2muchmandy Posted June 24, 2012 Report Share Posted June 24, 2012 Hope1 kicked off quite rightly i think a fairly millitant approach. The fact most neurologists and 99% of those in medicine have no clue about hppd yet the world has so many drug users, young ones at that is quite frankly horrifying. I decided I didnt wanna sit with my thumb in my ass either, i post alot on here and try helps people but i thought i wanna join hope in reaching out to some people Today i got a reply from a gentleman telling me i was wasting my time in offering a grant as billions have been spent in researching brain disorders, i totally disagree because giving up hope that conditions can be cured is just wrong. He did however wish me the best of luck and suggested perhaps trying to assemble a task force of scientists/neurologists to try and get to the bottom of this. This would be something Dr. Abraham and David would probably need to asist us as their knowledge of who is who in the medicine community and who would be able to help is really the most accurate we have. What are peoples thoughts on this? I dont know if david actually has an account or posts on here. 1 Link to comment Share on other sites More sharing options...
Guest Posted June 24, 2012 Report Share Posted June 24, 2012 I thank you for trying and don't be discouraged if someone says "why bother" either. I'm sure there are plenty of empathic brilliant minds that want a challenge and see the validity in researching this condition. It's a numbers game in the end. For every 9 negative response we will get a positive one. Ultimately those who are interested in helping must talk to Dr. Abraham and David. Remember folks, Dr. Abraham is old and who knows how long he'll continue working. We need to source not just one person but a cohesive team to carry on his work and use the latest technologies to uncover the root cause for this suffering. These people can be found but it will be up to us so get busy and start writing emails to the research departments of every university with a neuroscience division. Perhaps we can cut our time significantly with this condition or better yet a cure. Link to comment Share on other sites More sharing options...
NRFAdmin Posted July 19, 2020 Report Share Posted July 19, 2020 That team was finally assembled. Took 8 years... Link to comment Share on other sites More sharing options...
David S. Kozin Posted July 19, 2020 Report Share Posted July 19, 2020 Dr. Abraham is retired 100% and I am unable to do any work at the time as I am primary caregiver to my mother who has 1 kidney, COPD, congestive heart failure, pacemaker and defibrilator and she lives at our family home, which we plan on selling eventually, but in the mean time I am the only family member that can do my best to keep the coronavirus out, which in my area (Metro Detroit) will soon again be very challenging. Additionally, keeping her out of the hospital for other issues have required picking up some clinical skills I had not planned on doing. Just as a side not if current funder is reading: hppdonline.com was re-registered. There is a funding opportunity. There is also a lot of awful information out there on the Internet about HPPD. Some recent studies were a step away from academic dishonesty. Suddenly, every "drug rehab" center is using HPPD templates that honestly are awful as "content" for their sites. I am also facing significant family issues that relate to this. The type of issues that can destroy a family. I will post a copy of this message as its own and I will look at what updates are required and wait to do until after backing everything up. Thank you,. David Link to comment Share on other sites More sharing options...
NRFAdmin Posted April 28, 2021 Report Share Posted April 28, 2021 We managed to secure $50,000 from the individual behind the HPPD foundation and had the money donated to support Dr. Harry McConell's work. The recruitment phase for the research should start soon. People interested in participating can do so by sending their information, which will be held confidential here: studyrecruitment@neurogroup.org. This is our time to collectively make a difference in putting HPPD front and center with the intent of one day finding the root cause of this condition and a cure. 1 1 Link to comment Share on other sites More sharing options...
Fawkinchit Posted April 28, 2021 Report Share Posted April 28, 2021 (edited) 11 hours ago, NRFAdmin said: We managed to secure $50,000 from the individual behind the HPPD foundation and had the money donated to support Dr. Harry McConell's work. The recruitment phase for the research should start soon. People interested in participating can do so by sending their information, which will be held confidential here: studyrecruitment@neurogroup.org. This is our time to collectively make a difference in putting HPPD front and center with the intent of one day finding the root cause of this condition and a cure. Thats awesome, at the time do you or they have the study summary or objective? Essentially an outline of the idea of what they are looking for? Or what specifically they will be studying? Edit: Nvm found your other post. Edited April 28, 2021 by Fawkinchit Link to comment Share on other sites More sharing options...
Hall89 Posted April 28, 2021 Report Share Posted April 28, 2021 Might it be this study? https://researchers.mq.edu.au/en/projects/hallucinogen-persisting-perception-disorder-hppd-protocol-multimo Link to comment Share on other sites More sharing options...
Fawkinchit Posted April 28, 2021 Report Share Posted April 28, 2021 On 6/24/2012 at 12:34 PM, 2muchmandy said: Hope1 kicked off quite rightly i think a fairly millitant approach. The fact most neurologists and 99% of those in medicine have no clue about hppd yet the world has so many drug users, young ones at that is quite frankly horrifying. I decided I didnt wanna sit with my thumb in my ass either, i post alot on here and try helps people but i thought i wanna join hope in reaching out to some people Today i got a reply from a gentleman telling me i was wasting my time in offering a grant as billions have been spent in researching brain disorders, i totally disagree because giving up hope that conditions can be cured is just wrong. He did however wish me the best of luck and suggested perhaps trying to assemble a task force of scientists/neurologists to try and get to the bottom of this. This would be something Dr. Abraham and David would probably need to asist us as their knowledge of who is who in the medicine community and who would be able to help is really the most accurate we have. What are peoples thoughts on this? I dont know if david actually has an account or posts on here. Interestingly enough the research that has already been done on other disorders could technically be used synonymously with HPPD. Link to comment Share on other sites More sharing options...
NRFAdmin Posted May 5, 2021 Report Share Posted May 5, 2021 @Hall89 Yes, that is the link to the study. Details have not been released as it is still pending approval from the IRB. How did you find that link? Link to comment Share on other sites More sharing options...
Hall89 Posted May 5, 2021 Report Share Posted May 5, 2021 10 hours ago, NRFAdmin said: @Hall89 Yes, that is the link to the study. Details have not been released as it is still pending approval from the IRB. How did you find that link? Ah, so it hasn't begun yet? Someone on reddit said that Macquarie University was doing a study on HPPD, so i just Googled it. Link to comment Share on other sites More sharing options...
NRFAdmin Posted May 5, 2021 Report Share Posted May 5, 2021 The moderators of the rHPPD board on Reddit have banned me and will not allow any discussion involving the Neurosensory Research Foundation. This research project has been a labor of love that was wrought out of blood, sweat and tears over the span of 12 years. Why the moderators deny to recognize this is a mystery to me. Link to comment Share on other sites More sharing options...
NRFAdmin Posted May 5, 2021 Report Share Posted May 5, 2021 @Fawkinchit I’ve had the study in my possession for several years but couldn’t share it as it would jeopardize it being accepted by Macquarie. Link to comment Share on other sites More sharing options...
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