danjoking

https://visualsnowman.com/research-updates-25-06-2018/

I see streaks of blue and green and yellow a lot... day and night, but more so at night. 

who have it ?

Hi friends, I want to give an experience to a supplement , I heard that can help.

i want to hear what is your opinion https://www.viteyes.com/mobile/viteyesopticnervesupport-p-83.html

3 minutes ago, dayum_son said:

Have you tried any of the usual meds ? Lamictal, Keppra etc ?

I thought about them but its substance and i read about the side effects so , i can mange with my correct condition , anyway only at night it worse

4 minutes ago, dayum_son said:

Damn, that's a long time :/

Yes i know , and its not getting better the visuals, the parnoia i had in the beginning went away , i did mri 3 weeks ago I’m still waiting for my answer, maybe it wil help to see if something happened there

7 minutes ago, dayum_son said:

@danjoking are you still using weed ?

No bro i have been cleaned for 1 year

2 hours ago, dasitmane said:

For now sedatives work just fine. Anything thats relaxing to the nervous system. GABA agonists of course, like benzos, or natural ones if you can find any. Lemon balm always helped my anxiety and I pretty much carry it with me everywhere I go. I've noticed that cowslip, which is good for sleeping, if I drink it at night the next day my anxiety is not so bad, but cowslip is hard to find so its not the best choice really. 

As for visuals I cant really comment because mine eventually went away and so did the DR/DP. Unless I drink A LOT of coffee then the DR/DP comes back slightly.

I'm working on some other things but nothing that I will post on here as of yet. If I think of anything else I'll let you know.

Everybody machine works different, mine the most disturbing thing is the visual, and emotion numbness felling(i cant feel like normal person) i have not anxiety, like the old times , I miss this shit it feel me more alive , nowadays it’s semms my visual at night getting worst overtime(trailing motion only works with led , lights especially cars ), and i only had used weed and alcohol, thats a shit story for me , eventually I’m still in process im on my 4 month cleaner, i hope i will have successfully recovery both visual and emotion , like the old me . 

34 minutes ago, TheMythos said:

My symptoms tend to come and go based on stress (or with migraines). I used to get snow but now it's gone or I filter it out. My dad sees black static on the wall too and floaters but he doesn't have hppd and it never bothered him. I used to have after images but those went too.

thats pretty good , so what symptomes you have now? , and how long have you been clean

13 hours ago, dayum_son said:

Nothing has really changed for now, however I can tell 100% that the visuals are worse when not taking it. Very sharp after-images, more ghosting and more VS. 

So I will keep taking it for the next few months anyway. If nothing changes, I will go to a neurologist.

Hey bro , is it still working for the weaving phone?

dayum_son how things going up to you , still see changes in the visual?

5 hours ago, dasitmane said:

My initial thought, is thats just some guys blog. I'm not saying that we should increase sensitivity, honestly I dont think 5ht2a receptors should be messed with at all. But if you wanted to counter balance serotonin neuronal loss specifically linked to 5ht2a receptors you would want to mildly increase sensitivity to attempt to make up for it, theoretically. I do not however think this would accomplish much.

Although.... Ashwaganda might actually be a good choice for anti anxiety. I have no idea if it would work though.

Also I believe that antipsychotic drugs tend towards antagonist of 5ht2a. But this is different than increasing or decreasing receptors. 

Also I think that Dr. Abraham's thoughts on interneuronal loss(I think he just states they're modified or something though) associated with GABA production is accurate as well. So increasing GABA mildly would be a good idea as well.

According to what you say , what can help us by your opinion to gain the best by herbs supplements 

9 hours ago, dasitmane said:

I could be wrong but I think you would want increased sensitivity. In the case that I make, which could eventually turn out to be wrong but I’m sticking with it from here on out, the Axons simply are just gone, so I honestly don’t see modulating 5ht2a receptors helping very much either way. You could try it but if the axons aren’t there it will do nothing lol. 

Basically you’ll need neurogenesis, and even that may have limitations.

