My treatment, disadvatanges/advantages

[Ming Xiao]

Hi,

My doc treats me for personality disorder, might existing bipolar disorder and I suffer definetely from some shitty HPPD, although I have a Little of visual disturbances but hella big anxiety.

He does not want to prescribe me klono. The Anxiety I have does not let me to do simple shopping or peacefuly use public transportation.

Currently I take 

150/150/150 Pregabaline

20/x/20 Paroxetin

3/x/x Reagila

Unbeliavable thing is that I am feeling well unless I have some social situations.

I do not know what to do, order klono from black market, use psylocibine therapy.

I need someones guidance who does not have such big problems like me and somehow cope with such thing(anxiety).

I was very long in the therapy but for fuck sake after 8 years of psychiatric treatment I receive a bipolar diagnose.

If I could chat with somebody experienced more I would be grateful.

What do you suggest? I have been in so many treatments that I am somehow losing the path of solving HPPD thing.

What kind of psychiatric treatment is that if I am stucked for so many years with such anxiety?

[yarkadin]

One of those is for pain, the other is an SSRI, and the last is an antipsychotic.  What exact HPPD symptoms are you going through?

Klonopin and benzos are the only things that really make a noticeable dent in HPPD... Lamictal and Keppra reported have some effect on the light sensitivity issues.

[brake]

Maybe go to another doctor. Show them studies of how effective keppra, lamictal, Klonopin and Xanax is in HPPD. I had the same thing, the anxiety was so bad I couldn't do much regularly and peacefully until I got Klonopin and keppra prescribed.

[Ming Xiao]

The thing is that apart of having wide pupils, anxiety and that during it sorrounding is "different" I do not have any visuals. I forgot about muscle tensions, especially when I smoke cigarettes and doc is aware of it.

In terms of perception I do not know how to describe it differently, world seem to look like in a different way during anxiety.

I am repeating to doc that it is caused by drugs and I call it HPPD, he does not discuss it with me, diagnoses all bulshits like personality disorder etc.

EEG shows something but according to docs its nothing. Few neurologists though claims brain damage.

Last time I wasnt able to go with a train from punkt A to B and was going out on earlier stops.

On Wendsday I go to visit him. Should I take some scientific publications regarding HPPD? Can you recommend some of it? I do not want to Change the specialist because I think with the right arguments he is convinceable.

 

 

Edited November 11, 2024 by Ming Xiao

[brake]

12 hours ago, Ming Xiao said:

The thing is that apart of having wide pupils, anxiety and that during it sorrounding is "different" I do not have any visuals. I forgot about muscle tensions, especially when I smoke cigarettes and doc is aware of it.

In terms of perception I do not know how to describe it differently, world seem to look like in a different way during anxiety.

I am repeating to doc that it is caused by drugs and I call it HPPD, he does not discuss it with me, diagnoses all bulshits like personality disorder etc.

EEG shows something but according to docs its nothing. Few neurologists though claims brain damage.

Last time I wasnt able to go with a train from punkt A to B and was going out on earlier stops.

On Wendsday I go to visit him. Should I take some scientific publications regarding HPPD? Can you recommend some of it? I do not want to Change the specialist because I think with the right arguments he is convinceable.

 

 

Well if you don't have any visuals then you probably just have anxiety and maybe other things but here are some studies and articles that you can show your doctors:

"Lamotrigine is a widely used antiepileptic and mood-stabilizing drug which acts by blocking sodium and voltage-gated calcium channels and inhibiting glutamate-mediated excitatory neurotransmission. Additionally, there are data supporting a neuroprotective effect [Halonen et al. 2001]. Lamotrigine has also been shown to reduce symptoms of depersonalization and derealization [Sierra et al. 2001], although the same group was unable to reproduce their results in a placebo-controlled follow-up study [Sierra et al. 2003]. Given that excitotoxic destruction of inhibitory interneurons may play a role in at least some of the visual symptoms of HPPD (see below), lamotrigine was considered a possible treatment option for this patient. Furthermore, lamotrigine is generally well tolerated with a relative lack of adverse effects, making it a drug of choice for youths and young adults.

During a year-long trial of lamotrigine, with a maximum dose of 200 mg, the patient experienced significant relief from her symptoms, some of which disappeared completely. Only the depersonalization and derealization proved somewhat refractory. It is important to note that the patient showed a marked improvement during the 200 mg dosing-in phase itself and remained stable even after the dose was reduced to 100 mg daily."

Hallucinogen-persisting perception disorder

Extended difficulties following the use of psychedelic drugs: A mixed methods study

Keppra findings - Has cured HPPD and DP

Levetiracetam Reverses Psilocybin Induced Increase in SV2A: Possible Role in the Etiology and Treatment of HPPD

What is hallucinogen-persisting perception disorder?

"Management and treatment

There is no one recommended course of treatment for HPPD. However, there are two drugs that initial research suggests may be effective. These are:

• Lamotrigine: According to a 2012 case studyTrusted Source, this antiepileptic, mood-stabilizing medication may help to relieve symptoms. Researchers found lamotrigine to be more effective than other drugs, including antipsychotics and selective serotonin reuptake inhibitors (SSRIs), which made symptoms worse in some people.
• Clonazepam: A 2015 case study found that the tranquilizer clonazepam might also be an effective treatment for HPPD symptoms.

The effectiveness of drug therapy can vary from person to person. Every person who has visual disturbances as a result of HPPD experiences them slightly differently.

The 2012 studyTrusted Source also recommends the following to help manage symptoms:

• avoiding illicit drugs
• reducing stress
• treating related conditions, such as anxiety or depression

HPPD symptoms may cause anxiety. In turn, stress and anxiety may make HPPD symptoms worse. Trying mindfulness, yoga, or meditation may help to reduce stress and anxiety."

 

Clonazepam treatment of lysergic acid diethylamide-induced hallucinogen persisting perception disorder with anxiety features

Hallucinogenic Persisting Perception Disorder: A Case Series and Review of the Literature

Clonazepam treatment of lysergic acid diethylamide-induced hallucinogen persisting perception disorder with anxiety features

This Is Literally Your Brain on Drugs (shows it's not placebo)

New brain scan study discovers possible biological basis of visual snow syndrome

People use drugs like Xanax to halt a bad psychedelic trip

Guide to HPPD: How to overcome or reverse the effects

The Mysteries of HPPD (very in depth)

Edited November 11, 2024 by brake

[Ming Xiao]

Hi I notice Visual snow, especially after waking up, feeling the environment in different way as well.

I went to doc and I was able only to negotiate:

Karbamazepina

Kwetiapina

As far I am extremely sleepy but he decided to take a look on the documents regarding HPPD next time. I think from the whole set I will leave paroxetine 20 in the morning and start taking slight small dosages of klono when I will have to go the office or twice a week 0.25? quit smoking and start healthy life.

Thank you Brake for the helpful documents which I will provide to the doc 23th of December.

I tried 10mg of relanium once and that was a superior relief, but probably its like 0.5 mg of klono?

I admit that was a rally hard time so I might not need big dosages of klono.

 

Ciggies make all the symptoms worse, especially muscle tensions

 

Edited November 13, 2024 by Ming Xiao