bpl4269 Posted December 6, 2013 Report Share Posted December 6, 2013 So, as of late, my antibiotics have stopped working correctly to keep my lyme disease at bay and Ive noticed a rise in hppd symptomology. My tracers have gotten worse, wobbling edges are much more pronounced, starbursting slightly increased, and Ive noticed a slight bit of morphing coming back. Im fucking depressed to say the least. Im supposed to get a script for a new antibiotic today and Im nervous as all hell. I really hope it works and my symptoms clear up, because I dont know if I can cope with this stress any longer. Wanting to kill yourself everyday is certainly no way to live and ive been taking a bit of klonopin for the past few days to get me through this rough patch. Well, that brings me to my next point. I am certain that lyme disease made me extremely prone to this condition as it causes inflammation in the occipital lobe which is the area that is hypothesized to be incorrectly functioning thus causing hppd. I think that is also why my symptoms seem to improve with zero drug use. This is because I probably was never genetically predisposed to hppd. The inflammation to the occipital lobe caused by lyme is also why I think my hppd is presently worsened. Any thoughts? Comments? Link to comment Share on other sites More sharing options...
VisualDude Posted December 7, 2013 Report Share Posted December 7, 2013 The Lyme's bacteria hides in neurological tissues, which makes it harder than usual for the immune system to resolve. Being in neurological places causes neurological injury and thus any sort of neurological problems. Lyme's disease can "imitate" nearly any neurological disease - MS, PD, ... So your HPPD may be from Lymes ... but, did your HPPD start after recreational drug use? What antibiotic(s) have you been using? Doxycycline is commonly used. It also affects dopamine systems - something implicated in HPPD. There are some antibiotics that tend to cause excitotoxity - which can cause problems. Note: you will notice there are some of these forums who got HPPD solely from antibiotics. While this sort of problem from antibiotics is rare, the fact that antibiotics can alter brain function can help you understand why you notice changes with and without taking them. Given that you have Lymes, it is imperative that you get ride of it - which requires antibiotics. What you will want to do is find stuff the calms the brain to compensate for things that both Lymes and antibiotics may be doing. Your observation about inflammation is insightful. Technically, inflammation involves increase metabolic activity at its location. Excitotoxicty IS increase metabolic activity. And HPPD brains are already overactive ("cerebral disinhibition"). Hope this helps... Link to comment Share on other sites More sharing options...
bpl4269 Posted December 10, 2013 Author Report Share Posted December 10, 2013 So, I started taking curcumin and NAC with my newly prescribed antibiotic and I already see improvement within a day! So glad that this stressful month is over. Link to comment Share on other sites More sharing options...
brendan Posted January 7, 2014 Report Share Posted January 7, 2014 try nattokinase for lyme? Link to comment Share on other sites More sharing options...
cherub96 Posted January 20, 2014 Report Share Posted January 20, 2014 What was your treatment protocol so far?I had Lyme disease (long AFTER I got HPPD) and it went away after a week of Rocephin i.v. I didn't have neuroborreliosis, though. Check this out: http://lymemd.blogspot.com/2009/06/life-after-rocephin.html Link to comment Share on other sites More sharing options...
Hppdsince1974 Posted January 21, 2014 Report Share Posted January 21, 2014 My HPPD symptoms would always get worse if my immune system was compromised - a cold, flu, etc. Doesn't mean the Lymes isn't somehow involved for you, but just saying I experienced more noticeable symptoms with other illnesses too. Link to comment Share on other sites More sharing options...
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