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  1. I want you to know it will get better. The first three years are the hardest. If you are on this forum you probably are at the point where you are considering medication. I have been lurking this forum for years and want to give back something, even if it's a small contribution. Lamictal: I was on 200mg a day before starting Keppra. I found this medication moderately reduced visual snow and tinnitus, but had no effect on panic attacks. If those two aforementioned symptoms are your main issues I reccomend this medication. Klonopin: I took this for 2 years at 1mg every day for 4 days t
    3 points
  2. No problem, this disorder can be debilitating but a lot of the struggle is due to manufactured stress by ourselves (we can be our own worst enemies by worrying all the time!). What worked for me was staying busy and healthy and keeping my mind occupied. By healthy I mean -stop all drugs -get as much sleep as you can -exercise -eat well -And stay positive! Life is beautiful and it will get better if you cut drugs out. Also, it's nice to know that lots of people make a full recovery if given enough time. The next few months will probably be rough but reach out
    3 points
  3. A few days ago was my sixth anniversary of getting HPPD. Crazy to think I've been making this post every year for the last six years. As I noted in my Five-Year Anniversary post my life has changed in ways I could have never imagined. The past calendar year has been the craziest of my life and I'm sure many feel that same way due to Covid. I did want to post a quick update as I've had a bit of a setback with my symptoms... Long story short I had to take two courses of antibiotics in February and then had a major allergic reaction to a cosmetic product I used for a few weeks which left me
    2 points
  4. @scaredhuman thanks man, I'm definitely doing pretty well. I've realized my visual problems are pretty insignificant and ignorable unless I'm getting extremely anxious. The last few days have been pretty tough, however, as I made the mistake of getting wrapped up in the r/hppd subreddit and got filled with tons of negativity and worries that recovery is pretty much impossible, which in turn made me focus on the visuals more making me perceive them as even worse, thus producing more anxiety. The contrast between the positive and helpful community on this site and the existential negativity
    2 points
  5. We managed to secure $50,000 from the individual behind the HPPD foundation and had the money donated to support Dr. Harry McConell's work. The recruitment phase for the research should start soon. People interested in participating can do so by sending their information, which will be held confidential here: studyrecruitment@neurogroup.org. This is our time to collectively make a difference in putting HPPD front and center with the intent of one day finding the root cause of this condition and a cure.
    2 points
  6. Hi all This forum doesn’t seem to be too active anymore but I’m desperate and will post anyway heh So, I seem to have developed HPPD from a single pill of ecstasy/mdma mixed with weed about 5 weeks ago. Since then, symptoms have gradually showed up and worsened. I have every VSS symptom, such as: snow, tracers, halos, starbursts, floaters, afterimages, etc. From reading on here it seems like those with LSD and Shroom induced HPPD have an easier go at it at recovering... it’s making me feel really down and hopeless. I think I’m going to be stuck with this shit forever
    2 points
  7. Hey everyone, it's been a long time since I came back to this forum, haven't come on here in a while since I completely forgot about my HPPD for a bit. I've laid off all drugs and alcohol (even caffeine) for at least the past year and I feel pretty good. My symptoms are almost nonexistent, the one thing that's still around is the visual snow but I also don't notice it unless I try or if I'm looking at a solid color. From what I've gathered from some facebook users that got HPPD from the same drug I did (nBOME), the visual snow is there to stay but it's honestly fine at this point. The only thi
    2 points
  8. Nice to meet you Garris, my name is Nick. Welcome to the forum and thank you for replying to my earlier post, I appreciate your input. You will find many experienced, honest and kind people on this forum and we look forward to getting to know you. Take Care!
    2 points
  9. Hi, I am a new member of this forum, I hope you are all well. 3 years ago, I took LSD for the first (and only) time. My trip was not entirely bad, and for the first few weeks after it, I didn't really have any issues. I continued to recreationally take MDMA and ketamine in social settings with no effects. However, after 2 months, I smoked weed, and it felt like I was back in a trip. This brought on a panic attack and intense anxiety. It seemed to had triggered something in my brain as taking MDMA/ketamine after that also made me feel as if I was in a trip mentally and would result in real
    2 points
  10. I smoked on and off for the past few years, have had HPPD and pretty significant visuals for 20 years. I didn't even THINK about smoking weed until like... 15 years in. It definitely has the potential to trigger some high anxiety, depending on how you cope with that, i mean... it's your body, your choice. Your mind too, lol. I started toking again because I enjoyed gigging while stoned. But never, ever, has it felt like it used to, where it would relax me. Actually, there were many times i'd have full blown psychosis, this was helpful in certain situations (like editing, writing, or
    2 points
  11. I can't even Imagine fully recovering, then risking it all for a bit of weed. There are easier ways to reduce stress... Take up a hobby, exercise etc If you are serious about using weed to de-stress and not just an excuse to basically say "i want to get a high again"... then at least try a CBD only strain.
