Kalo

Always nice to see some awareness being spread for HPPD. Thank you.

I asked my doctor for levetiracetam (Keppra). However, I was surprised to see that he had instead prescribed me topamax at the pharmacy. 
Is it even worth taking for HPPD?

Most annoying thing about this pandemic for me is how my grocery stores are limiting fresh meats to two items per person, makes it a lot harder to stay on keto 

10 hours ago, badhalfsack said:

I feel like reddit isn t a good place to talk about hppd, there s a hella of misinformation, I feel like people there threat their condition as a joke.

What do u guys think about the r/HPPD sub?

Most of it seems alright as there's some good posts helping others and newcomers to HPPD; although I've seen a lot of people give out really awful advice on there, some people even glorifying HPPD as a blessing and disregarding those who actually suffer from it.

So it's mostly just a mixed bag of people who care, and others who treat it as a joke like you said.

10 hours ago, MattyHouseMouse said:

I came on here trying to help and wasn't expecting this kind of reception if I'm honest. The flakiness of your convictions is plain to see. We have @AlphaBeta who's vision is different when his eyes are watering and can see light refraction when he looks straight at a light source, and denies their own posting history. Also @Kalo who  appears to have taken some psychedelics then seen hppd less than a week later... and made no connection between the two.... can you not see that to an outsider to your community how suspect all this seems? You all seem to be determined that you have a serious visual health issue and appear blissfully unaware of the power of the subconscious mind. Now if my theory WAS right, it would be pretty cool wouldn't it? Bit of cognitive behavioral therapy and it would be bye bye hppd...

This forum is clearly no place for this kind of discussion,  I think I will take this to the scientists,  dr Abraham et al.

Thanks.

Matty.0

I was extremely ignorant to the possible side effects and long-term damage that could be obtained from the drug I took, especially the small dosage. I was carefree and inexperienced, being a huge noobie with drugs and looking for some sort of relief. Again, I don't care if you do not believe me but I know it's the truth and that's more than enough for me. 

You can't just go into a disorder forum and declare the disorder isn't real,  expecting 0 argumentative responses. Maybe if you approached this with a better tone, you could've explained your theory without disregarding HPPD in its entirety. 

13 hours ago, MattyHouseMouse said:

They emerged a week or maybe less after and you had no thoughts that it was related to the drugs taken? I'm not sure I believe that.

 

If you don't believe me, I guess there's no reason to argue with you. Think what you want I guess 

58 minutes ago, MattyHouseMouse said:

How long after the drugs did the symptoms emerge?

About a week or so, maybe less

15 hours ago, MattyHouseMouse said:

No 'hppd' in my corner, sorry. When I say I once thought I had 'hppd' I mean it was for like 10 mins after reading about 'hppd' on line and was trying to test to see if I had it. This was 15 years after last taking mushrooms. I can as I said can give myself severe 'hppd' by looking for it. Anyone can, it's normal stuff that the eyes do. The 'hppd' sufferer has got themselves stuck in that loop where through paranoia or maybe reminiscence about the drug experience they keep doing it. 

Someone mentioned that people can get it years after the drugs, how on earth does that work? Take the drugs, recover fine, years of normal vision, all drug molecules completely out of their system, then suddenly for no apparent reason they start seeing 'hppd'? Clearly a metal process has kicked in somehow, how could they suddenly have spontaneously developed brain damage out of nowhere?

If HPPD worked like how you claimed it does then how would symptoms continuously effect unaware/indifferent individuals, sometimes even getting worse over time? Personally after my emergence of symptoms I had no clue that my past drug usage could have caused this condition for awhile. Even then I wasn't hyperfixated on visual changes, etc. and despite the obliviousness nothing went back to "normal". For the longest time I really didn't care, until things progressively became worse on their own... however I've never had severe anxiety, and still don't. I didn't find out what HPPD was until much later.

Even without the sun, I still wear mine consistently. It helps with artificial lights, etc. Yeah, it's common for symptoms to get much worse at night, and symptoms overall can get worse overtime or better. It really just depends on the person. Personally, after my symptoms got worse over the course of a few months they gradually started to decline when I started wearing sunglasses and eating a keto diet (keto diet is a BIG help for people with HPPD).

Most of your symptoms seem to match up with HPPD, so I'd say you most likely have it. I was experiencing extreme pressure in my eyes (along with my head) which you seem to be dealing with, and had some pretty bad light sensitivity (trailing, halos, double vision etc). A good coping technique for this is to wear some sunglasses (I wear my prescribed ones 24/7 and a big chunk of my pressure/visual-symptoms have been simmered down. Seriously, buy yourself a pair and see if it makes any difference, I know a few others on here have had success with it as well.

