firehawk

Does anyone have problems with taking vitamin C? its really the only thing I have been starting to take everyday because its the sickness season besides magnesium. Now I have noticed I get these headaches in the back of my head and I get anxiety and the vision worsens I feel from this. and I know that must be what its from since its the only thing I take. I stopped taking for about 3-4 days and the headaches stopped. Does anyone else have the problems or is my sensitivity just super high this early since ive had hppd and got sober less than a year ago.

wishing the best for you there will be better days. Keep on pushing brother

If any of you guys get sick do you notice your visuals increase or visual snow increase? if been battling viruses since i moved and my vision has been really bad last 2 days. I havent gotten sick in a while i usually dont but my throat has killed me today and my body aches and my visuals are bad.

Yeah shits crazy. crazy we all got a super rare condition and we’re all spread out over the world all connected. I admire ya’ll for pushing through and fighting for this long your fuckin awesome. I can deal with my vision cause i dont have any floaters or afterimages or other things all I can see is the world through a pair of clear goggles and slight motion blur its so odd. havent seen anyone else with my symptoms or vision. my visual snow getting so bad though. ive been fully sober and my symptoms and vision has slowly gotten worse and worse and I dont even worry about it for some reason. I honesltly have no ideas why just riding it out. maybe its cause i was smoking weed every day before and after onset and since I quit everthing my mind doesnt know what its supposed to do. anyways thanks for the rant if anyone has any suggestions let me know. keep on fightin and living happy lives

yeah I definitely noticed after a few weeks I had an onset of this sort of thing. Higher pitched noises bother me cant really listen to music loud or high pitcher dogs barking hurt my ears. only flares up sometimes when symptoms are bad but guess I could be used to it. it isnt very bad though.

thought I had my baseline once I sober and had little alcohol and nicotine and and have had spikes a couple times but for me my symptoms are just permanently worse. My vision has been worse and the whole world looks fake. as well as i would consider I have severe vision snow. just straight pixels in the dark and can notice it a little in the day. I pretty much have no hope of getting any better cause i feel ive done alot right and have gotten so much worse. not trying to complain or anything just dont really understand this condition. Vision doesnt bother me too much atleast not yet and I live really happy life just vision getting bad especially vs.

Wow great post really interesting definitely one of the best breakdowns i've seen if not the best and its somewhat easy to understand the way you put it. would be pretty awesome to have a cure for this in my lifetime but if not so be it awesome work could tell you put alot of effort!!

yeah sounds like form of hppd. you have a very very similar case to me and alot of other similarities. I was very frequent smoker lotta bud and carts throught highschool im 19 now. did shrooms once last summer and had pretty bad anxious trip. I would say I normall have a little anxiety just like yourself. I had an onset from smoking of visual symtoms changes of just everything looking clearer and sort of trippy in my visual field a few months after my trip. I continued smoking months after cause I didnt know what it was and just thought it would go away when I stopped smoking (I would use carts or smoke every day atleast at night) but my symptoms didnt get much worse. I got a little visual snow from alcohol last month after I went sober as well like you but doesnt bother me in light only in the dark. I will give advice that others have given me that have helped me with the diagnoisis. rememeber its gonna be all good shit happenes dont blame yourself. plently of people can have recovery or live long perfectly fine happy lives with the condition. but its gotta start with getting sober from smoking first because its physoactive drug and could worsen your condition also would stay away from alcohol and caffeine if it bothers you exercise even if it makes symptoms worse eat healthy meditate or yoga and help ground yourself try and not stress about the symptoms, when you focus on it your mind exasterbates the condition and makes thing worse for you. try and pickup things to distract yourself or other hobbies. personally im athletic i play junior hockey but ive been playing a ton of golf and it helps get my mind off of it a ton. can read other posts for more helpful things as well but would definitely start by quitting weed. I felt alot better when I got it out of my system and found out what my baseline symptoms are. as far as anesteshia your should be fine I wouldnt be stressed about it. the first few days quitting is hard but gotta tough it out for the sake of not worsening your vision. the first couple days I had a ton of anxiety but remember its mostly the hppd not the weed. alot of people make a form of recovery from this shit you got this just trust me and others you dont wanna make your vision and symptoms worse. if you need any other help or advice just message since i feel we are pretty similar in age and cases. its been almost 2 months 1 week since i quit weed and my body and mind feel better to manage the conditon . and think this goes without saying but definitely dont do any psychedelics or harder drugs than what your doing. seems like you sort of have a mild case and i believe you can make some sort of recovery if you get sober and healthy. my mind is powerful and can adjust to its conditions just dont wanna make it worse.