    2 points
  12. Here guys. I wrote this in the hard time of my life. HPPD, school problems , personal ones. My style changed since then, but It means a whole lot to me and it gave me strength to go on. And I hope it will help you too. I am alone, But was I ever not so? I am losing battles, But did I ever really win? Fate's a cruel thing without a doubt, Or was it me who made life taste like spoiled milk? You can make me doubt myself But what you can't, is break me. And no one can, And no one will, But please, I beg you, don't forget m
    2 points
  13. if you're 37 and you made a recovery from your 20s; In my opinion you are well-qualified to recover again. Fear is the mindkiller as is said in the dune series. Practice breathing, take a walk, let your visuals take over, you may find they aren't that powerful. I had 20 years or so of "no symptoms" but what that really means to me is that i ignored them successfully for that long. Earlier this month i did something totally nuts, and took .2 g of psylicibin cubensis, usually not enough for a full on trip. but now i've got some recovering to do myself. the anxiety is what se
    2 points
  14. Well, listen, considering that u didn’t even get high and that u noticed change in ur hppd few days later, I think it’s very unlikely that the weed did smth. Look up the forums. Ppl say that smoking does make it worse but ofc that get high and start seeing the change in hppd almost str8 away. U mentioned trails. So what happened was that u got the trails and then u started feeling anxious and had dp/dr? That would Ofc mean that it’s not hppd per say but a neurotic reaction to the trails. Apart from weed, was there anything else? Maybe some psychological stuff?
    2 points
  15. Risperidone is a No No for hppd. In the farmacology section of Risperidone is actually a inverse agonist of the 5ht2a receptor ( the one that we think hppd is affected ) That means that it actually bind to the receptor without producing any effect. But to some already sensitive 5ht2a receptors this is actually wrong,because in such scenario activation seems to happen. I know because i was given risperidone and symptoms worsened. Stay away from that stuff. Is such a cheap and strong medication that's why they give it so much but it actually is dirt, there are other wa
    2 points
  16. Sounds like most of your issues are coming from the meds... I would taper down and just live a totally clean life for a while, get to understand your illness, see what makes you worse/better, try to de-stress etc Remember, saying no to a doctor is your absolute right.
    2 points
  17. If you give yourself more time to heal I think there's a good chance symptoms will become more stable. Not to say they don't vary but the frequency (at least for me) of intensification has gone down over time. I can still flare up from anxiety and lack of sleep but meditation has helped with that. I wouldn't read too much into your day to day progress this early, just go with it and know as long as you stay of drugs the symptoms will likely recede. Good luck!
    2 points
  18. Based off your reaction I would advise you do not take any more. most people with hppd do not respond well to antipsychotics. They often effect dopamine (maybe positive) but also they interact with the 5ht2a receptor. I am sure this is very intense feeling. You are going to get better with time and total drug abstinence. Do this for a few years (I know it must seem like a long time but it is not). you are lucky— you are young and the brain can heal at your age very quickly compared to when you are older. the only drugs I can think to recommend very early
    2 points
  19. Hi Justan— I just want to add that the brain is highly plastic at your age I know it sounds really dumb when “adults” say you shouldn’t drink and do drugs until a certain age but that is because your brain is actually still developing hahah. What adults should add, after that, is if you wait to do these things until your brain has cemented a bit, you will have a more enjoyable experience with substances over the whole of your life, and more likely (and most importantly to me) a greater baseline happiness. do you have hppd? No one here can tell for certain if you have or are s
    2 points
  20. Hey guys month 6 hppd journey things are better now. I have very rare visuals,but it's mostly visual snow and tinnitus. I found and i'm trying a herb which takes 8 to 12 weeks to work but might solve my problems finally. Its name is bacopa monnieri. One of the only herbs known to upregulate gaba receptors. Currently i use lemon balm and with increased usage i see my tinnitus quiets down and my visual snow is less. Lemon balm, Melissa officinalis, is an annual edible herb that’s native to Europe. Its traditional medical applications focus on the essential oil components
    2 points
  21. UPDATE: I am 90% better objectively. All symptoms have reduced heavily. The only thing that helped me recovery was time, absence off drugs, and doing new hobbies (neurogensis). This is not a joke. I had serious hppd a year ago, as all can see from my panicked replies.
