Alex

No, for me its been over 20 years and my symtoms have remained the same.

Realy good post visual.

Im trying to get my head around it all and i have a question.(It may very well be a dumb one,sorry in advance if thats the case)

If all Sinmet does is provide more raw material to make dopemine out of, does this mean that in hppd it is the mechanism that produces the raw material for dopamine that is faulty and not the dopamine receptors themselves?

thanks

Al

Once enough data has been collected it may be useful to put the results on a graph or in a table so what works for who becomes more transparent

Yes, if it’s true that hppd has different guises, which I’m beginning to realize seems to be the case, and therefore different meds work better in different cases, than a database is a great idea.

I’ve just read must-be-a-way-to-heals symptoms and they don’t sound a bit like mine

My symptoms are all about negative afterimages, even shadows that seem to come from nowhere floating about all over the place, I have recently realized are after images forgotten about and then coming back in for a second time.

I do have grainy air type symptoms and the occasional squiggly floater but not much.

I find that there are two different varieties of HPPD which correlate to drinking and which also correlate to use of dopamine drugs.

Hi

What do you mean by this, could you expand?

sorry sinemet didnt work for you mate.

i ve been waiting for your results as I was going to try it myself

could you give me a description of your visual symtoms so I can compare them to my own.

Many THanks

Al

Thanks for that Visual

Your wisdom is very helpfull,

slow frame rate sounds rough mate, glad its a bit better with sinemet

Thanks again

Al

what do you think makes sinemet better than requip?

Iv just seen the thread " just started sinemet" so I'll repost my last question there, makes more sense.

Cheers

Cheers

No Im in the UK

Iv only recently contacted a neorologist about my hppd after having had it for a long time, he knew nothing about hppt but told me I had most likely damaged nerve fibres and there was nothing really to be done.

It was then I decided to check internet again for info on hppd and found this forum.

I will go back to him with this info ,thanks

Have you taken sinemet and if so how much of your visuals did it clearup ? what makes sinemet better than requip?

Thanks again Visual

I think this may well help me; I get really long lingering after images

As I understand it then the Sinemet is full of a molecule that our brains can easily turn into dopamine, I wonder if there is a natural (herb) alternative?

If I ask my doctor for sinemet he may well need more than me telling him, "I read about the possible benefit of sinemet on a forum". do you know of any published studies with sinemet and hppd or any other way I could convince my doc to try me on it?

I have been thinking about trying this med when I go out socializing instead of using alcohol to relive my anxiety.

That way I can totally give up alcohol well (it’s a long shot but maybe my occasional drinking is messing up my chance of recovery)

Can anybody see a problem with this?

Thanks Visual

How does Sinemet work and what side affects does it have?

Some people mention visuals get better with clonazapam do you think this depends if your visuals are pos or neg

Love the pic

Hi All

I have negative afterimages ie green things give red after images ect.

Does anybody know if this is typical or are poitive after images more common or is it about 50\50?

I'v read somewhere on this site but cant remember which thread I was reading, where somebody mentioned that negative afterimages could be caused by synapses connected to photoreceptors in the eye not metabolizing properly.

Can we do eye transplants these days? and would that fix negative after images?

Also I'v heard some visuals are reduced by certain drugs ie benzos. does it depend on whether your after images are pos or neg which drugs to take?

Hi morbide

Im also new to the site , nice to meet you.

It seems you have a good chance at recovery as you are young and your hppd is only 7 months.

Dont do anymore drugs or drink even once if you want to give yourself the best chance.

Take care

Al

oh your english is better than mine , I can't spell for shit

oops just whent back in time about five days. sorry

Now all the handbags have sold out

I agree with Jay

You may well look back on this in a few years time and believe this shit actually saved you from a worse fate.

And 2muchmandy let them do there drugs, I m not saying get some new friends but get some more who do other things besides drugs.

Whats atarax?

I know nothing about presciption drugs available to combat hppd.

Maybe we should have a new topic for each medication and then people can post about there experiences on each one seperately.

I wonder how many of DR Abrahams 50% that got better had there symtoms for a substantial amount of time???

Drinking hasn't worsened my symptoms over the years, I only drink moderately but I do wonder whether this has stopped a full recovery.

I used alcohol especially in the early days almost like a medicine enabling me to keep a social life

Hi Windscar

My symptoms are visual snow (i guess, this term is new to me ) but it looks to me like the air sort of has grainy colours in it.

I also get after images from objects or wherever there is a contrast of colour and also floating shadows although I believe these shadows are after images forgotten about and then floating back into view later on.

Apart from these visual symptoms I am anxious in large social groups although that might just be me, pre hppd I was a teenager so I dont really know what I would be like without hppd in that way.

All these symptoms have been a constant throughout the years although for the first few years I used to get terrible jaw muscle ache but this was probably due to the stress of it all, I actually wore a motorbike helmet in bed when it got bad because this supported my jaw muscles and stopped the pain.

I dont understand though how one person can get better and another not. its surely either perminant or not???????

although Iv been reading about genes and shit on the reserch forum and beginning to realise things arnt as simple as me

Wow some folks know a lot about stuff on this site!

do you think alcohol upsets any chance of recovery?

Im trying to get my head around why some people get better and other dont.

Although I havent done any psychs for 20 years,in the very early days I probably had ecstacy or lsd quite a few times with hppd, maybe this is what makes it perminant.

whats salvia?

Made up for you mate!

Take care

Al

It seems like your doing all the right things 2muchmandy I hope you recover soon.

take care

Al

Hi Jay

Yes thats right, who'd have thought danceing could be so bad for your health!

For me It has been a case of putting it to the back of my mind for all these years. I'm married and have two great kids, so shelving hppd hasnt been so hard.

Right now though I'm finding it interesting learning more on this site about hppd, everyone seems very clued up on treatments,reserch and what is actualy going wrong with people with hppd and Iv been in hiding since mine began and so know nothing.

Have you taken any psychedelics with hppd? even in the begining,

Al

yes , I think a full recovery is possible if caught early, don't jepodise your recovery by taking any drugs at alll (ever again!)

My symtoms include after images, traces and floating shadows, these get worse when tired and all but disappear when outside on a bright day(if not tired or hungover).no dp thank god!

My symtoms have remained the same throughout the years although probably felt worse in the early days when I would dwell on them.

what symtoms do you have,did they come on all of a sudden?

you seem to have a positve atitude, you should be fine whatever happens.