rafiki Posted November 13, 2012 Report Share Posted November 13, 2012 I spotted this article on the BBC News website earlier: http://www.bbc.co.uk/news/health-20297386 With suggested links between epilepsy and HPPD this looks promising to my untrained eyes! We'll have to wait a few years and see. Link to comment Share on other sites More sharing options...
David S. Kozin Posted November 13, 2012 Report Share Posted November 13, 2012 This avenue of research has merit. I will see the original paper, I knew this technique was under investigation with seizures. It is an excellent find by both users who posted it today. We have a friend in Gene Therapy research connected to Hallucinogen research. Also, one of the most accomplished MD/PhD/MBAs I can think of who you would never guess by their modesty. (They have an MD, PhD & MBA from schools Stanford, Harvard, MIT-Sloan.) He visited the web site. Did I mention our friend in cause is a Global Executive for major pharmaceutical company? Was CMO at Genzyme? Even to get thoughts on use for HPPD would be very valuable and convincing to me because he knows both worlds. Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted November 13, 2012 Report Share Posted November 13, 2012 Yeah this is very promising in the last 20 years medical science seems to have come on so much and in the next 20 years who knows what we will have cured hopefully hppd will be on of them and hopefully it will be sooner rather than later Link to comment Share on other sites More sharing options...
rafiki Posted November 15, 2012 Author Report Share Posted November 15, 2012 This avenue of research has merit. I will see the original paper, I knew this technique was under investigation with seizures. It is an excellent find by both users who posted it today. We have a friend in Gene Therapy research connected to Hallucinogen research. Also, one of the most accomplished MD/PhD/MBAs I can think of who you would never guess by their modesty. (They have an MD, PhD & MBA from schools Stanford, Harvard, MIT-Sloan.) He visited the web site. Did I mention our friend in cause is a Global Executive for major pharmaceutical company? Was CMO at Genzyme? Even to get thoughts on use for HPPD would be very valuable and convincing to me because he knows both worlds. Sorry if I re-posted it, I didn't spot it anywhere else. That's fantastic to have a gene therapy specialists on board. I personally can't see beyond gene therapy as a treatment - I find medication to be counter productive, particularly to a group of people with pre-existing addictive (and sometimes compulsive) personalities. The sooner it becomes mainstream in human medicine the better. I get a feeling that's not going to happen for another decade or two though. Link to comment Share on other sites More sharing options...
Guest Posted November 15, 2012 Report Share Posted November 15, 2012 What makes you so sure we have at least a decade to go before we see some form of help? Isn't medicine making leaps and bounds that regulators can't seem to keep up? Link to comment Share on other sites More sharing options...
rafiki Posted November 16, 2012 Author Report Share Posted November 16, 2012 What makes you so sure we have at least a decade to go before we see some form of help? Isn't medicine making leaps and bounds that regulators can't seem to keep up? Drug companies are much more intersted in profit and avoiding liability than in actually treating our condition. The testing process for any medical treatment is arduous, and clinical trials in humans only happen for a tiny percentage of all drugs discovered. Link to comment Share on other sites More sharing options...
Jay1 Posted November 16, 2012 Report Share Posted November 16, 2012 David, how long do these sort of things tend to take to get to market .... from this early stage of testing on labrats and first public reports to actually being able to get them prescribed? 5 years, 10 years.... impossible to say? Link to comment Share on other sites More sharing options...
Guest Posted November 16, 2012 Report Share Posted November 16, 2012 What about fast tracking orphan drugs, procedures, etc? Link to comment Share on other sites More sharing options...
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