    2 points
  22. Hi there, My name is Alex, I'm a third-year psychology student at University Greenwich (London, UK). Although I don't have HPPD, I'm very interested in understanding more about it. As such, my final-year research project is a survey investigating individual differences and HPPD. My research project is under the supervision of Dr. David Luke, a long-standing psychedelic researcher in the UK and author of many books on the subject. Dr. Luke is a senior lecturer at University of Greenwich and honorary senior lecturer at Imperial College London - the home of the bulk of psychedeli
    2 points
  23. Hi there, My name is Alex, I'm a third-year psychology student at University Greenwich (London, UK). Although I don't have HPPD, I'm very interested in understanding more about it. As such, my final-year research project is a survey investigating individual differences and HPPD. My research project is under the supervision of Dr. David Luke, a long-standing psychedelic researcher in the UK and author of many books on the subject. Dr. Luke is a senior lecturer at University of Greenwich and honorary senior lecturer at Imperial College London - the home of the bulk of psychedeli
    2 points
  24. StuffThatWorks is a research database founded in 2018 that provides insights on chronic disorders. The sufferers of the disorders provide various data such as their symptoms and the treatments they have tried. StuffThatWorks recently created a database for HPPD. If enough people join the community and answer questions, their machine learning algorithms will discover potential treatments for HPPD based on the trends in data. They will also find other things such as triggers, demographics, comorbidities, and early warning signs of HPPD. StuffThatWorks could also possibly provide data to med
    2 points
  25. Hello, I just made an account here. It's very bad. I wish I would be exaggerating but the amount of pain I am going through is unbelievable and I simply can't take it anymore. I have had mild HPPD for 2-3 years. It wasn't even that mild but I saw spiritual meaning in it and I actually enjoyed it. Well for the most part. Things got bad 8 months ago when I experienced a huge panic attack on LSD. I had Xanax and that drug literally saved my life that day. But next day I woke up feeling so anxious, hyperaware, it felt like the trip didn't even end. I ended up in the ER a couple days a
    2 points
  26. Hi. My visual snow was bad in the beginning. From 13 to about 23 I had visual snow. I must admit that from 13 to 17 I was just making it worse from all the smoking, herb. But from 17 to 23 I did see improvement after I stopped all smoking weed and taking psychedelics. Where it got to the point that I could barely even see it by 24 years of age. I found though that once I became more comfortable with the Visual Snow and tried paying less attention to it that it slowly started going away. It takes a really long time so watching it and waiting for it makes it seem like an endless journey. So
    1 point
  27. Nice, you're obviously pretty intelligent. I apologize I may have misunderstood a couple things you've said regarding current drug use. We are definitely not profitable lmao. As far as antibiotics and dreams I do not currently have any information on, its the first I have heard it for HPPD sufferers. I haven't done very extensive research on antibiotics either to know how they may potentially interact with the nervous system as well. I do know there are quite a lot of compounds(especially herbs) that stimulate dreams though, so its not too unheard of imo, as to the direct correlation
    1 point
  28. As I have previously mentioned, this study is referencing nicotinamide, which is a form of Niacin, but not Niacin, Niacin is nicotinic acid, and does not have the same side affects as nicotinamide. The study if you read that you posted also says that safe doses for nicotinamide are 1500mg, and express a great deal of neuroprotective effects. The dose I recommend for Niacin is 1gram only. By shit fuck, yes, I mean everything is fucked, and in my honest opinion, personally and without evidence of it I'm assuming HPPD sufferers are sadly in fact facing higher end levels of neuronal loss. Eve
    1 point
  29. I tried it after seeing the hype on reddit... Did nothing for me, sadly. Tastes like shit too
    1 point
  30. I've gone 6 weeks a few times... I've also chatted to several top neurologists about this. I'll take their advice over "the benzo group" thanks very much.
