mbellamy09 Posted November 22, 2013 Report Share Posted November 22, 2013 Well I went and saw my neurologist today and he said he researched depersonalization and stuff and wanted to start me out on lamictal. I actually never heard of it so like with all medicines I searched for it in here and seems promising so I'm gonna start it when I wake up. I've noticed a couple people say visuals got worse while on it, I was wondering if that was permanent or it went away when you stopped? Link to comment Share on other sites More sharing options...
wooshka Posted November 22, 2013 Report Share Posted November 22, 2013 I believe they desist with discontinuation of the medication. Link to comment Share on other sites More sharing options...
mbellamy09 Posted November 23, 2013 Author Report Share Posted November 23, 2013 Ok.well started today and obviously nothing to noticeable. I will say I have felt more detached today but I have also been up in my room playing my new xbox one all day. Link to comment Share on other sites More sharing options...
mbellamy09 Posted November 24, 2013 Author Report Share Posted November 24, 2013 Anyone who has taken this have you gotten headaches with this or any other side effects? Is it like a power through it type of thing and they go away? Link to comment Share on other sites More sharing options...
Puppeteer Posted November 24, 2013 Report Share Posted November 24, 2013 what dose have you started at? do you know what cruising dose you're aiming for? i'm on it currently and can't say much is happening, but it's only been a couple of months and everyone's different. i didn't experience headaches but it's definitely a fairly common side effect after starting/changing dose which in most cases goes away, so unless it gets really unbearable i'd say power through. I've seen it mentioned here and there that folic acid supplementation can help with lamotrigine side effects, so you could give that a shot! I'm thinking of picking some up. Good luck man! Link to comment Share on other sites More sharing options...
mbellamy09 Posted November 24, 2013 Author Report Share Posted November 24, 2013 I only started at 25mg it's only been two days but I notice some change not exactly sure what though. Sometimes I think I feel more clear and then others I feel more in a dreamlike state. He wants me at 100mg Link to comment Share on other sites More sharing options...
mbellamy09 Posted November 24, 2013 Author Report Share Posted November 24, 2013 I have a hard time knowing what day it is.i used to look forward to football Sunday every week with my dad and now I don't even feel its Sunday. Make sense to anyone? Link to comment Share on other sites More sharing options...
Puppeteer Posted November 24, 2013 Report Share Posted November 24, 2013 As a possible Lamictal side effect or an HPPD symptom? Link to comment Share on other sites More sharing options...
mbellamy09 Posted November 24, 2013 Author Report Share Posted November 24, 2013 Both I guess I noticed it before starting lamictal but think it might be a little worse now.also when I look back and forth between two thing each one looks new whenever I see it. I find its hard to describe especially in person.makes it hard to text etc. and just annoying Link to comment Share on other sites More sharing options...
mbellamy09 Posted November 27, 2013 Author Report Share Posted November 27, 2013 Only day 5 and have mixed results. Snow is a little worse along with after images. Sometimes my fogginess,dp/dr is worse and then there are a few minutes of clarity. Also have sharp headaches. Gotta keep taking it to see if those get better. Link to comment Share on other sites More sharing options...
mbellamy09 Posted December 2, 2013 Author Report Share Posted December 2, 2013 Well only on day 10 and last night was the worst night I can remember with hppd. My snow and after images have been getting worse as well. Closed eye visuals are getting more real and starting to hear things. Feel like I should keep taking it but getting worse by the day Link to comment Share on other sites More sharing options...
