I posted a similar message in medications but will focus more on long covid here. I hope that's OK.
I am a mostly recovered HPPDer who has been off the forums a long time. Got HPPD in 2004 (anxiety went nuts, trails, brain fog, just felt weird) went off all drugs, felt OK by 2007 but had a relapse for a year and having been feeling fine since 2009 but still seeing trails but it doesn't bother me much. Sucks to have a barely treatable disease doctors know nothing about.
I just got COVID in January (fully vaxxed and boosted) and now have some long haul symptoms still going 6 weeks later. I have lingering fatigue and can't sleep. i got light sensitivity during the acute infection but I'm OK now. Klonopin, benedryl nothing helps me sleep. I know we are supposed to stay away from SSRIs but would Doxepin (SNRI?) make HPPD worse? I just need to sleep and recover and not have my HPPD also get worse. Also, I was wondering if HPPD could have a link with long covid since our brains might already be damaged can the virus make it worse?
I hope I still have time for it to go away but it sucks to have a barely treatable disease doctors know nothing about!