aztec99 Posted May 17, 2012 Report Share Posted May 17, 2012 If my doctor doesn't believe in Hppd then how do you get them to prescribe Keppra? Did you lie about headaches? Link to comment Share on other sites More sharing options...
zukov Posted May 17, 2012 Report Share Posted May 17, 2012 it's hard. You must find a way, some dr its gonna help you. HPPD? They dont believe that i have depersonalization! Link to comment Share on other sites More sharing options...
1998 Posted May 25, 2012 Report Share Posted May 25, 2012 ''if my doctor doesn't believe in Hppd then how do you get them to prescribe Keppra? Did you lie about headaches? '' That's how I always go about getting my meds. I just say I'm suffering from whatever the meds are targeted to helping w. Just easier then trying to explain hppd, for me atleast. Link to comment Share on other sites More sharing options...
aztec99 Posted May 26, 2012 Report Share Posted May 26, 2012 Ethically I would hate to do that. But given the ignorance of the medical community (excluding David and Dr A), I might just have to do what I have to do. I may just be developing some restless legs here in awhile that might require a script for Requip or Sinemet Link to comment Share on other sites More sharing options...
SKARFON Posted May 26, 2012 Report Share Posted May 26, 2012 One thing isn't clear for me though: if you stopped taking the keppra, would all the HPPD symptoms come back? I am seriously considering this Link to comment Share on other sites More sharing options...
Loky Posted May 28, 2012 Report Share Posted May 28, 2012 Some really interesting posts in this thread. Thanks for the share Link to comment Share on other sites More sharing options...
Danny13 Posted May 31, 2012 Report Share Posted May 31, 2012 Survey how is this combo working out for you? Link to comment Share on other sites More sharing options...
balance Posted June 4, 2012 Report Share Posted June 4, 2012 Thank you for posting this! These two medications are definatly on the backburner, I have them both prescribed, not keen to try anything yet though. Link to comment Share on other sites More sharing options...
shaolinbomber Posted June 5, 2012 Report Share Posted June 5, 2012 I thought about giving Flunarizine a try but am hesitant because I don't want to be let down yet again. I was waiting to see if more people were going to report back to the site about it first. Link to comment Share on other sites More sharing options...
Merkan Posted June 15, 2012 Report Share Posted June 15, 2012 Well, since i am ready to pop anything i might just try it without Keppra for the sake of the community. I have a VEP and MRI coming up on monday though and i am still not sure my doc is with me fully on Sinemet, even if she still prescribes it. I also wanna look up the COMT-thingy with her first since i respond very well to DA:s. I hate that they shut down GP or else i would get it and try it on my own. Both Keppra and flunarizine acts on the calcium channels, since Keppra has others indications as well, a comparsion would be really interesting. There is no need to have more mechanisms if actions going on then necessary, causing potential side fx etc. Link to comment Share on other sites More sharing options...
shaolinbomber Posted June 15, 2012 Report Share Posted June 15, 2012 Well, since i am ready to pop anything i might just try it without Keppra for the sake of the community. I have a VEP and MRI coming up on monday though and i am still not sure my doc is with me fully on Sinemet, even if she still prescribes it. I also wanna look up the COMT-thingy with her first since i respond very well to DA:s. I hate that they shut down GP or else i would get it and try it on my own. Both Keppra and flunarizine acts on the calcium channels, since Keppra has others indications as well, a comparsion would be really interesting. There is no need to have more mechanisms if actions going on then necessary, causing potential side fx etc. Be sure to let us know how Flunarizine is if you decide to try it. Link to comment Share on other sites More sharing options...
must-be-a-way-to-heal Posted June 18, 2012 Report Share Posted June 18, 2012 ok cool great post.. im corrently on Keppra 1000mgs AM and 1000mgs PM Im not notecing big changes yet, I would like to add Flunarizine tho i dont think it is availabe in Australia are you aware of any other way of getting a hold of it? Thanks Link to comment Share on other sites More sharing options...
brendan Posted June 20, 2012 Report Share Posted June 20, 2012 although not licenced in the uk, i think it is still available on the nhs if doc thinks its worth it. He will just have to explain to you that it aint licenced and so you accept a higher level of risk. There may also be a delay as it wont be stocked in your local pharmacy but will need to be brought in. I may be wrong but this is how i understand it. I'll give it a try, but not likely i think (previous attempts at getting drugs not always successful). shaolin - i would encourage you not to restrain yourself from trying new treatments because you find disappointment too painful. You seem to get your hopes too high about anything you try then are inevitably disappointed. But the approach of this community really needs to be about throwing enough shit at a wall and maybe some will stick. Nothing ventured, nothing gained etc. If nothing happens, what have you lost? Nothing. Except maybe suffering some side effects. Keppra, sinemet, flunarizine - none of these are silver bullets but just have a chance of being of some benefit to some people. Once you appreciate that then you wont get your hopes high. Even if you cant control yourself being dissapointed, try the vipasana approach and just bear it with equanimity for the wider good. However you manage it, if you have access to flunarizine i would ask you to get some as not everyone here has a tame doc or other ways to get it so we need knowledge from people that do. Sorry for waffling. Link to comment Share on other sites More sharing options...
balance Posted June 21, 2012 Report Share Posted June 21, 2012 ok cool great post.. im corrently on Keppra 1000mgs AM and 1000mgs PM Im not notecing big changes yet, I would like to add Flunarizine tho i dont think it is availabe in Australia are you aware of any other way of getting a hold of it? Thanks It is available here, I have it prescribed. It was harder to get though, you may need to talk to a neurologist. Link to comment Share on other sites More sharing options...
joe Posted July 2, 2012 Report Share Posted July 2, 2012 really interested in seeing where this goes Link to comment Share on other sites More sharing options...
