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Ming Xiao

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Posts posted by Ming Xiao

  1. Hi,

    I took 16 years ago few substances.

    I don't remember when it starter(visual symptoms) I assume nearly after. I do have visual snow, muscle tensions, social anxiety but none of the visual symptoms are worrying me.

    Thank you for your post.

     

    Kind Regards

  2. Hi,

    I took drugs fifteen years ago.

    My current diagnose is personality disorder and general organic brain damage(EEG shows some anomalies)

    I take pills such as: 

    Amisan 400 mg(antipsychotic drug)

    Duloxetine 120 mg

    Absenor 1500 mg

    Pregabaline 150mg

     

    I lost faith in this treatment, although it lets me be less disable. I visited a doc few days ago I suggested that pills for HPPD might be more effective in my case. The thing is that I see afterimages very rarely, although I have wide pupils and environment, light seem to be weird for me, I do not know how to describe it. I go to hospital tomorrow, I can not even handle my job.

    I would like to show you my diagnoses and lab documens in the nearest future.

    Hopefully I will be able to translate it.

    Can you guys help me with some advices this way?

  3. Hi,

    I've lived for many years with HPPD although I have personality disorder as well.

    Things became worse  recently in terms of anxiety, visuals and muscle tensions.

    I would like to convince my current psychiatrist(I am moving from place to place) that I suffer from HPPD and provide him trustworthy documentation

    So my question is do you guys have some documents which I can show to my doc, can  you provide it here?

     

    Best Regards

  4. 2 hours ago, Jay1 said:

    Don;t let doctors dictate your condition... If you think you have hppd, keep changing doctors until you find one that believe you and is willing to learn about it. Doctors will often say you are psycotic or depressed, it is easier for them to understand and "treat" (even if it makes you worse)

    First of all  thank you for the answer. I will consider changing doctor but since it is my doc from 2016 I would like to prove him somehow that HPPD exists and it's treated by other meds than anti psychotic(he thinks it's the same condition which he learned in medical school). Are there solid proofs of exisiting HPPD?

    Are there any studies of the treatment?

    I would like to be extremely prepared for the next visit to avoid treatment for conditions which are not related to me.

     

  5. Hi,

    I've been on this forums few years ago and some users may still remember me.

    I would like to start from my symptoms which are not exactly the same like the other users.

    I'm depressed, anxious especially in social situations,also I have diagnosed personality disorder from many years. I was treated for this condition for very long time, since now and never felt any relief.

    Last time when I visited my doctor I told him that I no longer believe in that my personality is my only problem. He's about to prescribe me clonozopinum and he states that this have to work, although only klonopin was giving me some relief in my entire life. The good news is that he is going to check what HPPD is.

    During writing this post  I'm experiencing pain of my muscles of my jaw which shakes 24h per day as if I was coming out of from cold water

    I really struggle to write something sensible, especially not in my native language. I have problems with understanding, focus, reading and have this feeling that I could beat all these weird things which are ruining my life if I could focus, concentrate.

    but to be honest I'm not sure of anything

     

    I'm not sure if description of my last trip would be useful, as for now I would like to avoid it.

    Tell me guys what do you think about this because I don't feel as good to be a doctor for myself.

    What pills should I try at the beginning. I doubt that he would prescribe me klonopin since I was addicted to it.

    Also my EEG shows some unwanted anomalies, I was treated for epilepsy in some part of my life which I don't have.

    EDIT: I'm taking amisulpryd and finlepsin. The only thing that is taking me out from these feelings for an hour or more is gym. Every time I exercise I feel relief and I recover my mind. I experience afterimages

    Kind Regards

  6. Hi guys,

    Some of you would agree for brain surgery. I respect that, I know what hell is.

    I'm desperate too. I have defect of the spine, I feel uncomfortable in my body, it has big impact on my mental state and I started seriously thinking about the surgery. The thing is it will be hard to find a doc who will perform a surgery of my spine,

    In what country should I start seeking. There must be a place where everything is possible, any suggestions?

    I'm certain that is my only chance to recovery

    • Upvote 8
  7. I have been on lamotrigine for 6 months, high dosages had no affect on me.

    I would like to try Keppra but it is too expensive. 

    Maybe some of you have a source where can I buy it cheaper.

    Eventually since I have anomalies in EEG I could convince a psychiatrist to prescribe me Keppra. I mean that I could trick a doc that I am an epileptic and get keppra refunded.

    • Upvote 1
  8. I think more clearly on benzo,  I can not focus on anything, according to psychological test I do not have insight on my emotions(it was the time when  I could not find out what is my disease)

    I am taking less benzo than my doc recommended me, and I mix klonopin with zomiren, even though I still have sypmtoms such as pulsation of my body, jaws shaking - since really strong anxiety attack, 3 years ago maybe.

     

    I am in shitty situation

     

    good luck people


  9. My life never 'began' and i'm 24.

    I am going alone abroad to work on Scotish farm, I will be living in a container with 3-7 unknown people because I need money for treatment.

    relationship with my family is over. No one ever believed me that I am ill, although EEG showed anomalies.

    It looks like, that I will need a lot of klono.

     

    Always look on the bright side of life...


     

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