Jump to content

Recommended Posts

Hello!

I can't believe I've been having HPPD for 1,5 years and never even thought of googling whether there's a specialist in Holland. And I never really did. I just did a search on 'hppd'... Via a Dutch bodybuilding forum I got linked to the "drugsinfoteam".
Seriously! That I didn't think of it before! I feel so stupid.

Anyway, apparantly there's a "Medical Consultation Hour for Partydrugs".
I've translated the text to English, please read the second quotes for English.

 

INFO MEDISCH SPREEKUUR PARTYDRUGS

Regelmatig kloppen er mensen aan bij Brijder Verslavingszorg die hardnekkige, medische klachten hebben na gebruik van drugs (inclusief partydrugs en blowen). Brijder verslavingszorg startte daarom enkele jaren geleden een landelijk medisch spreekuur in Haarlem. De behandeling is in veel gevallen succesvol.

Klachten door partydrugs

Veel door drugs veroorzaakte klachten gaan vanzelf voorbij. Dit is echter niet altijd het geval. In ernstige gevallen kunnen de klachten zelfs jaren duren. Medische en/of psychische behandeling is dan noodzakelijk.

XTC is meestal de aanleiding voor het ontstaan van de klachten, maar alle hallucinogenen (paddo's, cannabis, LSD) kunnen het veroorzaken. Meestal is er een bad-trip aan voorafgegaan en meestal zijn er meerdere middelen tegelijk gebruikt.

Voorbeelden van dit soort klachten zijn: angst, paniek, depressie, gevoel dat de wereld "vreemd" is (derealisatie), gevoel alsof je je eigen lichaam als vreemd ervaart (depersonalisatie) en HPPD. Dit betekent Hallucinogen Persisting Perception Disorder en staat voor problemen bij het zien: visual snow ( sneeuwbeelden), nabeelden, trillende beelden en floaters zien zijn voorbeelden die storend kunen zijn. Verder komt voor: slechte concentratie en verminderd geheugen, klachten in het hoofd (schokken, duizelingen, gevoel dat de hersens schrompelen, gevoel dat er lucht in je hoofd zit). Men heeft last van vermoeidheid. Soms wordt genoemd: minder gevoel in de huid (gevoel van tweede huid waardoor je minder gevoel hebt), kramp in de spieren, trillingen, en stijfheid.


Translation:

INFO MEDical consultation hour PARTYDRUGS

Frequently people knock on the door at Brijder Addiction Care, who have severe medical issues after using drugs (partydrugs and weed included). Brijder Addiction Care began having national medical consultation hours in Haarlem because of this. The treatment is succesful in many cases.

Complaints caused by partydrugs

Many drug-induced complaints dissipate over time. However this is not always the case. In severe cases the problems can last for years. Medical and/or psychic treatment is then necessary. XTC is usually the catalyst for the acquiring of these complaints, but all hallucinogens (mushrooms, cannabis, LSD) can cause this. Usually a bad-trip initiated the acquiring of these complaints, and usually several drugs have been used simultanuously. Examples of these complaints are: fear, panic, depression, feeling the world is "strange" (derealization), feeling as if your own body is strange (depersonalization), and HPPD. This means Hallucinogen Persisting Perception Disorder, and encompasses visual problems: visual snow (snow images), after-images, vibrating images, and seeing floaters, are examples that can be troublesome. Other symptoms that are common include: bad concentration and lessened memory, complaints in the head (shakes, vertigo, feeling the brains are shriveling, feeling there's air in your head). Fatigue is also common. Sometimes people report: less feeling of the skin (feeling of a second skin causing less feeling), muscle cramps, tremors and stiffness.

 

 

 

 

 

The following is quoted from: http://www.drugsinfoteam.nl/drugsinfo/xtc/xtc-depressie/

Problemen met zicht

Er zijn meldingen van gebruikers die langdurig last houden van afwijkingen bij het zien (HPPD). Zij zien zeer storende afwijkingen in kleur, vorm, beweging, contrast, bewegende deeltjes in je beeld enzovoort. Er zijn enkele aanwijzingen dat mensen met 'bad trips' meer kans hebben op ontstaan van deze verschijnselen. Er is nog veel onbekend over de mate waarin deze afwijkingen optreden en de omstandigheden waaronder dit gebeurt. Medische behandeling is mogelijk, maar veel artsen herkennen deze aandoening niet.


Translation:
 

Problems with vision

There are reports of (drug)users who experience lengthy distortions of their vision (HPPD). They see very troublesome distortions in color, shape, movement, contrast, moving parts in their visual field, etc. There are few clues that people with "bad-trips" are more prone to acquiring these distortions. Up to date there is not much known about the magnitude of which these abnormalities occur and the conditions in which these happen. Medical treatment is possible, but many doctors don't recognize this disorder.




Again.. How the hell did I overlook this? What? Does not compute. Well I found it now, right?!
Anyway I'm glad to find that there is some sort of "expertise" with HPPD in this country.
I'll be making a phonecall soon, and see if I can make an appointment. 
Feeling somewhat releived to know this, albeit not knowing the extent of there helpfulness yet.
At least there are people who have experience with HPPD!!! My day can't get any better.
I hope that by posting this, current, and future HPPD sufferers in the Netherlands (and surrounding countries perhaps) will be able to get acute help with their HPPD.

May you all be well :)

  • Upvote 1
Link to post
Share on other sites
  • 4 years later...

I know this topic is old but I would like to see if you ever got in Contact with this doctor and if amy medication was given to you and has it helped you?
I'm living not far from the netherlands and I would gladly travel to meet a doctor that is familiar with this condition and can offer help.

I've had HPPD symptoms for about 8 months and it's getting a lot better. However I'm hoping that maybe medication could give me a boost in the recovery process.

