Sammywalker2009 Posted November 10, 2012 Report Share Posted November 10, 2012 ok so I have emailed my local hospitals to save going to london for the time being then if i get nowhere locally I'll go to london and see if i can see a doctor at kings or somewhere privately as I have recently found out I have private health cover. But basically I have told to get referred to a neurologist who specialises in headaches or an opthamologist with some neurology experience I am wondering who would be the best one to go with and who might be more likely to know of visual snow and prescribe me drugs to treat it. any help advice much appreciated as always guys Link to comment Share on other sites More sharing options...
jaydog89 Posted November 10, 2012 Report Share Posted November 10, 2012 Hi Sammy I had previously read your introduction piece. I don't have a correct answer for you but just relating to my case. You can read it in the introductions. I went to see my local GP and he has referred me to a opthamologist, got an appointment 17th dec. Then he said if that all comes back clear, he will refer me to a neurologist and possibly suggested some CBT from a psychologist. I have kind of the same symptoms as you, with the DP/DR from anxiety being the worst I get these days. I have kind of gotten used to my HPPD if thats even possible, but obviously theres good days and bad days. Light sensitivity is a real pain thou. I would suggest going to the opthamologist first to clear the fact there's nothing wrong with your eyes. So when you go to another neurologist, if they question you on possible eye problems you will be able to show you've already checked that hope this helps Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted November 10, 2012 Author Report Share Posted November 10, 2012 Yeah for me it's mainly the light sensitivity and visual snow and that causes me anxiety and slight dr but I definitely feel if I got rid of te visuals the dr would fade away completely the tinnitus though I think I may be stuck with thanks a lot for the advice though I'll probably go do that see the opthamologist with neuro exp. Hope yours works out well for you Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted November 10, 2012 Author Report Share Posted November 10, 2012 Yeah for me it's mainly the light sensitivity and visual snow and that causes me anxiety and slight dr but I definitely feel if I got rid of te visuals the dr would fade away completely the tinnitus though I think I may be stuck with thanks a lot for the advice though I'll probably go do that see the opthamologist with neuro exp. Hope yours works out well for you Link to comment Share on other sites More sharing options...
cs1234 Posted November 10, 2012 Report Share Posted November 10, 2012 I wish I could help you more but from what I've read on this board all doctors are pretty inconsistent with their knowledge of HPPD/visual snow. My dad, an ophthalmologist and eye surgeon, has no knlowledge of visual snow. However, a GP who specializes in the treatment of viruses was the one who diagnosed me with anxiety/visual snow/HPPD (actually I really don't what exactly he diagnosed me with haha, the point is she recognized this strange phenomena) and prescribed me klonopin and atarax. You might need to see multiple doctors before one of them recognizes and understands the problem. From MY PERSONAL experience I'd say just to go find a new GP that won't be sending you to neurologists for verification, BUT others have had luck with those neurologists. Even if your doc doesn't believe in HPPD, symptoms of HPPD like anxiety and insomnia (especially combined) can still warrant an anxiety medication script. And if you just want something for DP/DR, I would think that would be easily obtainable by just complaining about DP/DR. Out of your two choices, I'd see the neurologist because I would think neurologists would be the doctors that would be more knowledgable about drugs causing permanent strange activity in the brain. However, if the ophthalmologist also has neurology experience, it probably wouldn't matter that much who you decided to go to. At the same time, "I would suggest going to the opthamologist first to clear the fact there's nothing wrong with your eyes. So when you go to another neurologist, if they question you on possible eye problems you will be able to show you've already checked that" this is a very good point. All in all, I'm sorry I'm giving you a very mixed and unclear response, but I don't really know too much about doctors in the UK. From what I've heard, benzos are hard to get over there if that's what you're trying to get. If that's the case then you should just try hydroxizine first (i think its otc over there) as it helped me a lot. If you do get a benzo script, you'll probably end up abusing it or become physically dependent on it unless you have the will of steel haha. Good luck man. Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted November 10, 2012 Author Report Share Posted November 10, 2012 Cheers dude if I got benzos I'd probably keep them for only rare use for special occasions last thing I need is some shit from another drug I'd say I can be strong willed I didn't drink for 8 months haha that took some will power I can tell ya what I really wanna try is keppra and a few other drugs I've heard may help Link to comment Share on other sites More sharing options...