    1 point
  31. I just recently talked to a guy that got HPPD with a loads of visual hallucinations, visual snow, dpdr etc about 10 years ago. He thought that he had destroyed his brain permanently, so he said "fuck it" and started using benzos and alcohol at a daily basis. Anyways, after a few years all his visual hallucinations went away and today his visual snow has decreased alot, he said that his HPPD is 95% gone. He did stop with the benzos and alcohol about 4 years ago and these improvements remained, his dpdr is still there though. The benzo withdrawals were so bad that he had to put himself in though
    1 point
  32. I used to have trails, geometric patterns in wood-grain/various surfaces, vision that looked very "fluid", micropsia, visual snow (this hasn't gone away, but it's never bothered me), and a visual that I think is DP/DR related and not related to HPPD, where people under flourscenet light looked demonic/dead-looking (could also be a PTSD response, the trip that gave me HPPD was a really bad trip where dying was a big theme). I can't give a precise amount of time that my HPPD has been gone because I started taking Klonopin within a year of getting the disorder, which masks the symptoms. I do
    1 point
  33. The NRF is on the cusp of the first in depth research study into HPPD which will require funding and participants. Basic information can be found here: https://www.neurogroup.org/hppd-research-study/ I highly encourage every board member to take the time to volunteer and enlist. In order to enlist, please access this link: https://www.neurogroup.org/the-foundation/register-with-the-nnrf/ The results from the first phase of the research will ultimately lead to other sites around the world. Having a database at hand of patients delinated by countries and cities will ex
    1 point
  34. My doc knows nothing about HPPD and I'm being treated for drug induced psychosis. I feel like I have both. I had many psychotic trips and I never really recovered from them. Sometimes I hear voices inside my head that are not my own, sometimes Im afraid they will take over my mind. I also have a lot HPPD symptoms. I rarely leave my house, can't live on my own anymore, can't even stay in my own house alone at night, my condition is very severe. I've been sober for a year, HPPD and the psychosis thing started 3 years ago at the same time. After a psychotic trip I was left with HPPD symptoms +
    1 point
  35. Hello, I'm sorry to hear how much you're struggling. I myself contracted HPPD from excessive LSD and mushroom use but from what I have heard there are many cases of people recovering from MDMA use as well. You're still very early in your recovery, I know it might not seem like it but your best friend will be time. Also, you very young with a short history of drug use so I would say your chances of full recovery are pretty high. I tell everyone the same thing: Stop all drugs (even alcohol for a but if you can) Get as much sleep as you can Exercise regularly even if
    1 point
  36. Hey there, My name is Bill 22yo and I'm new to this forum. I was a heavy drug user during my teens (16-19yo). I took lots of Ecstasy, LSD, Ketamine, Coke and other research compounds. Starting from 3 years ago I totally decided to change my life. Stopped taking most substances, started to exercise more, meditate, eat healthy and use different supplements and biohacking tools to heal and recover. Since then, I only had a couple of trips and few micro doses of LSD in a spiritual and therapeutic context. Last Thursday, I decided to take 1.5mg (Micro dose) of 4-ACO DMT (Synthetic shrooms) after on
    1 point
  37. Hey, as I said last week, I was writing a research article reviewing what we know about the potential causes, and — by extension — treatments. I just published the article on my blog. It's very extensive, with each possible cause being discussed in detail. I hope it doesn't have too many inaccuracies, and that it helps some people. Both with treating their HPPD and with advancing research in the future. Thanks.
    1 point
  38. Hey what’s up man. I also got hppd in the summer of 2016. Been one hell of a ride and yeah it’s gone down a lot for me too. The first 2 years were the hardest. I’m 23 now and I really only notice visual snow and brain fog, occasional tracers but only if I’m looking at something bright.