Ok so i just read a few things about it when you increased sensitivity you should look here.

https://area1255.blogspot.co.il/2016/09/herbssupplements-to-increase-5-ht2a.html?m=1

1 hour ago, dasitmane said:

I can add too that in the case of Risperodone, a 5ht2a inverse agonist, and other anti convulsion medications which are 5ht2a antagonists there is a correlation with palinopsia. Palinopsia being obviously common with HPPD, the most probable reason being, that the 5ht2a specific neurons that underwent glutamate excitotoxic apoptosis, are now gone, and therein laying a lack of 5ht2a input, which would be similar to that of these drugs, being inverse agonists and antagonists. So this gives even more credence that HPPD is caused by 5ht2a induced glutamate excitotoxic apoptosis.

So in that case maybe Chromium GTF can help

https://www.ncbi.nlm.nih.gov/m/pubmed/11823896/

“Chromium treatment decreases the sensitivity of 5-HT2A receptors”

2 hours ago, dayum_son said:

Brand is Newton-Everett.

And idk if it is ubiquinone or ubiquinol.

I take it with breakfast. That's fine I guess ?

That’s quite good , if you want to read more about coq10 and get alot of information 

https://articles.mercola.com/vitamins-supplements/coq10.aspx

Or if you want to hear about visual snow syndrome(in my opinion it the same way of hppd) discussion with dr weatherall expert vs

https://www.tapatalk.com/groups/thosewithvisualsnow/a-discussion-with-dr-weatherall-the-leading-visual-t7745.html

pepole report “Some people have noticed a massive improvement in a few weeks from just taking one of these alone. Others have reduced their static to manageable levels. Some people do not notice a big difference, but it is enough to justify continuing. Others may not have any reduction in symptoms.“ 

Most of you will be wondering why we experience other neurological activity, such as tinnitus and hyperacusis. In the same way, this condition affects other parts of our brain. The primary auditory cortex (Brodmann area 41 and 42), including the geniculate nuclei, are probably affected as well. The innate noise-filtering part of the brain lacks homeostasis and effectively you get 'visual snow of the ears'. Many common symptoms can be explained in this way. 

Good luck , i hope it will reduce our hppd or better it will go away

40 minutes ago, dayum_son said:

Gonna use it for as long as it doesn't make symptoms worse. Started the 400mg version at the beginning of this month. Started 50mg version on April 20.

I don't know if I should keep on taking it in the morning when I wake up or before going to sleep.

And no, didn't notice any difference in my behaviour or emotions.

You need to take it with lunch , whice brand you use 

and if it unbiqual

27 minutes ago, dayum_son said:

I just started the "treatment" and nothing has really changed. EXCEPT for one thing.

When I would wave my phone in front of me in the dark, I would get tracers and ghosting tracers.

Well, the ghosting stops when taking the CoQ10. I tried one day to not take the supplement, and the ghosting came back.

Of course, it went away the next day when I took it again.

Putting a lot of faith in this product. Let's hope it will make things for the better !

Thats sounds good ! Its need to take time and a lot of patience, pepole reports changes between 3-4 months so its good update !

good luck bro

how much time you use it , and how much mg ?

expect the visual tracers , did you notice some mood change , emotions/fellings?

In my opinion how i see it , hppd is a strange way to show you that you had bad puzzle in your life it’s reflected by dr/dp “once you accept it , it can go away its take time to heal your brain/mind/buddy”

7 hours ago, dayum_son said:

Yes I will also start for the first three months at 100mg a day and we'll see from there.

I don't want to start taking important amounts of substances, don't know how ze brein will react.

Yes you right but it’s neutral substances so its better then medical deugs 

5 hours ago, thelostreceptor said:

Hey, that's pretty interesting, however the post stated that you need to take 400mg Ubiquinol every day, but that seems really expensive?

