ferret Posted July 2, 2012 Report Share Posted July 2, 2012 Well I had seen a few people post about that visual snow study looking for more patients. I E-mailed them at VS-Research@Neurology.ucsf.edu a few days ago and received a phone call today. They answered any questions I had and I did the same in about 10-15 minutes. They are definately focusing on visual snow more than HPPD but they still seemed interested in my case. I think it was definately worth it so I recomend E-mailing them if you haven't already, but be clear in the e-mail that you suffer from visual snow as a piece of your HPPD (rather than visual snow alone) just to make things easier for them. Link to comment Share on other sites More sharing options...
2muchmandy Posted July 3, 2012 Report Share Posted July 3, 2012 Just emailed em and put my name and number forward. Now to wait for them phoning and trying to decipher my accent hopefully they get some beneficial info. Link to comment Share on other sites More sharing options...
ferret Posted July 3, 2012 Author Report Share Posted July 3, 2012 The guy who interviewed me had a pretty strong accent of his own. Not sure where he is originally from but it sure wasn't san francisco. Link to comment Share on other sites More sharing options...
Dancetrooper Posted July 6, 2012 Report Share Posted July 6, 2012 this could may interesting for them: My friend has Visual Snow too, but no HPPD. He got that since he´s born and didnßt noticed it till i told him that those white dots aren´t normal. I mean how to realize somethings going wrong if youve been born with it?! The problem is we can´t speak english that well so Link to comment Share on other sites More sharing options...
2muchmandy Posted July 6, 2012 Report Share Posted July 6, 2012 wortyh trying, german is a common language theyl probably have a german translator. how long do they take to phone, aint emailed me or phoned? Link to comment Share on other sites More sharing options...
nepuinthesky Posted July 6, 2012 Report Share Posted July 6, 2012 this study is almost for visual snow and not for HPPD in first place so he can take part if he wants and fits into the criteria. you can try to contact the researchers but as i know they are in the second part of the study where they need people for a personal meeting but worth trying. Link to comment Share on other sites More sharing options...
Dancetrooper Posted July 6, 2012 Report Share Posted July 6, 2012 I will give him the mail adress, so if they need him he would participate, but we cant travel so i think it only would be the phonecall worth But better then nothing Link to comment Share on other sites More sharing options...
ferret Posted July 6, 2012 Author Report Share Posted July 6, 2012 wortyh trying, german is a common language theyl probably have a german translator. how long do they take to phone, aint emailed me or phoned? It only took them a 3 days to call me but remember that the 4th is a holiday here so it might take them a little longer to get back to you. Link to comment Share on other sites More sharing options...
2muchmandy Posted July 6, 2012 Report Share Posted July 6, 2012 Oh yeah its 'mericah day. Link to comment Share on other sites More sharing options...
cs1234 Posted July 6, 2012 Report Share Posted July 6, 2012 just sent an email Link to comment Share on other sites More sharing options...
Rozzer Posted July 6, 2012 Report Share Posted July 6, 2012 I actually think that the doctor is from Germany, He has a german name, and speaks with an accent.. Link to comment Share on other sites More sharing options...
ferret Posted July 6, 2012 Author Report Share Posted July 6, 2012 he may be from Germany but he is in san franciso. Link to comment Share on other sites More sharing options...
Dancetrooper Posted July 9, 2012 Report Share Posted July 9, 2012 If he´s from germany we could do a phone call then too, my friend doesnt wanted it because he doesnt wants to sit there and : ÄÄÄÄhhhhh, Öhh sry i didnt understood ..... Link to comment Share on other sites More sharing options...
nepuinthesky Posted July 9, 2012 Report Share Posted July 9, 2012 yeah its possible that christopher shankin is a german i googled the name and found a dr. in munich with this name who is actually in the usa maybe it is him^^ Link to comment Share on other sites More sharing options...
cs1234 Posted July 10, 2012 Report Share Posted July 10, 2012 I missed the call. I called back and left a message telling him to call back and apologizing for not being around my phone at the time. what now? Link to comment Share on other sites More sharing options...
2muchmandy Posted July 10, 2012 Report Share Posted July 10, 2012 Still havnt hsd an email Link to comment Share on other sites More sharing options...
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