Sammywalker2009 Posted September 27, 2012 Report Share Posted September 27, 2012 Hi guys does anyone here know of any uk doctors that are familiar with this condition who might be able to help prescribe me something spoke to 2 of my gps who said they couldn't prescribe what I asked for as it's not licensed for this condition (which they both didn't have a clue about) typical I'm based in the south east of England Link to comment Share on other sites More sharing options...
Monkey_magic Posted September 27, 2012 Report Share Posted September 27, 2012 i dont know any good doctors, theyre all shit and ignorant to this condition in britain. Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted September 27, 2012 Author Report Share Posted September 27, 2012 It does seem to be that way when I spoke to my doctors they looked at me as if I was insane had to try and convince them its a perceptual disorder as opposed to a psycosis ah you would of thought in London somewhere there might actually be a doctor who would be aware of this condition Link to comment Share on other sites More sharing options...
Monkey_magic Posted September 27, 2012 Report Share Posted September 27, 2012 yip, same response ive always got. if its not straight depression, straight anxiety, straight bipolar, staright schizophrenia they havent got a clue. they certainly dont fill me with confidence. Link to comment Share on other sites More sharing options...
brendan Posted September 28, 2012 Report Share Posted September 28, 2012 best you can hope for is a doc that knows nothing but is comfortable with knowing nothing (as proper scientists should be) and is happy to work with you and let you take the lead in your treatment. I had a doc who knew literally fuck all but was happy to give me some keppra as it wasnt going to do me any harm. He was more cautious about trying naltrexone. Sadly he was locum so he#s not around any more so i have to go back to the doc lottery if i want to try anything (other docs have been less co-operative). Flunarazine is something i would like to try but cant really be arsed. If you are rich and intersted in complementary stuff there is a Steiner medical centre in Tonbridge Kent specialising in brain stuff: http://www.raphaelmedicalcentre.co.uk Link to comment Share on other sites More sharing options...
Sammywalker2009 Posted September 28, 2012 Author Report Share Posted September 28, 2012 Yeah it's annoying I want to find a doctor who will try me on keppra sinemet and klnopin not all In one go but i come some way naturally but my visual snow is strong and hasn't decreased over time neither has my sensitivty to light only things that seem to of decreased is the DR and some of the minor things like afterimages I believe keppra or sinemet something like this could really help Link to comment Share on other sites More sharing options...
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