Yes but evreyone react to medication diffrent u know my voy however in my condition i will start low the dose more

So i just bought CoQ10 ubiquinol 60mg + magnesium 520mg + aronia berries

Will update you in this thread 

it takes at least 3 months of therapy to see the results of taking supplements every day

https://treato.com/Coenzyme+Q10,After+Images/?a=s 

you can read here reviews of this supplements alot of positive reports 

CoQ10 it’s related to the opteic nerve so i think its good to try

Hello guys , so i have been suffering for 2 months and half from hppd caussed by alcohol , i smoked weed 8 month ago had a bad trip and stopped using it i was not having hppd after the bad trip,so it’s maybe related to the cause of alcohol i have been sober until now,i don’t see any improvement, it’s getting worse at night especially.  i want to hear your opinion about those 2 supplements  CoQ10 and vitamin D , some pepole reportd good improvement with this 2 supplements as you can see here

1.what your thoughts about it

2.if you try it especially CoQ10 one

https://www.tapatalk.com/groups/thosewithvisualsnow/a-discussion-with-dr-weatherall-the-leading-visual-t7745.html

” I had after images, halos around objects, trailers, bolts of lightning, and of course, VS. I still had a headace after my initial onset and had to go to a doctor to get meds to relieve the headache. After I started taking 400 mgs of CoQ10 for some time, I suddenly noticed that the after images, halos around objects, trailers, bolts of lightning had ALL DISAPPEARED”

1 hour ago, TheMythos said:

First of all, go fuck yourself.

Second of all, people get cured on here all the time, whether it's two weeks, a month, 3, 6, or 2 years. You think that they're all of a sudden experiencing neurogenesis that fast? Are you fuckin retarded?

I have recovered tremendously, and it wasn't because I was sitting here on this forum or Google trying to figure out what receptor does what, or what could have been damaged. It's because I accepted it and started living life again. If half of this illness is neurological, the other is most certainly psychological and on the obsessive scale.

Dr. Abraham says that it's 50-50 for people to recover. Do you know what that means? It means he has no idea whatsoever. It means maybe you'll recover and maybe you won't. His COMT test only improved a number of people and we don't know why or why it improved the others. We don't know how long they improved for or if they were completely cured.

People get hppd from every substance out there including weed. Why on earth would neuronal loss occur with weed and LSD in the significant amounts you're talking about? Are they the same neurons? Serotonergic? Dopaminergic? In the same part of the brain? Localized? Spread out?

Why do the symptoms of severe anxiety, VS syndrome, and HPPD all relate? Do you know anything about conversion disorder where people lose the use of their legs or go blind due to trauma and there's nothing physically wrong with them, and then when they get treatment they can see and walk again?

You're not a neuroscientist. You're the blind leading the blind. You're just another armchair neuroscientist hppder grasping at straws. What's it going to be next week? An autoimmune disorder? Lyme? Something else?

No one knows what's causing it. I dont. I'll admit that. But neither do you. Excitotoxicity and neuronal loss is just another thing you can latch on to to assure yourself you know what it is when you really don't. In fact you're so sure of it that a page ago you posted a study claiming well folks there's no hope.

In the end you don't know shit. None of these mRIs are going to tell you anything because they're all going to be random. You'll be chasing imaginary diseases and illnesses for the next decade while the rest of us move on with our lives.

hey guys, please be Be polite to each other you dont know the power of words,

right now in my understanding there isnt cure , so all we have is just theories .

please The new people who are going to come here will visit the forum Please keep your manners and place to help each other and raise up and not trample each other

Thank you

And something positive, I've been with this disease for 2 months now . and I've managed not to pay attention to it.

I can testify to myself that right now I do not care about it 

about recovery or cure of disappearance symptoms Only time can tell. our brain is a wonderful machine.  

59 minutes ago, dasitmane said:

Its a possibility, brain lesions on MRIs are simply... neuronal or axon damage/loss, which if its the case here is most likely to do with excitotoxicity. There supposedly is never anything that shows up on HPPD MRIs, but honestly a few members here have reported microlesions. 

So it’s permanent there is nothing  to do ?

On 6.4.2017 at 6:19 AM, dasitmane said:

I had an MRI done and recall that nothing showed up other than "possible microlesions". I probably should go back and look at it myself, maybe those microlesions were potential for neuronal loss.

 

Ghormeh Sabzi gave a very good response. 

Could it be brain lesions that cause us this vision https://www.medicinenet.com/brain_lesions_lesions_on_the_brain/article.htm#

https://www.webmd.com/brain/brain-lesions-causes-symptoms-treatments