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Is this foundation still in existence?

Who are the board of directors?

Have they awarded any grants in the last two years? Seems like most recognized conditions are backed by a reputable non profit and/or research foundation. To truly make waves, we need this type of backing because with it comes credibility and with credibility comes fundraising.

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  • 2 weeks later...

One way would be to reach out to parent/teacher associations by sending them a media kit on the condition, maybe a DVD or youtube link to play in classrooms. Nobody cares about us now but in the process of getting the word out for the sake of prevention, more people will be aware of it and when it does happen to someone new, people will be able to tell and see the signs. Awareness brings change and that is what we need. Science is only motivated by money by parents are not.

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