disguyhere Posted December 16, 2013 Report Share Posted December 16, 2013 just putting this out there .. probably mostly because im riding the tail end of a series of bad days myself.. but i was thinking it could be helpful for us here who have some really bad days (series of days..etc..) if we could set up a kind of emergency support group.. like if anyone is interested, share contact info in private among a group of us where if one of us is having a bad time dealing we could get ahold of someone else in the group just to have someone to talk it out with. sometimes friends and family are no help at all and i lose sight of any kind of positivity because i have nobody who can relate to how low im feeling.. and those moments are the ones that are most dangerous to people who experience frequent..ermm.. suicidal thoughts and shit.. even just knowing you have someone you can talk to can help as much as actually talking to them. anyways, i dont know how much traction this idea would have, but im putting it out there because i know there were times it could have helped me get out of a funk sooner. if anyone is interested, before we share any contact info let's see how much interest we have and see if we can set up a good way to handle it.. i figure something like this is also helpful, if we know one of us is having a hard time, and all of a sudden drops of the face of the earth, we have ways of contacting each other to try to reach out to them before something bad comes out of it.. anyways let me know what you guys think. 3 Link to comment Share on other sites More sharing options...
Sam93 Posted December 22, 2013 Report Share Posted December 22, 2013 I think that would be awesome, I'd love to get someone's contact info just so whenever you're having a shit time of it you could fire over a text and just talk to someone who really knows what you're going through I'm in England though and I believe most of the forum members are either in the Americas, Australia or Continental Europe. 1 Link to comment Share on other sites More sharing options...
alice-acid Posted December 30, 2013 Report Share Posted December 30, 2013 sounds like a great idea! could have used that over the last few weeks haha. too much alcohol over the christmas period has caused a complete flare up in my symptoms that i had genuinely thought i had escaped forever 1 Link to comment Share on other sites More sharing options...
Puppeteer Posted December 31, 2013 Report Share Posted December 31, 2013 I'd probably be interested. There's something nice about having someone to talk to in real time who knows exactly what you're going through; everyone else I know is about 5000x more happy and functional than I am and it makes it very difficult to feel like you're on the same page about anything. Forum interaction is convenient but very detached; most things posted are to a general audience, deal specifically with HPPD and related issues, and are thoroughly filtered and edited. Makes it difficult to feel the warmth of human-to-human interaction and whatnot. That said, I don't think having HPPD isn't quite enough for two people to get along... If anything it might make conflicting personalities clash even more! Guess we'll see how we go though, ha. Feel free to add my Skype: rockuran. Maybe I'll finally have a reason to use it once in a while Also, really sorry to hear that Alice . Can I ask to what extent you feel your symptoms had remissed, and which ones have flared back up? At any rate, it's nice to see an old face around here - if only it were under better circumstances. Link to comment Share on other sites More sharing options...
alice-acid Posted January 2, 2014 Report Share Posted January 2, 2014 The anxiety is the main concern, and the weird feeling that my tongue has disappeared/blended into my teeth. That was always an odd one and not very common Plus then afew of the usual acid style wiggly lines and palinopsia, trails, starbursts :/ It's not the end of the world though it's fairly mild right now it just scared the shit out of me for afew days haha. Hope you're all good! Link to comment Share on other sites More sharing options...
Hppdsince1974 Posted January 3, 2014 Report Share Posted January 3, 2014 Alice - interesting that you have the weird mouth sensations. I used to get those too, but more like my mouth was a huge cavern, and my tongue on my teeth felt "monstrous" in a way that I can't describe. Stay clean, get better Link to comment Share on other sites More sharing options...
Hppdsince1974 Posted January 3, 2014 Report Share Posted January 3, 2014 I'd probably be interested. There's something nice about having someone to talk to in real time who knows exactly what you're going through; What about (gag) a google+ group? I would do it with a special pseudonym identity given how snooped everything is on google ... Link to comment Share on other sites More sharing options...
brake Posted January 8, 2014 Report Share Posted January 8, 2014 The chatroom is great when people actually go on it lol. Do you guys have facebook? Link to comment Share on other sites More sharing options...
onedayillsailagain Posted January 8, 2014 Report Share Posted January 8, 2014 IRC channel?edit: the tongue thing is horrible. A foreign serpent with a life of it's own, whilst my teeth feel like they swim in my mouth. Link to comment Share on other sites More sharing options...
disguyhere Posted January 8, 2014 Author Report Share Posted January 8, 2014 i like the idea of a google group since most people have a gmail account and are members of g+ by proxy.. facebook i'll never touch in my life Link to comment Share on other sites More sharing options...
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