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ships

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  1. hi all, i suffer from acquired alternating nystagmus - my eyes jerks from left to right - this is from childhood am in my early 30's for the last year or so i have tried initially gabapentin to max strength , then baclofen ( given by moorfield eye hospital) and recently tried memantine prescribed by prof from University Leicester Hospital - none of those tablets seems to have had any noticeable effect on my eyes - they still moved and jerked at same speed - i am hoping to prof at ULH soon for any other alternative apart from surgery - was already indicated memantine and baclofen were the most prefered tablets i wish to avoid surgery due to side effects double vision, loss of sight ( though i been told very rare) eyes not being aligned right etc though i can see its like i am disabled well it is a disability, i avoid contact with people for obvious reasons as my eyes at that time goes bonkers increases the speed more than normal, has big affect on my social life ... i feel like crying at times and i do..... is there anything else i can try any other medicine - please can anyone suggest anything .... thanks
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