2muchmandy Posted July 13, 2012 Report Share Posted July 13, 2012 This may and probably will sound daft. A week or so ago I freaked out because a large dark red spot came into my vision. Stayed thre for 10 minutes then left. I know migraine aura sufferers report zig zag patterned blindspots...i didnt see the classic sort of burst pattern, what I did see what a whitish grey square form....then as I looked at it, it coloured itself in. But it wasnt a natural darkening. It was like someone with a pen doing a scribbled intricate zig zag pattern in light blue/white, then it turnedto the dark red. This could mean hppd and pma are linked after all. Maybe I have pma and it kicked off coinsidently at the same time I took drugs. Would also explain my random flare ups and fluctuation of symptoms, I get headaches every few days but I wouldnt describe them as migraines I dont think Link to comment Share on other sites More sharing options...
nepuinthesky Posted July 13, 2012 Report Share Posted July 13, 2012 hmm in my opinion its one and the same. caused by the same underlying cause. also in my opinion they have to affect the same parts of the brain. but technically they are called diffrent because of the diagnostic criteria. as for PMA you need to have had migraines before it persistet and for HPPD you had to have used a hallucinogen before the onset. (think my "have had" grammer is wrong sorry^^). these disorders are called because of their trigger not because of their underlaying cause which nobody knows for sure atm. people with HPPD will benefit of new insights of pma and visa verse. i think that is why dr goadsby and dr shankin do research in both groups and call their research "visual snow a new disease entity distinct from migraine aura" Link to comment Share on other sites More sharing options...
2muchmandy Posted July 13, 2012 Author Report Share Posted July 13, 2012 Yeah maybe ur right man. Same areas effected, different triggers. Makes sense. Link to comment Share on other sites More sharing options...
ferret Posted July 13, 2012 Report Share Posted July 13, 2012 There is definatly a connection but I think the disorders are somewhat different.. Link to comment Share on other sites More sharing options...
nepuinthesky Posted July 13, 2012 Report Share Posted July 13, 2012 yeah there are defenatly diffrences. first the form of trigger. but i think the most symptoms are one and the same. the only one i never heard of somebody with PMA/VS is ghosting. but all other symptoms are congruent. people with PMA also report movement, color confusion and micropsia/macropsia. i dont say that you can call the disorders one and the same thats not technically possible with the existing diagnostic criteria. i have an example if you have a sniff its (mostly) caused by your noses mucosa. of course there are diffrent triggers like bacteria, viruses or allergic reactions. but your body always reacts in the same way in a swelling of your mucosa. the treatment varies(which also could be possible for HPPD and PMA) and there are maybe a few diffrent symptoms. but to be sure about this it would be necessary to make a study with People with HPPD, PMA and a controll group. Link to comment Share on other sites More sharing options...
2muchmandy Posted July 13, 2012 Author Report Share Posted July 13, 2012 Definately something interesting to think about. I definately think visual snow pma and hppd are linked. Its wierd as hell but im hoping we make the advqnces we need to and get a cure, even a management method. Im happy how I am, the only thing that plagues me is the thought of worsening, even a pill to freeze development would make me cry in happiness Link to comment Share on other sites More sharing options...
Monkey_magic Posted July 14, 2012 Report Share Posted July 14, 2012 I think hppd is way more linked to PTSD than pma. (mines is at least).Allthough it's obvious pma plays its part too. It's like hppd is made up of 4 or 5 (or more) different neurological individual conditions in one unhandy bottle. Link to comment Share on other sites More sharing options...
2muchmandy Posted July 14, 2012 Author Report Share Posted July 14, 2012 Yeah it seems it....4 or 5 mysteriius and so far untreatable things...like I said in another post why not take all ur little mental niggles and consolodate them into one large hard to manage package Link to comment Share on other sites More sharing options...
Monkey_magic Posted July 14, 2012 Report Share Posted July 14, 2012 Aye, best bets to get the worst ones away (depression n anxiety for me) and the others seem a piece a piss in comparison. But its all these mini things that prop up the major things like a fucked up pyramid. Link to comment Share on other sites More sharing options...
2muchmandy Posted July 14, 2012 Author Report Share Posted July 14, 2012 I just want my vs and trails to dampen a bit Link to comment Share on other sites More sharing options...
ferret Posted July 14, 2012 Report Share Posted July 14, 2012 I'm really suprised that you got trails out of nowhere, that sucks. How is your vs, is it constant or just in the dark now? Link to comment Share on other sites More sharing options...
2muchmandy Posted July 14, 2012 Author Report Share Posted July 14, 2012 Yeah im really confused and pissed off. My snow is 24/7 as usual and its really bad this week. Link to comment Share on other sites More sharing options...
2muchmandy Posted July 14, 2012 Author Report Share Posted July 14, 2012 Like, u all probably think im stupid for freaking out all the time but this is why. One week im cured next week I have like 2 new symptoms and feel insanr. The fact iv had hppd 4.5 months and have no baseline is harrowing Link to comment Share on other sites More sharing options...
ferret Posted July 14, 2012 Report Share Posted July 14, 2012 Its probably better that your symptoms are fluctuating rather than staying the same (although steady improvement would be ideal) because it is a sign that your brain is still trying to adapt and fix the problem. Link to comment Share on other sites More sharing options...
2muchmandy Posted July 14, 2012 Author Report Share Posted July 14, 2012 I hope so dude. I dunno its just shit u know....its hard to know what makes me worse when I naturally worsen and improve anyway Link to comment Share on other sites More sharing options...
ferret Posted July 15, 2012 Report Share Posted July 15, 2012 I know, even though I'm doing well I'm terrified that its going to go downhill and I'll end up in an asylum. Link to comment Share on other sites More sharing options...
mgrade Posted July 15, 2012 Report Share Posted July 15, 2012 I'm thinking some of those visual things should start going away 6,7,8 months after 1st HP signs. Yeah it feels like one step forward, 2 steps back. Once the visual stuff goes away, then it will be time to start building yourself back up from the ground up. It's a really debilitating and when it's all over you feel like you have just given birth to an elephant lol ....well in a way.... Then you are able to get some traction, get out of the red, and start getting into positive headway in terms of progress and becoming everything you envisioned yourself being (b4 this all happened). There may be only one thing you're gonna learn after all this: patience. "What a looong, strange trip it's beeeen....." -"Truckin'" - the Grateful Dead 1 Link to comment Share on other sites More sharing options...
miketusa Posted July 15, 2012 Report Share Posted July 15, 2012 I'm thinking some of those visual things should start going away 6,7,8 months after 1st HP signs. Yeah it feels like one step forward, 2 steps back. Once the visual stuff goes away, then it will be time to start building yourself back up from the ground up. It's a really debilitating and when it's all over you feel like you have just given birth to an elephant lol ....well in a way.... Then you are able to get some traction, get out of the red, and start getting into positive headway in terms of progress and becoming everything you envisioned yourself being (b4 this all happened). There may be only one thing you're gonna learn after all this: patience. "What a looong, strange trip it's beeeen....." -"Truckin'" - the Grateful Dead Been listening to Truckin all day! Link to comment Share on other sites More sharing options...
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