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June 11, 2019 SUBJ: Faces of HPPD Survey/Research Published – RESULTS! Dear HPPD Online Community: As a mom with a grown son with HPPD, I was so fortunate to come across this forum several years ago for information and support. David Kozin, who runs this board, is an amazing man to have created and maintained this website and kept up his work/studies over the years – all the while suffering with HPPD. I would like to thank him for this platform, and well as thank those of you who participated in the survey that I launched four years ago to collect data about individuals who had received an official diagnosis of the disorder. Fast forward…. Here it is June 2019. Long overdue for the published report, however, I lingered – always hoping to gain a larger sample of subjects. I am fortunate to have a PhD in psychology, experience in research, and a heart to try to make a difference. Instead of publishing a book, it only made sense to get the results in the hands of the scientists and medical professionals through scientific writing. I am so happy to tell you… the peer-reviewed medical journal, Addictive Disorders & Their Treatment, published by Wolters Kluwer publishers, has reviewed and accepted my manuscript for publication in an upcoming issue. Last week the article completed rounds of publication editing and formatting. The article is posted at their website for advance release. Lewis, DM, Faces of HPPD: Hallucinogen Persisting Perception Disorder Patient Survey Results and a Descriptive Analysis of Patient Demographics, Medical Background, Drug Use History, Symptoms, and Treatments. Addictive Disorders and their Treatments. Forthcoming 2019. The link is here: https://journals.lww.com/addictiondisorders/Abstract/publishahead/FACES_OF_HPPD__Hallucinogen_Persisting_Perception.99733.aspx (NOTE: This direct link will change probably in a month or two when the article is given a print-issue date – right now, it is advance copy, undated. In the future, you can search the article at https://journals.lww.com/addictiondisorders/ . While the article is available for immediate download, many of you know that publishers charge money for copy downloads (this one is $49), and authors cannot give away their copy. This, I know, is not a good thing for some within the community who do not have the funds. However (here’s the good news ), I contacted the publisher and obtained permission to publish a summary of the results (the important data!) and I created an infographic that provides you all the results. I am including it here as a .pdf file, attached. It’s reader-friendly, and I hope it provides insight. I want to mention some findings that particularly concern me: the high rate of suicide ideation (among other co-morbid psychological/psychiatric symptoms reported), and the significant number of individuals who reported being unable to work due to HPPD. I feel strongly that HPPD needs recognition as potentially disabling – and I believe there are some individuals who may need government assistance (eg, Social Security Disability benefits). My future work leads me in the direction of carving a path for HPPD as a qualifying mental disorder for eligibility for assistance. I will keep you posted on that. Again, thank you so very much for those who partook in the survey. My best wishes to each of you for good health and peace of mind, Doreen M. Lewis, PhD https://www.facesofhppd.com https://www.vellichorresearch.com Faces of HPPD Infographic - LEWIS.pdf

Hi there, My name is Alex, I'm a third-year psychology student at University Greenwich (London, UK). Although I don't have HPPD, I'm very interested in understanding more about it. As such, my final-year research project is a survey investigating individual differences and HPPD. My research project is under the supervision of Dr. David Luke, a long-standing psychedelic researcher in the UK and author of many books on the subject. Dr. Luke is a senior lecturer at University of Greenwich and honorary senior lecturer at Imperial College London - the home of the bulk of psychedelic research in the UK. I'm really only trying to use his credentials to verify that this research is a serious undertaking, not just to name drop him. I would love to hear from members of this community and hope you can find the time to have a look at my survey linked below The survey should take between 15-30 minutes to complete depending on your individual history and experiences. Your response will help deepen the understanding of potential differences amongst sufferers of Hallucinogen Persisting Perception Disorder. All submissions are anonymous (identifiable only through your unique personal code) and data will be stored on a password protected device. The research has been ethically approved by the Departmental Research Ethics Committee for Psychology, University of Greenwich, UK. https://greenwichuniversity.eu.qualtrics.com/jfe/form/SV_9tPkqFu2yAaNHOl Many thanks if you have the time to spend helping me out. If this is better posted somewhere else please feel free to let me know, Given this is my first ever post I'll apologise for getting it wrong in advance! Any questions feel free to drop me an email on ai2156k@gre.ac.uk