Link to post
Share on other sites
  • 2 weeks later...
  • 5 months later...
  • 5 weeks later...

Sorry for reviving this old topic, but I've had phone contact with this docter and I think he is really helpful for people that are unknown with this condition.

He does have good knowledge and can help you if you're not fully known with the disorder. Even though I read a lot of information on this forum, he still made me feel relieved because he understood my symptoms and calmed me down.

It's good to see a docter focusing on this, as it brings light to this disorder.

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Similar Content

    • By facesofhppd.com
      June 11, 2019 
      SUBJ: Faces of HPPD Survey/Research Published – RESULTS!
      Dear HPPD Online Community:
      As a mom with a grown son with HPPD, I was so fortunate to come across this forum several years ago for information and support.  David Kozin, who runs this board, is an amazing man to have created and maintained this website and kept up his work/studies over the years – all the while suffering with HPPD.  I would like to thank him for this platform, and well as thank those of you who participated in the survey that I launched four years ago to collect data about individuals who had received an official diagnosis of the disorder.  
      Fast forward…. Here it is June 2019.  Long overdue for the published report, however, I lingered – always hoping to gain a larger sample of subjects.
      I am fortunate to have a PhD in psychology, experience in research, and a heart to try to make a difference. Instead of publishing a book, it only made sense to get the results in the hands of the scientists and medical professionals through scientific writing. I am so happy to tell you… the peer-reviewed medical journal, Addictive Disorders & Their Treatment, published by Wolters Kluwer publishers, has reviewed and accepted my manuscript for publication in an upcoming issue.  Last week the article completed rounds of publication editing and formatting.  The article is posted at their website for advance release.  
      Lewis, DM, Faces of HPPD: Hallucinogen Persisting Perception Disorder Patient Survey Results and a Descriptive Analysis of Patient Demographics, Medical Background, Drug Use History, Symptoms, and Treatments.  Addictive Disorders and their Treatments. Forthcoming 2019. 
      The link is here: https://journals.lww.com/addictiondisorders/Abstract/publishahead/FACES_OF_HPPD__Hallucinogen_Persisting_Perception.99733.aspx     
      (NOTE:  This direct link will change probably in a month or two when the article is given a print-issue date – right now, it is advance copy, undated.  In the future, you can search the article at https://journals.lww.com/addictiondisorders/ .
      While the article is available for immediate download, many of you know that publishers charge money for copy downloads (this one is $49), and authors cannot give away their copy. This, I know, is not a good thing for some within the community who do not have the funds.
      However (here’s the good news 😉), I contacted the publisher and obtained permission to publish a summary of the results (the important data!) and I created an infographic that provides you all the results.  I am including it here as a .pdf file, attached. It’s reader-friendly, and I hope it provides insight.
      I want to mention some findings that particularly concern me:  the high rate of suicide ideation (among other co-morbid psychological/psychiatric symptoms reported), and the significant number of individuals who reported being unable to work due to HPPD.  I feel strongly that HPPD needs recognition as potentially disabling – and I believe there are some individuals who may need government assistance (eg, Social Security Disability benefits).  My future work leads me in the direction of carving a path for HPPD as a qualifying mental disorder for eligibility for assistance. I will keep you posted on that.
      Again, thank you so very much for those who partook in the survey.  
      My best wishes to each of you for good health and peace of mind, 
      Doreen M. Lewis, PhD
      https://www.facesofhppd.com
      https://www.vellichorresearch.com 


      Faces of HPPD Infographic - LEWIS.pdf
    • By therocknamedwonder
      Has anyone had any positive effects OR negative effects with kratom or valerian? Specifically red vein kratom.
      Does taking either of these plants affect your HPPD? In what way? Thank you! 🙂
    • By David S. Kozin
      I will be live streaming my Trip to the doctor and if I am not violating a law, get real time good or bad news about sleep study and watch how amazing Dr. Baker is with managing HPPD and ADHD. 
      - David
       
       
       
       
    • By thelostreceptor
      ----- This post is especially important for the Dutch guys out here on the forum -----
      Recently I received a mail from Brijder Jeugd (rehab center) where they tell about a new upcoming research by a neurological department from a medical center about visual snow sufferers, and they're looking for people that want to participe in the research. This could be another opportunity to shred some light on the visual snow and HPPD. The research is targeted for Dutch people but I wouldn't hesitate contacting them in English if you're interested in the research. You can reach them by sending an e-mail to the address below:
      visualsnowonderzoek@lumc.nl
      If you're interested about the medical center, you can visit their website with the link below:
      Leiden University Medical Center
      https://www.lumc.nl/?setlanguage=English
       
      Thanks for your time
      Note: I'm not related to the LUMC in any way
    • By Andando
      I have had HPPD for 15 years, 
      I am much better now than when it started, I have tried so many natural and psychological techniques that I feel its the right time to test if certain Medical treatment could work.
      My main symptoms are now anxiety, depression, heavy brainfog, visual snow, problems reading - writing, focusing and depersonalisation sometimes.
      I have found a neurologist in the city of Barcelona where I live, and I will like to ask you guys for a favour before I meet him:
      is there is an order for which meds are to be tried first?
      which meds in your view have been the most successful in treating some symptoms?.is there a page with these things online?
      I tried a low dose of diazepam and the day after my symptoms where very high again so I stopped, same thing with an antidepressant.
      Having said all of this I will like to share some hopeful news too:  I have been fortunate to have had days with almost no symptoms, have traveled extensively, managed to finish my BA in fine arts, lived in various countries, got my drivers license, can now read (even though i get confused sometimes), I can hold conversations much better (less DP), at the beginning of this disorder my life was very very miserable now its a lot better.
      Thank you for reading.
       
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.