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Why arnt there professionals working on finding a cure?


Missjess
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Are there any scientists working on finding a cure to this hppd shit? Surely they would have found something by now! The disorder has been around for years

I honestly do believe that there are different types of hppd though like if LSD caused it for someone and a dissociative caused it for another then the cures/treatments would be different that's just my opinion

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Funding. Dr. Abraham did his research without funding (in most if not entirely, or attached it along with a different project). I have two research ideas, but require funding and expensive at probably $150,000/yr for two years. 

 

I plan on a very simple and reasonable way to raise this money, and I hope the community takes advantage of it. Otherwise, money will never go to HPPD because money is limited and frankly they are close to eliminating it from the DSM and we have to push it down their throats. Dr. Abraham saved this entire disorder from elimination in the research area. Dr. Abraham and I worked on research ready to run, but need a little push with money. I can't eat, I need regular job. Instead, I am trying to push forward for a little bit with HPPD and see how it goes. Before I earned my bachelors degree I published four research studies with hard work and luck and changed the DP/DR diagnosis and my work has been cited over 80 times in a few years and it is growing. 

 

We can do this, but only if the community can put a value on research or if they are going to waste that same amount of money on a bottle of supplements that someone tells you will help but will not. I will actually write the post about this tonight.

 

- David

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A large new site that will be adjunt to this and does much more for the projects is under construction but also working. If anyone is interested in paying for a membership, which is not tax deductable but at this point nothing is, that would last for a year of full access as a "Founding Member" which would be carried as a status for the operation of our group company. 

 

We have pledge drives, fundraisers with tickets, donation by text message, online sales and other ways to get funds. I have layed out the basic purpose of the funds, but it will be held in an account at the moment (until this month runs out of hosting.) 

 

The best step is to join and provide your real information and this is going to be hidden and we will have usernames listed along with the others. However, with real address information the system can effectively help you with local events/etc. 

 

Text RECRUIT to +17474002617 to join or Text RECRUIT to+17349842496 to join

 

Then goto http://www.kozinfoundation.org/membership for the basic membership plans that are far from being fleshed out, but it will be equitable at the end.

Or goto: https://hppd.nationbuilder.com/donate to provide any amount.

 

As far as where the money goes... I can say that the research I did under "NODID" for DP/DR os stated as 0.00 funding provided and a huge undertaking at no cost. The original diagnostic criteria for Depersonalization Disorder did not include options for Derealization and only had one symptom, we used an instrument to show that specific patterns exist that form the other symptom groups. Now it is a dimensional and multiple diagnostic questions to undergo.

 

 

The system I am using we use with political candidates and the system is protected for obvious reasons. 

 

- David

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I am creating a page for members that pay the details of how the money is spent. For members to review, the basic information will be published on the web site, but to access the accounting system requires additional work. 

 

Additionally, different specifications can be made for different types of donations. This is what we are all thinking about as a group. I have received 10 strong leads for individuals to participate and two donations from early adopters. 

 

- David

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i wonder if it would help get funding if it was part of a study into general persisting perception disorders, such as ptsd, landsickness, post viral/post toxic syndromes etc, each of which has more obvious interest groups which may be willing to back a study, upon which us poorly-supported druggies can piggyback.

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Yes, why I am trying to get the visual snow community and the other similar disorder groups on board. Why the site will not be called Hallucinogen anything.... because many drugs, not just hallucinogens, cause this problem.

 

We can't ignore a reality, but part of that reality is good research may find no significant difference between all of our groups.

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There may be a temptation to over-emphasise the visual aspect of hppd when looking for similar pathology groups.  Personally my visual symptoms are minimal and my symptom picture has more in common with landsickness than sufferers of dpdr or vs, whereas others here are clearly much more visually disturbed and so have more overlap with these groups, and others more emotionally disturbed so more in common with ptsd.

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