Fatihh
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Posts posted by Fatihh
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Visual snow is an anticholinergic/dysautonomia syndrome. The vagus nerve is probably damaged.
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A patent from 2013
https://patents.google.com/patent/WO2014160423A1/en
Is it really an anti-cholinergic syndrome? Is it treatable by boosting cholinergic function? Is the vagus nerve involved?
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14 hours ago, Onemorestep said:
Luckily, I do not. Plenty of other things to worry about!
It is actually quite new and exciting for me thaf something increased and lowered your photophobia. Do you have any advice for me? Should I take choline?
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On 1/17/2016 at 8:12 PM, Onemorestep said:
This is the majority of my symptoms! However, I've noticed that some symptoms I have are from too high levels of acetylcholine and some are from too low. Things that boost acetylcholine make the high acetylcholine symptoms worse. Oxiracetam worked very well for a while, but by the end I was getting symptoms such as photophobia indicating it was lowering acetylcholine in areas.
Coluracetam at any dosage now makes me flip out for three weeks at least.
My theory is that HPPD disrupts levels of acetylcholine to very high and low levels in different parts of the brain. We don't need to imagine how hellish this would feel.
You do not have photophobia anymore?
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Palinopsia is defined as the persistence or reappearance of images after cessation of the visual stimulus. One patient presented episodes of palinopsia after the functional loss of the 3 semicircular canals of the right ear while the otolithic function was preserved. None of classical causes was identified in this patient, intoxications, brain tumors, migraines, psychiatric disorders, etc. For a movement to be perceived as a single event, central processes of temporal integration are necessary to correct the shift between the rapid vestibular information, and the slow visual information. However, it has been shown on animal models that vestibular inputs are slower than normal in case of peripheral deafferentation limited to the canalar function with preservation of the otolithic function, which is the case in this patient. Therefore, we hypothesize that episodes of palinopsia he presents result from the fact that temporal integration processes do not take into account the slower than normal vestibular information due to the peripheral disorder and continue to slow it down. Thus, the patient keeps the visual image in memory until the late arrival of the vestibular information. (PDF) Palinopsia Following Acute Unilateral Partial Vestibular Deafferentation: A Case Report. Available from:
https://www.researchgate.net/publication/327796848_Palinopsia_Following_Acute_Unilateral_Partial_Vestibular_Deafferentation_A_Case_Report [accessed Oct 28 2018]
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Common symptoms of Autonomic Dysfunction or Dysautonomia
- Postural hypotension: lightheadedness, dizziness, fainting, dimness of vision, unsteady gait, weakness (POTS syndrome)
- Paresthesias: numbness or tingling in feet, legs, hands, arms or other body parts
- Urinary dysfunction: excessive, incontinence, retention, hesitancy
- Frequent Gastrointestinal dysfunction: intermittent diarrhea, constipation, nausea, vomiting, full-ness after eating very little, loss of appetite, slowing of gastric content, bloating, heartburn
- excessive or decreased sweating
- Sexual dysfunction: erectile dysfunction, vaginal dryness, decreased libido
- Exercise intolerance
- Bradycardia (Abnormally Low Heart Rate) or Tachycardia (Abnormally High Heart Rate)
- Extremely Low Blood Pressure
- Frequent Swings in Heart Rate or Blood Pressure
- Frequent Bouts of Dehydration
- Chronic Fatigue
- Heart Palpitations
- Dizziness or Vertigo
- Syncope (losing conciousness) or Near Syncope
- Difficulty Swallowing
- Chest Pain
- Shortness of Breath
- Frequent Migraines or Headaches
- Hypersensitivity to Light, Sound, Touch, or Smell
- Difficulty Regulating Temperature
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-Pins and needles whole body
-sometimes nubmness in face, toes
-muscle twitching
-sound sensitivity
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Microprism glasses seem to reduce palinopsia, photophobia and even phonophobia by having an effect on thd dopaminergic system
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Here is a link to the youtube channel of dr. Merill Bowan (passed away in 2017):
https://www.youtube.com/user/MerrillDBowanOD
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Here are links to papers which suggest that microprism glasses reduce photophobia, phonophobia and palinopsia.
