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Rozzer

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Everything posted by Rozzer

  1. Thank you for your advice, and the offer to send me Bio-Kult, that is very kind of you. But I can easily get it where I live, so you don't have to, but thanks anyway.. You're proberbly right that I should start out slowly, so I'll just get the Pau D Arco, C Vitamin and maybe Biokult to begin with. I will proberbly wait a bit with these supplements, until I have time to look into possible interactions with Lamictal..
  2. I don't mind taking a high dose of Vitamin C, I've already tried so much, and I think Vitamin C is the least harmfull of all the things I've tried.. So I'm going to place an order for Pau D Arco, Garlic pills, and Vitamin C powder. Is this all, or anything else?? My only concern is that I'm taking Lamictal right now, I was supposed to have weaned off it by now, but it seems impossible for me to make any reduction at all. So I'm going to see if there is anything on the net, about any interactions between all these..
  3. I'd be very interested in trying this out. But I don't think that I can eat pure garlic. Would supplements be good enough? Are these the only things that you use, garlic and Vitamin C? I would really like to know the whole protocol.
  4. Hey, thank you for your post. But please tell us some more, did you have visual problems aswell as mental? And did Niacinamide help with that?
  5. I actually think that the doctor is from Germany, He has a german name, and speaks with an accent..
  6. Great to hear, it gives me hope. Thank you for your updates, I will ask my doc about Keppra as soon as possible, this just sounds to good to be true.. I hope I am one of the lucky ones, like yourself
  7. How are things going r. trudeau? Are you still improving? And how much Keppra are you on taking a day now?
  8. I like the sound of this, I hope that you continue to see improvements. Please tell me, do you also suffer from light sensitivity?? And has Keppra been helpful with that? I always wondered if Keppra could help with that aswell..
  9. Congratulations on your success with Keppra, I envy you Please tell me, did you suffer from light sensitivity before Keppra? And do you notice any side effects from it? (Keppra I mean).
  10. HHB, I would be very interrested in obtaining that gigantic compilation og Keppra testimonials that you are mentioning. Could you please mail that to me at borupsteen@yahoo.com. I am going to try and get Keppra myself, and thinking that something like that would really help me.. Also, if you don't mind telling me, how much Seruquel are you taking a day? And in your case, what do you think that Seroquel is helping with?
  11. Timer, could you please post an update on this.. Have you started on a Beta-Blocker?? I just found out I have high blood-pressure aswell.. So I'd like to know how you are doing..
  12. Thank you for your advice, I have thought about Keppra myself, and I don't think that it's going to be a problem getting that prescribed. I'll definitely talk it over with my doc. However I don't think it's going to be possible getting prescribed Wellbutrin, since it's only approved to help with discontinuing smoking in my country and as I said before, I don't think I can get any doctor at all to prescribe me a dopamine agonists, off label, for a condition they don't even know, unfortunetely.. That's why Remeron seemed so perfect for me.. Well anyways, I will mention it for him.. Once again, thank your for your advice..
  13. Visual, do you have any advice for me.. I'm going to see my doc tomorrow, could be good to bring something usefull... I don't expect you to come up with anything that heals me, but I'd like to bring something to the table tomorrow, because aparently my doc's as blank as I am.. Thanks..
  14. "Sorry so many questions but it could be useful" I don't mind at all, in fact, I really appreciate that you are trying to help, so thank you!!! I just hope that I can give an informative answer, since english isn't my native language and I don't know all the "technical terms". As I wrote in my earlier post, I'm kinda stuck. So if I could forward some ideas to my doctor then I would at least be doing something... "Dietary issues - food sensitivity? digestive problems?" None at all, not that I've noticed anyway.. "Do you have a restless agitation, perhaps RLS?" I remember having this A LOT for the weeks that I was on Risperdal, but it subsided a couple of weeks (maybe a month) after I stopped the drug.. So right now, I don't have any of this either.. "Tinnitis?" I always had this way before taking Risperdal, I would say I suffer from this mildly, and it has not gotten any worse in the last year.. So I don't think it has been affected. "How is your sense of smell? Same? Less? More?" I have not noticed anything different about my smell sense, so I would say it's exactly the same... "Do you have muscle spasms, particularly in upper back and calves?" No, none of the above. In the first 6 months after stopping the drug, I noticed my eyelids where sometimes twitching, but that's it, and I don't have any problems at the moment with this. "Would you describe you visual symptoms? (snow? frames? motion problems? contrast problems? walls bow or ‘breathe’? auras or starbursts?)" Yes, this is where most of my problems are.. I suffer from dense visual snow, I see it everywhere 24 hour a day, I see it when I close my eyes, and of course when they are open (Proberbly like most of you do). This is worse in the evening when it's dark. I suffer from afterimages (Palinopsia) and burn-ins (Don't know if they are the same).. And if I look at my TV at night in a dim lit room, I'm practically blinded when I look away from the screen, because of the burn-in. Closed eyed hallucinations, when I go to sleep at night and close my eyes, it's like looking at a lava-lamb. Light sensitivity, This is proberbly the most disabling part of my condition. This is really bad. I can't go anywhere without sunglasses, and they don't even help that much. I see glare (don't know if this is right word) from everything.. Windows, light coloured buildings, water on the street, car windows and mirrors.. And it blinds me, and hurts really bad.. Both my eyes and head hurts when I'm blinded like this. When I am in a very bright room (Or looks at the sky), I see a lot of spermy like things wiggling around in my visual field (I'm sorry, I don't know what this is called, I hope you know what I mean, or I'll try to explain better.) I don't know if walls breathe when I look at them, but they are definitely in motion. But come to think of it, everything white or dark is, this is proberbly because of the snow.. Or the thing I described above. I would say the first three months after quitting the drug, I suffered terribly from having a VERY dim vision, everything and everywhere was very dark. That changed around three months after stopping. I think it's more normal now, but I don't think it's completely back to normal. But I definitely have contrast problems, I don't know if this is caused by my extreme light sensitivity or snow.. It's not so easy to explain, but the dark seems darker in some way.. I need more lights in my house now than I did before. I'm practically night blind. I proberbly have some motion problems aswell, but I can't really explain it right.. Almost everytime I open my eyes, it feels like something's wrong, but it's really difficult to explain.. This proberbly could be the DR, or snow, I don't know.. I noticed my pupils seem really big at times, and I don't remember them to be so large, but the ophthalmologist I went to said they where normal.. I don't know, it's just something that have have noticed.. Apart from these visual problems, I also suffer from DP/DR.. I have big problems with insomnia after this drug. My doctor has prescribed me sleeping pills, but I don't like taking them.. I also have problems with dizzyness, nausea. But this is not constant, and could be because of the lack of sleep. There you have it.. I'm sorry for making it so long.. If you have any more questions, don't hesitate to ask, also just tell me if you want me to explain more... Thank you for your time...
