ships

hi all,

i suffer from acquired alternating nystagmus - my eyes jerks from left to right - this is from childhood am in my early 30's

for the last year or so i have tried initially gabapentin to max strength , then baclofen ( given by moorfield eye hospital) and recently  tried memantine prescribed by  prof from University Leicester Hospital  - none of those tablets seems to have had any noticeable effect on my eyes - they still moved and jerked at same speed -

i am hoping to prof at ULH soon for any other alternative  apart from surgery - was already indicated memantine and baclofen were the most prefered tablets

i wish to avoid surgery due to side effects double vision, loss of sight ( though i been told very rare) eyes not being aligned right etc

though i can see its like i am disabled well it is a disability, i avoid contact with people for obvious reasons as my eyes at that time goes bonkers increases the speed more than normal, has big affect on my social life ... i feel like crying at times and i do.....

is there anything else i can try any other medicine - please can anyone suggest anything ....

thanks