPD. It worsens it by a lot, I do not want to deny you that.

How much cannabis did you consume, you re 33 years old right? So that is a pretty high age, good that you state that here. 
 

Are you sure, that chronic pain and insomnia were the only things you had before HPPD? You do not have to state that here. But it is very important to be honest with oneself. 
 

I can imagine living in that circumstances now is pretty frustrating, but I can assure you, in 1-2 years, life will look different. You will get used to your perception. But you can not force it to be better, you can not force it to go away.

Since lamotrigine is making suicidal thoughts in a lot of cases and you are having some, I would strongly suggest you to cut that.

Can you give close information, on how this happened? How was one weed trip enough for you  to loose all that? And why do you think you cant go to a job and live in a apartement or something? Like okay, it is not nice having anxiety. But not trying it, why dont you try it? Are you scared how others will treat you? 
 

In the end, if you look around, you see that everyone has his package to carry, we with HPPD may might have some more package, but almost everyone has a somehow „hard“ life. Alone that you have the ability to go to a doctor or live with your parents is something not many could do. So please dont think, that everyone else lives a normal life and you re the only one that has a bad one. It is not like that.

Can you please tell your story? As clear as possible. 

especially because of the from time to time rather young audience

I think I already stated at some time before, that I have a problem with the „if HPPD doesnt go away, I cant be happy“ thought. HPPD is a visual symptom, it makes no sense that you cant deal with anxiety and depression seperated. And these are the feelings that matter. I do not say that HPPD doesnt make it harder somehow, but not impossible. 
 

but you re right, he can state whatever he wants, but even in that situation you should be aware of the words and the influence they might have on others

have a nice day 

You should call a psychiatrist and ask him what to do. But this is not the right place to say that you rather dont live than having HPPD. We all have it okay? And we are all living with it. Seeing you say stuff like this is not motivational and you could just not say it. I have HPPD and it is okay. 

I do not see how it safed your life. HPPD is not life threatining. I see lamotrigine and benzos as a drug. I would not recommend it on a regular basis. I would suggest having some medicaments in the back pocket, for real „bad times“. 

I would stop all drugs. Lamotrigine made me suicidal, so I would suggest not taking it. Anxiety is pretty normal nowadays. Most likely it is your own fault taking drugs, so HPPD is the warning that your brain can not handle them. 

....---------------------------------------------

Wie lange verbleiben Drogen im Körper? - Teil 7 - YouTube

This is basically an austrian national site where they talk about drugs and how long they stay in the body after usage. They say the drug can deposit in the fat tissue and since fat is burned when stressed or something the deposited drug can get back to the blood flow and yes, they say the drug can impact the perception and stuff. I always believed the drugs just caused some irreversible damage in the "perception"-areas and it just be like that for now on, but this is a new information I didnt know before. No cure but I found it interesting to share. So maybe my HPPD is just because the acid or THC (which needs years to extinct from the body) is still in my body. If thats the case, it just makes it even more important to stay away from drugs I think. 

sdfsdfssdf

On 12/3/2014 at 2:33 AM, DoneDoof said:

My grandma is in The hospital, I'm very stressed about it. I just want a cigarette, does smoking really bad for hppd will it send me back from the progress I have made.

I have the same thought. "Will it send me back from the progress I have made"... 

There is no final answer to this. Only god knows. Living in fear of drugs isnt the right thing either I think doe .. You dont really change if you smoke so you can also work on yourself while on nicotine 

But yeah smoking is bad just like it is for people without HPPD

I am still a lil paranoid about it