Fawkinchit Posted August 19, 2012 Report Share Posted August 19, 2012 Bump to this topic and would like to continue this research a thread that I made, obviously there is some connection here with the Na/K pump and overexcitation of neurons. heres the link to my thread http://hppdonline.co...e-weight-to-it/ Link to comment Share on other sites More sharing options...
Merkan Posted August 19, 2012 Report Share Posted August 19, 2012 As an admin, i am a bit uneasy about posting this but since i have a rapid response to meds, i would gladly try this out. Too bad Goldpharma stopped shipping to Sweden but if there is someone with this substance i would as said try it out. My doc is pushing me about the meds i already have prescribed and dont wanna risk them by arguing for new meds. If anyone could directly me to a solid/legit place to order i would be thankful or if someone has some spares to send. Link to comment Share on other sites More sharing options...
FDog Posted January 22, 2013 Report Share Posted January 22, 2013 Did anyone manage to get hold of Flunarizine in the UK or get it prescribed? Link to comment Share on other sites More sharing options...
shaolinbomber Posted February 25, 2013 Report Share Posted February 25, 2013 I have an appointment with my old doctor a week from this Friday and I will mention Keppra (ive been on it before) and Flunarizine. I'm bright with explaining things to people who can't seem to understand it on their own and that's the problem with most doctors so I've been able to get my GP to come around. I'm probably going to ask to go back on Klonopin at .25mg and slowly go up again. I will post back here when I regain access to the meds again. Link to comment Share on other sites More sharing options...
mandrake Posted February 25, 2013 Report Share Posted February 25, 2013 Congratulations man....I am nearing twenty years of this nonsense as well. I will try the low dose Keppra...what might you suggest? Seeing as you benefited so much I'd likely try exactly what you did...thanks. Link to comment Share on other sites More sharing options...
Ghormeh Sabzi Posted May 14, 2013 Report Share Posted May 14, 2013 Anyone else looked into this further? Link to comment Share on other sites More sharing options...
onedayillsailagain Posted May 14, 2013 Report Share Posted May 14, 2013 Anyone else looked into this further? It seems that Flunarizine, like Clonidine, works on Calcium transmission. This is a mechanism that seems to be involved in HPPD's pathogenesis, and has potential for future treatment ideas. I have yet to study the ins and out of this mechanism in HPPD, but so far I have put off research, as I will most likely get treatment soon. However, once I get my cognition back (god I hope I get it back, I loved my cognition more than anything in the world), I will do my best to research it. I consider studying Neurology once my mind allows me. As with many medications, I am sure there are other agents with a similar action, so perhaps for those of you willing to test out this good news for yourself, consider a comparable substance. EDIT: I re-read the first post.. Seems you would know a hell of a lot more about Flunarizine than me. Link to comment Share on other sites More sharing options...
VisualDude Posted June 27, 2013 Report Share Posted June 27, 2013 Somehow it has an effect on dopamine systems http://www.journals.elsevierhealth.com/periodicals/prd/article/PIIS1353802001000062/abstract It causes they same side effects of antipsychotics (antidopamine): "Like cinnarizine, this medication can cause drowsiness, and is ineffective against migraines once they have begun. Flunarizine is also known to cause depression, tardive dyskinesia and parkinsonism in individuals who are predisposed to these conditions, particularly those 55-years-old and older." - http://www.tardivedyskinesia.com/causes/flunarizine.php Basically, the med has anti-seizure quality. Since HPPD brains are pre-seizure, these types of meds can be useful. Keppra is anti-seizure. Klonopin is anti-seizure. Sinemet is not, though Dr A's trial demonstrated how increasing dopamine can (30-50%) help disinhibited (pre-seizure) brains. Survey, Not that it has been well over a year, how are you responding to Flunarizine now? What is your current dose of it and of Keppra? Link to comment Share on other sites More sharing options...
mbellamy09 Posted September 16, 2013 Report Share Posted September 16, 2013 Hm going to see a neurologist tomorrow maybe ill ask or wait until I see the psychiatrist.i really don't wanna do keep par again my memory is awful but i seem to recall some bad side effects.probably wasn't on it long enough idk. This sounds interesting especially at such a low dose. Link to comment Share on other sites More sharing options...
Syntheso Posted September 16, 2013 Report Share Posted September 16, 2013 If anyone wants to give it a whirl and just buy it without going through a doc - http://www.unitedpharmacies-uk.md/product.php?productid=1668&cat=&page=1I might try it in combo with Keppra when that comes through, but not on my list for now. Link to comment Share on other sites More sharing options...
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