mgrade Posted November 11, 2012 Report Share Posted November 11, 2012 yea, eye doctors are clueless. But if you can, it may pay to rule that part out first, by going to one. Once that is ruled out, you have to decide what is your goal. It could be getting prescribed medication such as keppra or gabapentin [and possibly an AD] or getting prescribed AD's as well as other meds. So, respectively, you could go to a general practioner or a psychopharmacologist. A psychopharm and a neuropsychiatrist are sort of the same thing. A plain neurologist could also be an interesting thing in that you could fake some sort of neuropathic pain and get maybe gabapentin or lyrica or something. But there is a guy named Chris here that was in duress and i found a [what seems to be] really good neuropsychiatrist. http://www.michaeltrimble.co.uk/ Dr. Trimble. I guess its possible though that he is an arrogant shithead who would rather give you shock treatment, but the guy certainly seems well-versed. [My only concern is how easy it was to find him.....i'll let you be the judge]. 1 Link to comment Share on other sites More sharing options...
cs1234 Posted November 11, 2012 Report Share Posted November 11, 2012 Cheers dude if I got benzos I'd probably keep them for only rare use for special occasions last thing I need is some shit from another drug I'd say I can be strong willed I didn't drink for 8 months haha that took some will power I can tell ya what I really wanna try is keppra and a few other drugs I've heard may help I have to admit I have a pretty shitty willpower, but when I got prescribed klonopin it very quickly became one of my DOCs...I'm sure you can handle it but I'm just saying that stuff is powerfully addictive, especially if you have anxiety or dpdr. I don't take it as prescribed, but I do take it as much as I can before one would hit WDs. I'm scared one of these days I'll cross that line. Like I said, I'm sure you can handle it but just be careful, given you even get some haha. So is hydroxyzine OTC where you live? You should give it a try. Reduces visuals a tad bit and makes sleep really easy. Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted November 11, 2012 Author Report Share Posted November 11, 2012 Mg have you had any email corresponadence with that professor I think doctors in London are going to be more likely to be aware of this condition for me ATM with my stomach trouble my cars broke London would prove a nightmare to get to Link to comment Share on other sites More sharing options...
mgrade Posted November 11, 2012 Report Share Posted November 11, 2012 I've not emailed him. How far from London r u? ....Can't you take the train in? Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted November 11, 2012 Author Report Share Posted November 11, 2012 I can get the train and London does look like the better option for professionals with some more of an idea about this condition I mean there's a few docs there who are aware of visual snow If I do go down the London route it will have to be after Xmas as I'm due to have my operation within the next couple of weeks and will be recovering from that for a while public transport wouldn't be an option for a while it sucks hence why I was curious about seeing a doc closer in hope they might just prescribe me what I want and save me the irritation of going to London lol Link to comment Share on other sites More sharing options...
mgrade Posted November 11, 2012 Report Share Posted November 11, 2012 Give me an idea of where you live [..i'm guessing a few hrs. out]. Link to comment Share on other sites More sharing options...
mgrade Posted November 11, 2012 Report Share Posted November 11, 2012 Professor/Psychopharm Ian Hindmarch in Dover, Kent Address: number ten The Vicarage St George's Place St Margaret's-at-Cliffe Dover Kent CT15 6GG Office Telephone: 01304 853992 Mobile: 07836 387951 Fax: 01304 852992 Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted November 11, 2012 Author Report Share Posted November 11, 2012 It takes an hour on the train if I were to drive to London with no traffic could get there in 30 mins I usually drive to a nearby station and get the train in from there I live in Kent man do you live near London ? Link to comment Share on other sites More sharing options...
mgrade Posted November 11, 2012 Report Share Posted November 11, 2012 LOL ---No man, I'm from the USA. I've vacationed in England before. My knowledge of the UK comes from reading about Led Zeppelin and Pink Floyd. ...I know David Gilmour used to live in Kent. .....Lucky guess..lol. Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted November 11, 2012 Author Report Share Posted November 11, 2012 Oh really yeah I been to Florida a couple of times loved it out there better weather lol can't say I follow zepplin or pink floyd though and whose David gilmore lol Link to comment Share on other sites More sharing options...
mgrade Posted November 11, 2012 Report Share Posted November 11, 2012 David Gilmour is the guitarist for pink floyd. Dr. Robert Sammut [of Ashford] 01233 204150 Link to comment Share on other sites More sharing options...
mgrade Posted November 12, 2012 Report Share Posted November 12, 2012 Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted November 12, 2012 Author Report Share Posted November 12, 2012 Ahh I see is rock and roll your music genre preferences then mg and thanks for the different doctor info I'll email them tomorrow to see if they have any knowledge of visual snow or hppd symptoms Link to comment Share on other sites More sharing options...
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