does the sensitivity to certain drugs get better overtime through abstinence? like caffeine alcohol nicotine etc. or do those things still effect people the same since the onset of symptoms or diagnose. Just trying to figure out my case a bit since im just so lost and not much information. just dont get how since onset of visual symptoms I continued marijuana for a while with no negative symptom effects and nothing got worse. then when i figure out its hppd and get sober for a while… then one beer makes my visual permanantly worse as of now and added some VS. then been feeling in better headspace as of recently and had a little nicotine and my vision seems a bit off and worse and not sure how I can be this sensitive. Like from my understanding if people can use certain drugs with hppd like nicotine or alc but just experience minor flareups for days or so. Like at this point for me I would literally have to stay sober for the rest of my life if i make it there and never have a single beer again and im only 19 like my whole partying and drinking phase with college is just starting. anyone else have permanently worse symptoms from a small amount of drugs from most of what I see thats not the case so I jusr dont understand. before I found out I had hppd and was just living normally with my vision I was literally doing better than knowing the diagnosis. my condition is literally worse of now than before and I was doing all the normal marujuana alcohol nic and was doing fine with no flareups. I honestly just dont understand at all. Sorry for this rant just feel like people should be posting on this more as well but such a small community . this condition is so fucked up hope everyone is pushing through it

Thats pretty interesting. Ive done smelling salts alot before hockey games but havent in a bit and not since I got hppd. But it does make sense because the salts and supposed to wake the brain up and put into overdrive which could definitely exacerbate the symptoms. Im in very sensitive state with my case cant have coffee alcohol even claratin and allergy medications give me side effects, but will definately keep that in mind and not use salts. has it made the visuals worse the whole time since then?

drug seeking probably wrong word im just thinking worst case ig. just think like they wouldnt understand. also this doctor is kind of arrogant so maybe not sure how they respond to a disorder that wouldnt know about. but i know i dont wanna go on any medication unless clonezepam in the years future.

Hello, hope all are well, just been brainstorming I have a doctor appt with my main adult family doctor in about a week. not sure if Im gonna talk about my hppd with them or not. I think im managing my hppd well and still have been sober completely and cut out caffeine and have noticed im doing bit better and noticing my symptoms less and just ignoring it. I dont think I wanna go on any medication so maybe talking to the doctor would just confuse them and think im drug seeking or something idk. would it be something to talk to psychiatrist or maybe they could refer me to one? maybe people who talked to doctors about it how did it go

wanted to update pretty much no anxiety and not much dpdr anymore i realize my anxiety was really all from the pot and normal me doesnt really get anxious . havent smoked in 20 days kinda miss being able to smoke but dont really have the urge to. anyways I decided to have beer at baseball game and didnt think it would do anything but one tallboy made my vision flare up at the time and noticed a little vs (just more than usual) . now i think from that and the day after my vision got a little worse and i notice some snow if i focus on it. honestly just confused and frustrated because most people say alcohol doesnt affect your hppd. if anyone has some takes on that because idk i think my brain is just confused with any substance that enters it so idk. like its not like i can be sober from everything forever im fucking 19 . but anyways still doing good and besides the vision seeing big trees with no leaves are still a trigger from when cannabis induced my hppd. but if anyone has advice about alcohol thing lmk. ive heard things about people taking psychs again and it helped their brain return to homeostasis but idk. honestly just annoyed with all this my hppd doesnt reallt bother me. guess with this info ill continue to stay sober long as I can but summers coming up and would really like to enjoy alcohol.

