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TheHazz

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Posts posted by TheHazz

  1. Last night I had about 15mg of diazepam and two beers, which was my first time drinking since new years. Today i've felt a bit lethargic and sort of out of it a bit (is the best way to describe it). Does this happen to anyone else? I wish I could stop drinking entirely but in N.Ireland it's just about the only way to be social as there's so little to do...

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  2. After seeing posts on Reddit about how people have had their HPPD completely cured from using lion's mane, I was wonder what experience you have had with it? I took one last night and feel a little sick in my stomach and slight increase dr but I think it's more from my mind over thinking. I plan on building my way up to 4 caps per day as recommended.

     

    People have said that their HPPD went away within a month something which I'm highly skeptical about, but it would be a relief to see an improvement regardless of how big it is. 

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  3.  

    Wondered about trying CBT but wasn't sure what it would be like, do you find much benefit from any of it?

     

    I am currently studying at university and this makes it hell I must say, would love a solution for the anxiety, dp/dr side and I could deal with the visual perception side of it!

    I tried valium more recently in the last couple of months, just 5mg a day and while it helps with the anxiety side I wouldn't want to use it longer term as the memory loss, and of course reduction in effect over time and have to wean yourself off it don't appeal to me at all.

     

     

    Didn't see that much benefit from the CBT from the NHS tbh it seemed lazy and rushed even though I got on well with the occupational nurse.

    Yeah I try to limit my benzo use i've had mini withdrawals and slowly reduced it, I made the mistake of saying fuck it and taking a whole load of them and drinking which made it a lot worse. I've downloaded an app called Headspace and do meditation and have seen an improvement in anxiety, brain fog, dp/dr so fat nothing that is making me scream for joy but slow improvements none the less that will improve after all i've only been doing it 3 days.

     

    Yeah good to see someone else from NI on here too, I don't think people from across the sea in the UK would be able to understand how hard it is for us to have someone listen to use with how backward and conservative we are about pretty much everything here.

     

  4. Did you get any relief from them treatments? Yeah I think i'll have to push harder I was cose to getting lamictal before but my pysch moved on unfortunately. Now I just want the anxiety and dp/dr to be treated i'm not too worried about the visuals aslong as they don't get worse I can cope with them, which is why i'm considering trying to seroquel but won't rush it despite the fact i'm sitting looking at it right now.

  5. So after going to the Doctor this time last year on the onset of my HPPD, I have found that the NHS is absolutely useless and ignorant within their treatment of this condition. Over the course of the year I have practically achieved nothing with them EEG came back fine, as well as eye tests. Countless set backs and cancellations of having an MRI scan. (Even though I never expected any results from these they were all done so slowly?

     

    As for medications all I have been offered were 5 diazepam pills and Seroquel which I refused at the time. Despite showing countless pieces of evidence of the benefits of various anti-convulsants.

     

    Today I was "discharged" as I was considered as not having a mental illness which angered me as my anxiety and depersonalization quite clearly is. The excuse I was given was pathetic "we've come to the conclusion this isn't a mental illness but something has changed in your brain which made you like this". In regards to the latter talk about stating the fucking obvious I said that from the start when I had to fight my point that i wasn't schizo.

     

    So i'm now back "under the care of my gp" and was given a seroquel trial as a parting gift, which I might just give a go eventually.

     

    Although the NHS is free sometimes I get jealous that people from America have a much larger pot to pick from I'm highly considering going private to try and get Lamictal.

     

    Living in as small a country as Northern Ireland it's highly unlikely i'll ever find anyone who's ever dealt with this problem before.

     

    This post is more of a rant really ha but if anyone has any shit with the NHS let me know I'd be interested in hearing.

     

    The point is a year on and they've made no progress apart from some CBT which is largely useless to be frank.

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  6. I also have ADHD and I noticed I was a bit more settled and less hyperactive and was able to concentrate a bit better also. I never tried it for sleep yet because I just wanted to avoid a panic attack but as I said it did work incredibly well for 8 hours or so making me feel normal per say. Would still love to know why it give me such a bad panic attack, I've been to afraid to take it since haha

  7. Hey everyone, I just wanted a few questions answered regarding l-theanine, I tried this supplement out and it made me feel great for about 8 hours I was incredibly calm without the drowsiness from benzos, and my head also felt clear like I was functioning normally again, then all of a sudden I suffered a massive panic attack and became severely depersonalized, I would love to know if anyone could possibly explain as to why this would have happened I'm unsure to write it off as a one off or whether there is a specific reason for it. I would love an answer as I would love to perhaps use it more regularly when I start a new job soon and would love something to make me calmer instead of benzos.

     

    Also this may sound stupid but I exercise a lot weights, boxing, running and walking I make sure I do at least one of them everyday. I was wondering if anyone has seen a spike in visuals if they don't exercise at all for one day as I noticed my vs increased once when I didn't do anything one lazy sunday and the purple colour stuck in my vision seemed to become more visible but did subside again. 

     

    I have had HPPD since last November incase you're wondering and have seen very small improvements but nothing that makes me jump for joy.

  8. I have managed to get myself a hold of Lamictal (50mg) what should I expect at the start and will it effect any visuals negatively? Also what is the difference between it and Keppra? Also why is Keppra considered the better treatment for HPPD? I was thinking of trying to convince my pysch to offer it to me... instead of Lamictal which I was able to luckily able to obtain anyway.... should I wait out and try and get Keppra instead?

  9. Hi! I've had multiple EEG's done, by demand of the psych clinic that labeled me histrionic and lied about knowing about hppd. 

     

    I also had to do an MRI scan.

     

    Let's get right to the point:

     

    The EEG scan doesn't show up ANYTHING. Everything showed up as normal with me. It's a waste of time. I did a QEEG and this did show many abnormalities though.

     

    They never saw this as relevant at all. 

     

    You have to be careful with doctors when you have hppd. Very careful.

     

    Especially if your neuro sends you to a psychiatrist!!! If he does, contact me!

     

    I've had some very nasty experiences with them.

     

    Be warned.

     

    It was my pysch who recommended me to get the eeg done. Im not too worried with her as she seems reasonable in her attitude and is aware this is an after effect of the drug and not something like schizophrenia

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  10. Can you list your physical symptoms?  This might narrow down the class of med you would respond well to.

     

    EEGs are usually 'normal' for HPPDers.  But it is good to have this test done.  qEEGs are EEGs with more mathamatical analysis applied.  These show differences associated with HPPD.  Not sure if they can take the EEG data and send it to be 'crunched' or if you have to do it as its own proceedure ... but it is worth asking.

     

    My physical symptoms are anxiety, brain fog, DP/DR although the last two aren't as bad as others have spoke of on here.

  11. Hey everyone I've followed this site for a long time and finally decided to make an account to interact with everyone. I've had HPPD since November with very slow improvements (physical symptoms more annoying than visual).

     

    Basically I have an EEG test next week and was wondering what should I expect from it in terms of results and impact on HPPD at the time?

     

    I've also been trying to get Clonazepam from my Pysch who seems willing to prescribe that depending on the results from the Neuro after seeing an absract, However recently I think It may be best to try and ask for Keppra or Lamitcal? Has anyone had any positive results from any of these medications?

     

    Also I previously tried Citalopram wich made visual and physical symptoms worse, Diazepam has helped with anxiety. Was recently offered low dose Anti-Pyscotics but refused them.

     

    Any help or information to help me with this would be greatly appreciated.

    • Upvote 3
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