Yeah, I had the exact same thing you're currently going through. My body and mind felt like a pair of anchors, or sometimes they felt too light; always shifting between the two and putting me off-balance. Thankfully after abstaining from all drugs and eating healthy (keto diet) that symptom has basically vanished for me. Can't say the same for the rest of my symptoms, but they are slowly getting better as well.

Within a week, no. Personally, it took a few weeks before noticing any improvements (after trying to live healthy, using supplements, etc.) but recovery is different for everyone. If you're noticing improvements so early that's a very good sign. 

Trazodone along with other sleep-aid/anti-depressant medication can cause intense/weird dreams... if you're noticing any other negative side effects that are too much for you (visual increase, etc.) then you should probably stop taking it. People on here have said it helped a bit, others say it made everything 2x worse. About your friends, if you don't approve of what they're doing or how they're acting it might be best to cut them off.

At first it can seem really hopeless, but through abstaining drugs/caffeine and eating healthy, trying coping mechanisms, exercising, etc I promise it gets somewhat better over time. Working towards recovery immediately is a huge help, and coming to terms with your symptoms will also help with the anxiety/depression. In just a few months of working towards recovery and living a completely healthy lifestyle, my symptoms have lowered 50% (although HPPD recovery is different for everyone). Just hang in there! A positive mindset can work wonders in your battle against HPPD 

On 12/2/2019 at 11:05 AM, K.B.Fante said:

I think almost all CBD contains even trace amounts of THC. I've taken it for about a year and it really helps me relax. Your best bet would be to buy a tincture and try a few drops to see how you feel, then steady increase the dose. I really don't think you can hurt yourself doing it that way. There's just not enough THC to really have a major impact as long as you dose small and work your way up. 

I've been slowly increasing the dosage, and I've made sure to make sure it's a small dosage for now (it helped a lot with the anxiety). However it seems as though my visuals are increasing after using the oil for a couple days though. 

So I'm unsure to start taking CBD oil in order to calm some symptoms along with chronic pain, I have the "THC free" oil that claims to have no THC, yet there's still an extremely small dosage of THC within the oil still as most "thc free" cbd oils still have thc in them. Does anyone have experience with CBD oil that contains almost no thc?

What about them?

Melatonin personally does not effect my symptoms, however some people have said they've experienced worsened symptoms with consistent melatonin use. Although I'm not sure if these claims of worsened symptoms are true, you could always test it out and see how you feel after.

8 hours ago, Helpme7637 said:

i do get headaches and my ears ring very occasionally. i jus feel like im going crazy

Tinnitus and headaches can also be apart of HPPD (I also get these symptoms). You aren't going crazy, you are just experiencing some of the many side effects that can come with HPPD, most likely. 

No it's pretty unlikely you are developing schizophrenia, it's most likely HPPD. I see afterimages and lines all the time, which can be apart of HPPD's visual symptoms; I tend to also experience depersonalization/derealization which could be contributing to the mental confusion you are experiencing. These symptoms can worsen with stress/anxiety (especially DP/DR), and convincing yourself you have something far worse or are going crazy just heightens the problems. If you had schizophrenia, the symptoms would be far more drastic with possible false delusions and hallucinations. Is there anything else you are experiencing?

2 hours ago, MadDoc said:

If it continues, it might not be a bad idea to talk to a doctor.  Those symptoms can be caused by physical issues as well.

Planning on bringing it up with my next visit to the doctor, hopefully it's just more symptoms from HPPD. 

1 hour ago, sami said:

Migraine?

Sometimes it's a migraine or is close to one, and other times it's just a headache. 

Is this a symptom known to happen with HPPD? At random moments, my head feels like it's floating from the rest of my body and my depth perception is way off as things seem closer or further. Shortly before this happens I also experience numbness/tingling throughout my limbs and a headache, along with my vision worsening and an increase in head pressure. My balance is also off the charts... Is this HPPD or is more likely a different medical issue?  

Sounds like you may be suffering from Depersonalization/derealization. Feeling detached from your thoughts and actions, almost like you are following “robotic commands”. I was feeling the same way as you were recently but it ended up just vanishing. However, it seems that many other people experience this feeling within HPPD for random ongoing intervals sometimes even lasting years. My best advice would be to try experimenting with other medicines known to alleviate HPPD symptoms with your doctor, and see if certain prescriptions can suppress these feelings. If you don’t want to go down the prescription road, then you could try meditation (which really grounded me into reality personally) and exercising along with a healthy diet which also helped suppress anxiety and DP/DR (again, for me at least).

On 11/6/2019 at 7:30 PM, sami said:

I use Zopiclone, and have used for a while. Just be careful if you taper off. It can make it worse. Do it very slow.

 Thanks for the advice, I'll be sure to taper off later down the road. Do you find that Zopiclone effects your hppd symptoms (besides sleep)?