Joeygeorgie88

I've seen dr plant aswell (privately!) - lovely bloke. He took me seriously and listened to me, which is more than can be said for others. It's just a shame he can't offer any kind of solution!

cluxe - the other condition is "visual snow" bud. There's groups on fb (as for hppd). Very similar conditions. I've also seen drs weatherall, Bowden-jones and goadsby who are all interested in hppd/VS. Unfortunately it's the same story as plant - they can't offer any decent practical advice at this stage cos they just don't know. But as jay says - at least they don't just dismiss you as anxious/psychotic (*ahem* GPs!!!). Sometimes it can be so reassuring just to have a doctor really listen to what you're saying and "get" where you're coming from.

Definitely hppd bud. Are you still smoking daily? That needs to stop! If I so much as inhale a whiff of passive smoke it'll have negative effects.

How did you overdo it then Fante and what are your additional problems?

For me it's an MDMA-esque urge to clench my jaw. Not very nice. 

Sorry mythos - so when did the stopping smoking/breakdown occur? Cos it sounds like that's much more responsible for your current situation that the drugs of 2009-15....

Weed "all day every day" in oct 2015 and you've had hppd since 2009? I'm amazed you're not much worse than you are, bud! I'd be a psychotic, gibbering mess! I'd say you've done well, all things considered.

I've heard a lot of talk about people not being able to look others in the face. What's uncomfortable about it/what do you see?

Since inhaling passive weed smoking a month back I think I'm beginning to understand what people mean...certainly a trippy vibe about the faces.

Well prior to ingesting passive smoke a month ago it was august 2015 for me - so I know what it's like to have a worsening case despite no drug use in years. Just gotta keep up hope bud - it took last month to make me realize that I had actually gotten better in some regards, only I hadn't realized it because of the all the other stuff going on. And now BAM, all those old symptoms are returning. You've been consistently going downhill then since 2015? And I suppose you've not come across any passive smoke or anything like me?

Ha, wow. I mean obviously I can't understand at all what you're doing, but each to their own I suppose! I'm surprised you haven't drifted into full-blown psychosis, to be honest! If I smoked everyday in my state I would probably be dead by now.

My insomnia has returned too. I haven't really slept at all since Saturday, and I'm not even that tired. How are you doing? Unfortunately this shit is ALL related, haha....when did you say you last used?

Haha.......I can only guess you don't have a very bad case of this, bud.

Again, if you're talking about a bodily drugged sensation, an mdma esque feeling, then yes bud I truly know how unnerving it feels. Last week I had it worse than ever. I'm sick of feeling high so damn often.

What triggered your panic attacks though mythos? Was it spontaneous or due to extra stress (if so why) or medications?

Hmm, I see. Well isn't that just great, ha! Interesting that you found an antipsychotic helpful, mythos. You just took it short-term then?

I smoked a rollie last night without inhaling (mouth only) and I swear for 10-20 mins I felt a cannabis-esque high, dry mouth and all. I was convinced one of my mates had included weed in theirs but it was only baccy! Never had that before, I guess tobacco is now off stricken off my list too. Anyone else?!

Same as, bud. Worse in the dark, worst on waking. 

If it gave mythos the sensation of being high I don't think it's a good idea, I'm staying away!

Christ, what are you playing at bud. I can't believe there are people still consuming drugs to that extent after acquiring hppd!! However - congratulations on the recovering brain, looks like you're one of the lucky ones.

I doubt it bud. Tinnitus is one of the least bothersome symptoms in my opinion. I advise you just try and ignore it.

As Fante says, maybe it was the wrong term to use (although neurodegeneration is NOT always visible on MRI - ALS/MND patients for example have normal MRIs) - but structural damage at the cellular level would be impossible to see on an MRI. Many experts such as dr Abraham have hypothesised that HPPD is based around excitotoxic destruction of neurons.

Bud - I maintain it could very well be brain damage/neurodegeneration! An MRI hasnt got a chance of observing things at the cellular level - so it's effectively meaningless for HPPDers. Bear in mind that most neurological conditions will not show up on an MRI even though cell death is involved.

I've been getting this to an increasing degree. I've found it worrying since it's something one would generally associate with psychosis. It appears to me the line between HPPD and psychosis can be quite blurred - indeed, many here talk about psychotic episodes when they've been on drugs.

Have any of you guys had genuine auditory/visual hallucinations from HPPD aside from this face sensation?

It certainly might be neurodegenerative bud. God knows it feels that way for me! Many with hppd get worse over time. In many ways her book mirrors my own symptoms, in ways nothing else I've read does. I am certainly not ruling out progressive brain damage, in my case at least. Everyone with hppd is slightly different, it seems.

For me it feels like coming up on mdma, only as you say, without the euphoria. It's horrible, and confirms to me my serotonin system must be screwed.

Fante - I've read it myself and was amazed at the similarities! I can actually relate to so many of her initial symptoms. So yes, I expect there is a strong connection. What's your autoimmune disease? I've developed dysautonomia as a result of hppd, namely in the form of POTS.