Yeah this is pretty similiar to what i was experiencing very recently. i was constant smoker even through the vision every day with live resin carts pretty much the past few months. took a lil break a few weeks ago when i moved back home.. and i switched to bud and smoked from bong which i thought would be fine. i had maybe two seshes and both times i had CRAZY ANXIETY like there was no high at all and my vision was extremely intensified and it scared me shitless. got scared gave all my weed to my parents and quit. I can totally confirm that YOUR extreme anxiety in general and worrying about hhpd IS FROM QUITTING WEED i had the same thing … my brain was going nuts and i was worrying about random stuff and freaking out and i was stressing maybe 3 days max. once you get to that point of 7 - 10 days of detox from weed depending on your activity and eating and drinking tons of water ( i was running every day trying to detox my body from weed) and my brain and body feel so much better now and im pretty much back to my normal sometimes pissy sober self lmao . but yes the key to beating this shit is we gotta stay sober and off weed. i promise you if you keep yourself busy and get through the tough withdrawal ( mostly mental withdrawl) you will feel so much better and less anxious. the anxiety is just your brain adjusting it will be much better just push through it. my mind is clearer now and i think i can even notice by brain trying to sort out the issue. i think i mostly have ptsd from my first and only shroom trip .. i would consider it bad trip cause i was super anxious and i couldnt think when i was peaking and i think it just traumitized my brain (in the summer june or july 2022 ) and the hppd was induced from when i smoked 5 months back when i moved and was stressed and my symptoms have stayed because i stayed on weed for so long which i regret… but it really helped me out so im not guilty. but I just dont see myself smoking soon or drinking and gonna get off caffeine tomorrow because it makes symptoms worse. I hope you keep riding it out i believe you will feel better when you give your mind and body time to clear system and adjust and you will be less anxious. now my vision doesnt really bother me and im not really anxious about hppd and it seems from the stuff ive read it thats what helps recover and if it eventually fades away is controlling your own mind. also what helped my anxiety and having things pop into my head was saying the phrase “i am in control of my mind and my own thoughts, i am in control of my mind and my own thoughts” hopefully that can help anyone. thanks for sharing even if it was tough its comforting knowing theres similar experiences. man for the past 5 months of this vision going on i was researching trying to find out what was wrong and couldnt figure it out. my visuals symptoms now and just the clearer and almost non real vision that intensifies i i focus on it on feel stress and and my eyes shift from thing to thing sometimes and i also KEEP LOOKING at trees that have no leaves that just have bunch of stems, because the time i smoked that induced the hppd.. there was a HUGE tree just like that that i smoked by and was staring at it. its honestly weird but it doesnt bother me now that my anxiety has reduced with quitting weed. so i think especially in my case quitting weed is number one thing and i plan to ride this healthy habits wave out for a while.

thanks for the advice! just wanted to return to give quick update im doing bit better now all the tips helped with meditation and running and healthy habits . the first few days were really rough . i am 2 weeks weed free and mind and body feeling better i am so much less anxious without weed thats its helped make the vision not as bad. stress and anxiety def make it worse could barely have any caffeine and was mostly sad first few days. kinda coping by having some hope itll eventually go away in long run but im def gonna stay sober which is all im really focusing on. starting calling my vision ‘ super vision’ turning it into a positive cause thats kinda what it is everything kinda looks clearer or weird and if i focus on things which was disturbing and probably caused bad dpdr but maybe im used to it since had it for probably 6 months or so. but wasnt bad sober but would flare up when i smoke. i guess ive sorta became okay with having the vision but notice some light snow too. just gonna keep riding the out and i believe that im gonna stay sober and dont have the urge to smoke anytime soon. not looking at forums or reddit helps stress so gonna stay away from that. at first thought i needed to see doctor to get meds because i couldnt deal with this but i think i can just keep riding this out with constant exercise and healthy eating… i also think delta 8 or 0 products have some connection to hppd so i would stay away maybe you can post that somewhere else. gonna stay off for a while can check for responses but just wanted to let u guys know u helped and site gave comfort. hopefully shit goes away in long run but if not guess ill just have my super vision forever eh