Liannelouis12

Thanks missjess and look forward to hearing all about ur healing trip take care

What's the worst symptom for you and is it just TV that takes ur mind off it jimmy ?

All the doctors and therapists I've spoken too don't no a thing about hppd and they have to google it and it hurts when they don't believe me and think I'm making it up or that I need mental help , it does help to have councelling and cbt therapy as they don't judge they try to help us manage our conditions and I no deep down mine will never go as it's getting worse there's new symptoms every month and a few courses of antibiotics have pushed me back too two years ago when it started , how are you coping now and how long have you had hppd Kyle ?

The TV and poker on my phone distracts me I feel better during the day it's the night time that freaks me out the artificial light causes trails and a new awful symptom I've noticed if I move my eyes to the side when looking at anything it has the afterimage it's horrible , how long have you had hppd jimmy ?

Thanks for the reply miss Jess and I really feel the anguish over the antibiotics I've got mine in my bag and really don't want to take them they go straight to my head but I no I'm going to have too I'm in pain , and it will be great to here your story when you've finished your healing I hope your well.

Wow miss jess how did u find that healing route and how much did it cost I'd love to go , the thought of being healed makes me so happy and if it's working theres hope for us all x

Wow you went through a lot I felt dread reading your story did you have static/snow 24/7 or walls breathing there scary for me I've also just started getting vertigo and a weird light thing when I move my eyes side to side also the horrible feeling of not bring me and wanting to die to be at peace just wish there was a cure or for there to be more recognisation of hppd/ visual disturbance being a true illness and being researched like cancer does thanks for sharing ur storie it really does help knowing other people like us

Thanks for the posts I hope u get better hppd33 ,merkan I wonder why this happens it's so scary I think what if there's an emergency and u wake up in hospital been given loads of medication that makes ur eyes so bad ur nearly blind we need to wear wristbands mine would say do not resuscitate , and wuwei I was on anxiety medication cipralex escitalopram for 7 years in which gave me bad migraines and i started noticing static in my vision along with floaters and halos which didn't scare me that much as they were mild but when I came off the medication that's when slowly thing started getting worse more symptoms and then I noticed I had hypersensitivity to any medication I took and decided to go back on the anxiety meds which I couldn't cause it made my eyes 10times worse it's been a bad roller coaster in which I'm more messed up than ever and I carnt see a way out , how did everyone get there hppd

Your so brave going through all that shit ihaveseenevil and it's scary when there's more and more symptoms yapping I agree the vertigo is one of the worst for me and the breathing walls and basically anything that's grounded if I look into the future even a couple of weeks from now I panic so bad, why did it have to happen to our vision and minds and with no cure I always picture myself dead , I hope we all get better and can look back at this as a bad nightmare

Thanks for the reply wuwei I would love to be able to take the medication , the side affects are so bad and as for anxiety medication that's what caused my hppd I'm trying my best to cope with the anxiety I just feel hopeless at the moment and hope I can get through it.

It's so scary when it takes over ur life everyday the visuals changing and the anxiety the feeling of dispear and knowing u'd be better of dead cause then u'd have peace , everyday I cry and think why my vision of all things night time is unbearable and does anyone have migraines with aura and extreme virtigo? I excepted it when my visuals stabilised and I was happy but I'm back to square one if not worse after taking antibiotics my chemistry is so messed !!

I'm from England haven't found a good doctor myself they all think it's mental health and send me to physiatrists which can be so annoying nobody believes me and all my doctors have to google hppd , would be great to meet a fellow sufferer .

Hello my name is lianne I've been a hppd sufferer for 2years and was coping very we'll untill recent I've got a kidney infection and have taken antibiotics which have made my visuals much worse I'm really scared as I have to take more antibiotics and I have hypersensivity to any medication except paracetamol , I feel in dispear as I carnt stop wats happening to me and everytime I explain to doctors and family they don't understand and think my anxiety is wats causing my visuals really need help , sorry for long rant and thanks for reading x

Hello everyone my name is lianne and I've been a hppd sufferer for 2years I excepted it 8 months ago and finally started to live a normal life , I recently got a uti/ kidney infection and have taken 3 lots of antibiotics which have made my visuals worse and I've still got the infection I'm so scared of taking anymore I really fear of never being able to see normal again I hate night times as lights starburst so bad it's hard just walking to the shop , the walls and every solid thing is breathing like crazy , the walls have a heatwave effect on them and the particuls that fly around the room drive me crazy i no it's gonna get worse and of rather die than it go worse don't no what to do anymore please help :-(

Hi bpl4269 how are u feeling now ? I'm going through a hard time at the moment I've had hppd for 2 years and just as I was on the road to recovery I have a uti and they've tried 3 different anti biotics which are making my visuals worse and my uti is still here so looks like I'll be taking more not only that I have really bad reactions to medication so I'm freaked out , do u have any reactions to medication ? Take care lianne