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freakedout1234

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Everything posted by freakedout1234

  1. Is there an anxiety / depression drug that causes the least harm to HPPDers? one that is better than the others? Seems like everything's made someone worse. Does the wellbutrin or buspiron work on 5HTA?
  2. Are there sleep meds that don't make HPPD worse? I am having sleep disturbances do to long covid symptoms. My hppd is under control and doesn't bother me much but I don't want to make it worse or relapse. I have relapsed once to due stress and once due to canabiss use. Each took me a year to recover. I tried mirtazapine last night and it was terrible. I saw a bunch of people had bad reactions here. What sleep meds can actually help? I can tolerate valerian in my tea. Also, Calm aid lavender oil. I also do magnesium pills and can add topical. But are there prescription meds that can help besides benzos?
  3. I took a half of a 7.5mg last night and feel awful this morning. Just so tired and out of it. Maybe my trails are a little worse but I hated the feeling I felt with it going to sleep. Sorta druggy like "out of control". It didn't even really help with sleep.
  4. What dosage did you all take? Dr just prescribed me 7.5mg a night for sleep. My worst symptom is trails and slight after images. I do not want to make it worse. How quickly did you notice it getting worse?
  5. Thank you. I guess I will not take it or Doxepin.
  6. Yes, I am mostly recovered. Was almost completely recovered (as in HPPD didn't bother me) from 2010 to 2019. In 2019 I tried some THC and had a minor relapse for a year. In 2020 I tried CBD and had a relapse for 6 months. COVID has made my HPPD maybe a tiny bit worse. But that normally happens when my anxiety gets bad. I still have trails but they've "faded into the background" so they don't bother me anymore. My anxiety goes up and down and its really bad now because I'm worrying about long covid. Anyway doctors have no idea how to treat long covid. And they'll probably want to put me on an SSRI but I had to tell them about the HPPD and I can't take those. And now I'm wondering if they'll prescribe Doxepin for sleep. Will Doxepin, a tricyclic antidepressant, mess up my HPPD?
  7. I posted a similar message in medications but will focus more on long covid here. I hope that's OK. I am a mostly recovered HPPDer who has been off the forums a long time. Got HPPD in 2004 (anxiety went nuts, trails, brain fog, just felt weird) went off all drugs, felt OK by 2007 but had a relapse for a year and having been feeling fine since 2009 but still seeing trails but it doesn't bother me much. Sucks to have a barely treatable disease doctors know nothing about. I just got COVID in January (fully vaxxed and boosted) and now have some long haul symptoms still going 6 weeks later. I have lingering fatigue and can't sleep. i got light sensitivity during the acute infection but I'm OK now. Klonopin, benedryl nothing helps me sleep. I know we are supposed to stay away from SSRIs but would Doxepin (SNRI?) make HPPD worse? I just need to sleep and recover and not have my HPPD also get worse. Also, I was wondering if HPPD could have a link with long covid since our brains might already be damaged can the virus make it worse? I hope I still have time for it to go away but it sucks to have a barely treatable disease doctors know nothing about!
  8. I am a mostly recovered HPPDer. Got HPPD in 2004,went off all drugs, felt OK by 2007 but had a relapse for a year and having been feeling fine but still seeing trails but it doesn't bother me much. I just got COVID in January (fully vaxxed and boosted) and now have some long haul symptoms. I have lingering fatigue and can't sleep. Klonopin, benedryl nothing helps me sleep. I know we are supposed to stay away from SSRIs but would Doxepin (SNRI?) make HPPD worse?
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