  15. Well, I was put on Risperdal for some anxiety issues, so my doc suggested I tried Risperdal. If any of us knew what this horrible drug would do to me, then he would never have suggested an antipsychotic.. It was different route he suggested (The risperdal, insted of xanax or an antidepressant) , and he said the drug was old and very well tested. Yeah right, little did he know.. Before I took (and stopped the drug), I have never in my entire life had have problems with DP/DR and all the visual stuff.. I'm actually not the first to suffer from HPPD-like symptoms after taking Risperdal, I found something online about Risperdal causing HPPD in another person, but the symtoms disappeared when she discontinued the drug. Well mine hasn't, it's been a little over a year now. And I haven't touched anything since I stopped the Risperdal.. I haven't tried anything to cure this. "What other meds have you tried?" Well, Xanax, Risperdal, Remeron, and for a very short while, Lexapro... This is all of my history with these kind of meds. I didn't take them at the same time, or right after another.. And I haven't taken any of them since the onset of my hppd-like symptoms. "When you took Remeron, did it help anything? How long after Remeron was it before you took Risperdal?" It's proberbly been 10 years or so since I took Remeron, so I hope I remember this correctly.. This was way before I started suffering from these HPPD-like symptoms, I remember I was going through some issues, had problems with insomnia, and suffered from mild/medium depression.. As I wrote before, I remembered Remeron was very good in helping me sleep.. It could have done more, I don't know.. Once my sleeping paterns became normal, I remember things were clearing up in my life back then.. I was proberbly on it for about 6-8 months (I'm not exactly sure, can't remember). So I would proberbly say there was about 9-10 years in between I took Remeron and Risperdal.. "What does the doctor want to have you try now?" Well my doctor seems as much baffled by this as I am.. I only took Risperdal for about 3-4 weeks before discontinuing it last year, I haven't touched anything since.. But up until now, he dosn't want to put me on any kind of medication. He's afraid it might make things worse.. In the beginning he was very certain that this would resolve by itself.. That I was just being very sensitive to the drug, or it was some kind of withdrawal thing. But it unfortunetely has never cleared up by itself. In the last year he's arranged for me to have my eyes checked, and get a MRI-scan of the brain.. My eyes where good, and the scan was normal.. So from my point of view, he dosn't really know what to do now at all. He has never heard about this before, an certainly not from taking Risperdal for such a short period of time. So that's it, my sad story..
  16. Visual, Well in my case, it's proberbly a bit different than most of you, since I got HPPD from medicine, I've never taking any drugs or anything. But I have the exact same symptoms as you all have, the visual stuff, DP/DR ect. My problems actually started from taking Risperdal in a very short period of time last year, and sadly, the problems only got worse when discontinuing the drug. So if you say that Remeron is the opposite of an anti-psychotic, then maybe that's exactly what I need. I don't know.. I've actually been on it before all these HPPD-like problems started, and I only have possitive things to say about it, but things are different now. Back then I only experienced mild side-effects from it, like dry mouth, a little weight gain.. And besides that, Remeron is proberbly my only chance of getting on something that raises Dopamine levels a bit, because Wellbutrin is only prescribed to help with stop smoking in my country. And I really don't think that I can get any doctor to prescribe it off-label for something they don't understand, and have never heard about. I don't know, I'm really at a loss here.. I've had these problems for about a year now, I just feel like I have to do something.. My whole life is so messed up because of this..
  17. Visual, do you think that Remeron could help in anyways?? I know that you can't give a definite answer, I'm just looking for your opinion on this. Also, do you think that it could make things worse?
  18. Sound good Gill, Yeah the main reason for me to want to go on a antidepressant, is to help with DP/DR, I would just like to feel like my old self again.. You wrote that you take Zoloft, and that it has improved your perception, could you please tell me a bit more about this. Has it helped with the visuals, snow, light sensitivity, palinopsia??? And if you don't mind telling, at what dosage do you take Zoloft? Thanks in advance. I can see from the other answers that I'd got, that maybe Remeron isn't such a good idea.. To bad, I've been on it before (Before HPPD), and I really feel like it helped. And besides HPPD I suffer terrible from insomnia, and from what I remember, Remeron was also really good for that. Ah well, I'll proberbly have to try something else, because I definitely wouldn't like to make anything worse than it already is..
  19. Hello Please give an update on this.. This sounds very interesting..
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