Puppeteer Posted December 2, 2013 Report Share Posted December 2, 2013 Are those things which you've experienced before on your "worst days", or do you think they're definitely due to Lamictal? Are you experiencing them in addition to the other stuff you noted is worse? And are you experiencing anything better? The fact is that there's just no way to know whether one drug that's helped others is going to help you or not, or indeed whether it'll make things worse. I know one person on here said that his visual snow got worse with Lamictal, but that was after taking a very high dose of 600mg for quite a while, I believe. What doesn't help is that there's no definite length of time or definite dose at which you'll know for sure that it's gonna help or not. I've seen people on dpselfhelp say that it took them a few months, that they only really noticed anything at 350mg, etc. It's a gamble. There's the chance that if you're already feeling bad at this dose, higher doses will only make that worse, and taking a month to reach that upper dose only to find that out and have to come off it will suck. But maybe all the shit will subside as you adjust and you will benefit. Maybe after a few months things will start to look up, or maybe you'll just be a few months down the track and exactly the same. At least you'd know for sure that something isn't for you, and be confident moving on to something else. It's really only very early days for you though, dude. Unless you reach the point that you feel really, really awful and just unable to go on, or symptoms are definitely noticeably exacerbated, i'd say just do your best to take it easy, wait and see. Link to comment Share on other sites More sharing options...
mbellamy09 Posted December 2, 2013 Author Report Share Posted December 2, 2013 Are those things which you've experienced before on your "worst days", or do you think they're definitely due to Lamictal? Are you experiencing them in addition to the other stuff you noted is worse? And are you experiencing anything better? The fact is that there's just no way to know whether one drug that's helped others is going to help you or not, or indeed whether it'll make things worse. I know one person on here said that his visual snow got worse with Lamictal, but that was after taking a very high dose of 600mg for quite a while, I believe. What doesn't help is that there's no definite length of time or definite dose at which you'll know for sure that it's gonna help or not. I've seen people on dpselfhelp say that it took them a few months, that they only really noticed anything at 350mg, etc. It's a gamble. There's the chance that if you're already feeling bad at this dose, higher doses will only make that worse, and taking a month to reach that upper dose only to find that out and have to come off it will suck. But maybe all the shit will subside as you adjust and you will benefit. Maybe after a few months things will start to look up, or maybe you'll just be a few months down the track and exactly the same. At least you'd know for sure that something isn't for you, and be confident moving on to something else. It's really only very early days for you though, dude. Unless you reach the point that you feel really, really awful and just unable to go on, or symptoms are definitely noticeably exacerbated, i'd say just do your best to take it easy, wait and see. I can say for sure things started getting worse when I started the lamictal. I haven't read anything to suggest if I keep taking it hppd symptoms will get better. The headaches probably would Link to comment Share on other sites More sharing options...
Puppeteer Posted December 3, 2013 Report Share Posted December 3, 2013 well at your next neuro appointment explain that things have gotten much worse to the point that they're not tolerable and that it would be significantly unpleasant and difficult for you to wait out a month or more for it to work, and request to try something different, I suppose. might be a good opportunity to request a keppra trial. Link to comment Share on other sites More sharing options...
mbellamy09 Posted December 6, 2013 Author Report Share Posted December 6, 2013 Well I don't have a scheduled appointment for awhile now he told me stop just if I see a skin rash. Just upped it to 50mg a day to see if it gets better or worse with higher dose. If it gets worse ill call and ask how to get off of it safely Link to comment Share on other sites More sharing options...
mbellamy09 Posted December 7, 2013 Author Report Share Posted December 7, 2013 I have also noticed when I take it I have some pretty bad mood swings and get angrier a lot easier Link to comment Share on other sites More sharing options...
mbellamy09 Posted December 13, 2013 Author Report Share Posted December 13, 2013 Going to see neurologist next Wednesday and will ask for flunarizine again. Any other medicines besides lamictal as I'm still concerned with the snow and after images getting worse. I feel in short instances I do feel better but not entirely sure Link to comment Share on other sites More sharing options...
StateOfRegret Posted February 17, 2014 Report Share Posted February 17, 2014 Hi mbellamy09! How are you doing? And what are you up to medication wise? Link to comment Share on other sites More sharing options...
Missjess Posted April 16, 2014 Report Share Posted April 16, 2014 Hey I wud rlly love to hear if u got better or stayed bad from lamictal...I'm currently on it and I tried to up my dose but my visuals got worse I'm trying to decide whether to stay on it or not Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now