University of Sussex, UK, recruiting participants for an online questionnaire

[Simon Sussex]

The University of Sussex, UK, is recruiting participants aged 18 or over to complete an online questionnaire relating to the visual symptoms associated with visual snow syndrome and hallucinogen persisting perception disorder (HPPD). To participate you should experience the visual symptoms associated with visual snow syndrome and/or HPPD. The questionnaire will take approximately one to two hours to complete, depending on the number of questions you answer and the detail of your responses. It will include answering some questions about what visual symptoms you experience alongside on-screen illustrations of those visual symptoms. You will also be asked about how your visual symptoms impact your life. Other questions include those which ask about some aspects of your medical history. The questionnaire must be completed either on a laptop computer, a desktop computer or an iPad.

To complete the questionnaire, please visit: https://universityofsussex.eu.qualtrics.com/jfe/form/SV_blrsONUZAQ19BGZ

Some extras:

- You can complete the questionnaire in more than one sitting so long as you have cookies enabled and return to the same browser on the same computer. Your progress is automatically saved when you continue to a new page within the questionnaire. Your partial responses are saved for one week.

- We are carrying out ongoing research on visual snow syndrome and hallucinogen persisting perception disorder at the University of Sussex. This is the first of a series of questionnaires which will be released over the coming months. It’s really important for our research that we receive a high number of responses, and so I would encourage you to complete this questionnaire if you are able to!

[David S. Kozin]

Hi Everyone. I read through the Informed Consent and sent an e-mail to the study researchers just to verify authenticity and the Lab. 

I will follow up when I receive a response. The extra caution is because of the new account (even if others know about or are participating with the study).

David

For the researchers use per my email: 23011974300

[Jay1]

I've verified this already. 

[David S. Kozin]

Thanks Jay! I encourage participation with the study.  If a tenth of the HPPD members I have spoken to participated,  the sample size would be comparatively large and this would be helpful (at least would not hurt) for getting additional research and large valid sample sizes (in theory) increase the significance of statistical measures. 

- dk

 

 

[Jay1]

I've pinned the post.. come on people, get filling it out!

[MadDoc]

Will do!

Done.

Edited April 19, 2019 by MadDoc
Done

[Guest]

Throughout the past seven years, my efforts to raise awareness and create a medical research team are finally paying off for the Neurosensory Neuroregenerative Research Foundation.

Below is a survey that was created by one of my contacts who seek to help out struggling patient population with a survey specifically designed for HPPD and VS. I encourage everyone to participate and share it as profusely as possible.

 

THIS IS A DESKTOP ONLY PROGRAM!

NO MOBILE DEVICES!

Title: University of Sussex, UK, recruiting participants for an online questionnaire

The University of Sussex, UK, is recruiting participants aged 18 or over to complete an online questionnaire relating to the visual symptoms associated with visual snow syndrome and hallucinogen persisting perception disorder (HPPD). To participate you should experience the visual symptoms associated with visual snow syndrome and/or HPPD.

The questionnaire will take approximately one to two hours to complete, depending on the number of questions you answer and the detail of your responses. It will include answering some questions about what visual symptoms you experience alongside on-screen illustrations of those visual symptoms. You will also be asked about how your visual symptoms impact your life. Other questions include those which ask about some aspects of your medical history. The questionnaire must be completed either on a laptop computer, a desktop computer or an iPad.

You can complete the questionnaire in more than one sitting so long as you have cookies enabled and return to the same browser on the same computer. Your progress is automatically saved when you continue to a new page within the questionnaire. Your partial responses are saved for one week.

The University of Sussex are carrying out ongoing research into visual snow syndrome and HPPD. This is the first of a series of questionnaires which will be released over the coming months. They require a large number of participants for their research and so you are encouraged to complete the questionnaire if you are able to.

To complete the questionnaire, please visit: https://universityofsussex.eu.qualtrics.com/jfe/form/SV_blrsONUZAQ19BGZ 

Facebook:

The University of Sussex, UK, is recruiting participants aged 18 or over to complete an online questionnaire relating to the visual symptoms associated with visual snow syndrome and hallucinogen persisting perception disorder (HPPD). To participate you should experience the visual symptoms associated with visual snow syndrome and/or HPPD. The questionnaire will take approximately one to two hours to complete, depending on the number of questions you answer and the detail of your responses. It will include answering some questions about what visual symptoms you experience alongside on-screen illustrations of those visual symptoms. You will also be asked about how your visual symptoms impact your life. Other questions include those which ask about some aspects of your medical history. The questionnaire must be completed either on a laptop computer, a desktop computer or an iPad.

To complete the questionnaire, please visit: https://universityofsussex.eu.qualtrics.com/jfe/form/SV_blrsONUZAQ19BGZ 

Twitter:

The University of Sussex, UK, is recruiting participants aged 18 or over to complete an online questionnaire relating to the visual symptoms associated with visual snow syndrome and hallucinogen persisting perception disorder (HPPD): https://universityofsussex.eu.qualtrics.com/jfe/form/SV_blrsONUZAQ19BGZ

 

 

[Guest]

Ah I see Simon was the original poster for this thread. Thank you for creating an account and publishing your survey here. I’m confident you’ll get many responses.

[therocknamedwonder]

All finished!

I hope everyone who is able to complete this study takes the opportunity to do so. Here's to hoping it'll lead to future studies on HPPD!

[Simon Sussex]

There's one week left to complete the questionnaire. Please keep the responses coming. Thanks!

[sami]

Great initiative. The questionnaire is really well done!

[Guest]

Any update?

[Simon Sussex]

We will be releasing another questionnaire within the next couple of months. After that, we will look at the results of the two questionnaires together.

[Guest]

Thanks Simon!!!