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... last won the day on September 26 2022

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  1. I will give the sunglasses a try Jay! It would definitely look better than tying a black scarf over my eyes, that I have sometimes been known to do. Ugh! In thinking about over-stimulation I realize also I have a steady symphony of noise or tinnitus that adds to the ruckus. I've survived thus far!
  2. Happy New Year everyone! I want to ask if others experience light sensitivity? This is perhaps a secondary symptom, for me anyway, that I attribute to over stimulation of the endocrine system via HPPD. I am not actually sure that the endocrine system is actually stimulated since HPPD is perceptual, however! I would like to know what others experience or know in this area. I have structured my own life around limiting light, living with natural exposure without electric and basically going to bed with the chickens. Kaleidoscope here....
  3. Happy New Year to you too, Jay and to everyone! I also would chime in to all, be of good courage! You never know what life can bring, but I can surely say don't be overcome by HPPD. I remember well my first Christmas with HPPD, long before anyone had a name for it! This would have been maybe 1972? And I only 13 years old! Wow, we travelled to be with cousins and boy was I in the twilight zone! I must really say that understanding and defining this syndrome actually helped me to be in command of it. I wish you all courage and skill and above all faith to unmask and master this thief We call HPPD. So far...so good! Kaleidoscope
  4. Thank you for sharing your story! You were very fortunate to find such a Dr. In those days!
  5. Yes Jay, our loyalties to family sometimes must obscure our dreams! I love the idea of living in a houseboat and also thought of this many a year ago! That would be a trip!
  6. Or, if this is a bit too New Age there are many monasteries. It is customary to be able to visit a monastery for 3 days and receive hospitality. There are very secluded and quite ones to the North. One step leads to another and before you know it you are living your dream! Also, have you thought of Woofing?
  7. Would like to add that in pondering this malady or fine mess we`'ve gotten ourselves into I often feel it brings on sensory overload. For me the lights never go out and the noises never quieten down. Do you know what I mean? For this reason I really gravitate toward a very quite way of life. I don't even have electricity and I'm in bed same time as my chickens. To visit places that have big screen T.V.s is overwhelming and the thought of going to a movie would be pure torture. Needless to say it leads to a less than sociable life. A traffic jam at night in a city might send me to a mental ward.
  8. Thank you Jay! I am super paranoid of anything that alters my state of consciousness...little late for that but sure don't want to add any fuel to the fire!
  9. Haha! I do look a little spacey huh? I'm doing good. I still face all the visuals such as floaters, trails, colors, breathing walls just to name a few. These are toned down considerably but still there and more apparent when in a crowded busy place or if I am tired. As I mentioned the de-realization is the worst but I've just learned to sail through it. For me, it has been better to get my mind off of it as much as possible.
  10. Jay, just curious, is De-realization the primary perception of what you would call tripping? Just trying to pinpoint since the feeling that somehow your feet aren't quite on the ground would fall under de-realization, no? The term is one I had never heard of until a few years back via this forum and when I read it as one of the symptoms of HPPD I couldn't believe I had finally found a name for this perception. In thinking about this particularly it comes on when I am fatigued, in a different place or in a crowd and perhaps from too much caffeine. Thanks Kaleidoscope
  11. Spartan...prayers and well wishes for you!
  12. Jay1 this sounds so much like my experience. My very first trip was with Lsd-Orange Barrel double-dome in 1969. It was way too much for me! I remember the feeling of de-realization and it was this sensation that made me feel out of control. The only person who was aware of my " flashbacks" was my older brother and when I was in any situation with a lot of people I would ask him to keep a watch on me simply because I did not feel I was there. Of course, I didn't have a name for it or understand it but it was very frightening. I would like to study more about this particular perception. Any recommendations right off hand? Thanks!
  13. Oh dear! I've not quite felt like an Orange as of yet...but who knows what's down the line?
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