They also mention lsd and visual snow.
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1 hour ago, Jay1 said:
Will be interested to hear how you get on. Do you meditate? I think meditation techniques will be essential to get through it
I dont meditate because I am always sleepless, which causes me stress. With stress it is difficult for me to 'chill'. So, first thing I want to do is improve my sleep.
How is your sleep pattern, how much do you sleep and what time?
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1 hour ago, Jay1 said:
It's an interesting idea and one I have thought about before... I'm just scared about letting my mind run amok without distractions of tv, phone etc ... my thinking gets VERY strange/trippy!
Maybe you should build it up to get used to it. I am going to try it.
Another quote:
Kittens placed in a dark-room for 10 or 15 days (but not 5 days) at 30 days of age exhibited significantly reduced levels of neurofilament compared with 40-day-old normally reared animals, indicating that dark exposure has returned their visual cortex into a structurally less mature state.
https://www.sciencedirect.com/science/article/pii/S0960982213000699
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What about staying in dark for an extended time like 48 hours.
Dark therapy has been shown to reduce symptoms of bipolar disorder. https://www.ncbi.nlm.nih.gov/pubmed/9611672
So it basically gives the brain rest. Would it reduce the hyperexcitability of the lingual gyrus what we need ? Maybe from evolutionary persective we should seek rest in dark to protect and heal our light sensitivity?
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Case Report
Hyponatremia-induced transient visual disturbances in acute spinal cord
injury
A-K Karlsson*,1 -
Hyonatremia = too low levels of sodium in blood.
Mdma and hyponatremia:
https://www.ncbi.nlm.nih.gov/m/pubmed/18684895/
https://www.ncbi.nlm.nih.gov/m/pubmed/23476039/?i=4&from=/18684895/related
Reversible Palinopsia and the Alice in Wonderland Syndrome Associated With Topiramate Use in Migraineurs:
Topiramate and hyponatremia:
https://www.ncbi.nlm.nih.gov/m/pubmed/27896804/
Closed eye halluginations and hyponatremia:
https://www.hindawi.com/journals/crim/2018/5127917/
Blindness and hyonatremia:
https://content.iospress.com/articles/journal-of-pediatric-intensive-care/pic028
Ssri and hyponatremia:
https://www.ncbi.nlm.nih.gov/m/pubmed/16896026/
Seizures and hyponatremia:
https://www.ncbi.nlm.nih.gov/m/pubmed/21314679/
So there seems to be a connection between serotonergic pills and low sodium and neurlogical problems.
This condition of hypnatremiamay be even execerbated by us trying to live healthy and drinking lots of water and so dilluting our blood and become further defficient. Maybe this is the reason why caffeine makes our symptoms worse?
Symptoms of hyponatremia (wikipedia):
Signs and symptoms of hyponatremia include nausea and vomiting, headache, short-term memory loss, confusion, lethargy, fatigue, loss of appetite, irritability, muscle weakness, spasms or cramps, seizures, and decreased consciousness or coma
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What about serotonin reducing diet? And how to do that?
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As I experience some reduction in symptoms, i wonder if weight really affects the whole disorder in its roots, or just the symptoms.
My theory would be:
-less weight is less pressure on potentially pinched nerves, making them decrompessed over time.
-less weight means better nighttime: you dont force your bed and matress with your weight: makes sleep comfortable: good for sleep
-less weight means your less upperbody fat: that means that your body does not need to wear a heavy head etc: good for posture: good for pinched nerves: good for hppd recovery
So this poll is not intended to link your bmi with 'getting' hppd, but with the recovery from it.
https://www.heartfoundation.org.au/your-heart/know-your-risks/healthy-weight/bmi-calculator
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Cured hppd 100% full recovery
in MAIN AND GENERAL FORUM
Posted
Check the symptoms:
https://en.wikipedia.org/wiki/Anticholinergic