    1 point
  39. I have a lot of that kind of yo-yo-ing. couldn’t tell you why
    1 point
  40. Hey guys, My name is Oisín. I'm a software developer from Ireland. I've been lurking this forum ever since I got HPPD 4 months. Since then I've stopped smoking weed and doing hard drugs. I stopped drinking alcohol and coffee for a few months, but I've recently started back - although not nearly as heavily as before. I got HPPD 4 months when a few friends and I took an MDMA-like RC, followed by an edible the next day. I didn't notice anything much until 2 months later when I started noticing slight afterimages. Luckily I noticed it in time to improve my lifestyle, because now 4 m
    1 point
  41. Advice/tips, sure. I've lived with this disorder for a long time. That doesn't make me an expert by any stretch of the imagination, but I know what works for me. Be kind to yourself because you've done nothing wrong. Exploring the mind using psychoactive compounds is as ancient as human thought. We're curious beings so taking the plunge doesn't make anyone a bad person. We're just in the unfortunate minority to have contracted this disorder. Get focused. Be it school, work, hobbies, philosophy, whatever. Stay focused and try not to focus on symptoms. If anxiety is an is
    1 point
  42. you’re totally right about my anxiety brought me to this forum, which i stalked RELENTLESSLY for WEEKS before posting lmao. weed was a bit stronger for me after i tripped but i DO attribute this to being worried about hppd because i was 100% okay until i started worrying about hppd and then my heart would race a little. the thing is i study mental health which is why i think i’ve held onto hppd so tightly. as for never doing hallucinogens again, that’s a strong no for me. it was cool and all but i now know the dangers and my anxiety is WAYYY too high for that lmao. ive
    1 point
  43. Hello everyone, I've seen this forum for a few weeks now and I think it is finally time for me to share my story and my experience with HPPD. For ~20 years I was a teetotaler and I wouldn't do any illicit drugs, and I didn't particularly like caffeine either. Part of this was because I was horrendously, suicidally depressed when I was in highschool, from 2013-2017. I was afraid to take any intoxicating substances because of my fragile mental state, and a family history of addiction. I was also on a large cocktail of mental-health medications that included Celexa, Hydroxyzine, Gabapentin a
    1 point
  44. I don't doubt that's true for you, as everybody varies, but I was here a long time before this current account, and in general a sizeable amount of people that have HPPD that end up using marijuana again end up with permanently worse HPPD symptoms. I feel it's not wise advise to give people to take weed, they may be unlucky and it can end up destroying their life even further. I do understand your point of view, I just personally feel like this is the wrong advice to be giving to him, especially right now.
    1 point
  45. I would say the trippy thought processes.... It makes even the simplest task or conversation into something where I feel i'm clinging onto my sanity.
    1 point
  46. This is a good list. I am setting up the space where people with HPPD, their allies or medical professionals can use to look up information about the big questions: What pharmacological treatments have evidenced based positive results? What medications are specifically CONTRAINDICATED for individuals with HPPD? The page would have 30 or so medications I would imagine. It could be broken down into a Professional and a Consumer Page. I think it would be nice if a more advanced write up with citations were included as a Continuing Medication Education "type" certification, which a lice
    1 point
  47. @hope1 Science takes time, and it is very common to release findings and ongoing research. First of all, peer review is important. Releasing what you're working on might come to the attention of others doing the same or similar research. This can benefit both parties and eliminate duplication of efforts.
    1 point
  48. Us humans can often feel guilty about things we've done that we're not proud of, failures, missed opportunities, etc. Feeling guilty about using drugs may be directing your focus toward your symptoms. One of the ways I've dealt with this disorder is to set my focus away from my symptoms. If you think in a religious framework perhaps focusing on self forgiveness and prayer may help.
    1 point
  49. Sounds like I'm having a similar experience. Had HPPD for 20 years after taking Acid aged 14. Was getting a lot better but, like you, I started taking coke and have had a bit of a relapse. If be interested to hear more about these MP3s? Several months ago I mentioned in the introduction forum that I had dealt with HPPD since about 1974 and have for the most part come through it all successfully, though not unscathed by any means. I said I'd share the list of thing that I feel helped me, with the hope that others can find some help too. ---- * Intro: My HPPD started after I'd taken many a
    1 point
  50. I have these symptoms as well. I think, perhaps in part, it may be interrelated with DP/DR, as I find I also have a general lack of environmental/spatial awareness at all times, which doesn't seem to be related to visual symptoms, but rather as if not every part of the picture is registering in to my consciousness. Perhaps improved spatial awareness will also help build a stronger sense of direction; this is something I find severely lacking when transporting myself. In any case, it does seem to hold more merit than merely micromanaging neurotransmitters/receptors. As for 7,8-DHF; it should b
    1 point
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