Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation since 06/18/2020 in all areas

  1. I waste too much time worried about a lot of things that I don't have control over, but I also have a lot of control of preparing my family to spend another three months in 100% quarantine because that is what I have agreed to do. Dr. Abraham is retired 100%, and I am unable to do any work at the time as I am primary caregiver to my mother who has 1 kidney, COPD, congestive heart failure, pacemaker and defibrillator and she lives at our family home, which we plan on selling eventually, but in the mean time I am the only family member that can do my best to keep the coronavirus out, which i
    5 points
  2. I want you to know it will get better. The first three years are the hardest. If you are on this forum you probably are at the point where you are considering medication. I have been lurking this forum for years and want to give back something, even if it's a small contribution. Lamictal: I was on 200mg a day before starting Keppra. I found this medication moderately reduced visual snow and tinnitus, but had no effect on panic attacks. If those two aforementioned symptoms are your main issues I reccomend this medication. Klonopin: I took this for 2 years at 1mg every day for 4 days t
    3 points
  3. No problem, this disorder can be debilitating but a lot of the struggle is due to manufactured stress by ourselves (we can be our own worst enemies by worrying all the time!). What worked for me was staying busy and healthy and keeping my mind occupied. By healthy I mean -stop all drugs -get as much sleep as you can -exercise -eat well -And stay positive! Life is beautiful and it will get better if you cut drugs out. Also, it's nice to know that lots of people make a full recovery if given enough time. The next few months will probably be rough but reach out
    3 points
  4. A few days ago was my sixth anniversary of getting HPPD. Crazy to think I've been making this post every year for the last six years. As I noted in my Five-Year Anniversary post my life has changed in ways I could have never imagined. The past calendar year has been the craziest of my life and I'm sure many feel that same way due to Covid. I did want to post a quick update as I've had a bit of a setback with my symptoms... Long story short I had to take two courses of antibiotics in February and then had a major allergic reaction to a cosmetic product I used for a few weeks which left me
    2 points
  5. @scaredhuman thanks man, I'm definitely doing pretty well. I've realized my visual problems are pretty insignificant and ignorable unless I'm getting extremely anxious. The last few days have been pretty tough, however, as I made the mistake of getting wrapped up in the r/hppd subreddit and got filled with tons of negativity and worries that recovery is pretty much impossible, which in turn made me focus on the visuals more making me perceive them as even worse, thus producing more anxiety. The contrast between the positive and helpful community on this site and the existential negativity
    2 points
  6. We managed to secure $50,000 from the individual behind the HPPD foundation and had the money donated to support Dr. Harry McConell's work. The recruitment phase for the research should start soon. People interested in participating can do so by sending their information, which will be held confidential here: studyrecruitment@neurogroup.org. This is our time to collectively make a difference in putting HPPD front and center with the intent of one day finding the root cause of this condition and a cure.
    2 points
  7. Hi all This forum doesn’t seem to be too active anymore but I’m desperate and will post anyway heh So, I seem to have developed HPPD from a single pill of ecstasy/mdma mixed with weed about 5 weeks ago. Since then, symptoms have gradually showed up and worsened. I have every VSS symptom, such as: snow, tracers, halos, starbursts, floaters, afterimages, etc. From reading on here it seems like those with LSD and Shroom induced HPPD have an easier go at it at recovering... it’s making me feel really down and hopeless. I think I’m going to be stuck with this shit forever
    2 points
  8. Hey everyone, it's been a long time since I came back to this forum, haven't come on here in a while since I completely forgot about my HPPD for a bit. I've laid off all drugs and alcohol (even caffeine) for at least the past year and I feel pretty good. My symptoms are almost nonexistent, the one thing that's still around is the visual snow but I also don't notice it unless I try or if I'm looking at a solid color. From what I've gathered from some facebook users that got HPPD from the same drug I did (nBOME), the visual snow is there to stay but it's honestly fine at this point. The only thi
    2 points
  9. Nice to meet you Garris, my name is Nick. Welcome to the forum and thank you for replying to my earlier post, I appreciate your input. You will find many experienced, honest and kind people on this forum and we look forward to getting to know you. Take Care!
    2 points
  10. Hi, I am a new member of this forum, I hope you are all well. 3 years ago, I took LSD for the first (and only) time. My trip was not entirely bad, and for the first few weeks after it, I didn't really have any issues. I continued to recreationally take MDMA and ketamine in social settings with no effects. However, after 2 months, I smoked weed, and it felt like I was back in a trip. This brought on a panic attack and intense anxiety. It seemed to had triggered something in my brain as taking MDMA/ketamine after that also made me feel as if I was in a trip mentally and would result in real
    2 points
  11. I smoked on and off for the past few years, have had HPPD and pretty significant visuals for 20 years. I didn't even THINK about smoking weed until like... 15 years in. It definitely has the potential to trigger some high anxiety, depending on how you cope with that, i mean... it's your body, your choice. Your mind too, lol. I started toking again because I enjoyed gigging while stoned. But never, ever, has it felt like it used to, where it would relax me. Actually, there were many times i'd have full blown psychosis, this was helpful in certain situations (like editing, writing, or
    2 points
  12. Here guys. I wrote this in the hard time of my life. HPPD, school problems , personal ones. My style changed since then, but It means a whole lot to me and it gave me strength to go on. And I hope it will help you too. I am alone, But was I ever not so? I am losing battles, But did I ever really win? Fate's a cruel thing without a doubt, Or was it me who made life taste like spoiled milk? You can make me doubt myself But what you can't, is break me. And no one can, And no one will, But please, I beg you, don't forget m
    2 points
  13. if you're 37 and you made a recovery from your 20s; In my opinion you are well-qualified to recover again. Fear is the mindkiller as is said in the dune series. Practice breathing, take a walk, let your visuals take over, you may find they aren't that powerful. I had 20 years or so of "no symptoms" but what that really means to me is that i ignored them successfully for that long. Earlier this month i did something totally nuts, and took .2 g of psylicibin cubensis, usually not enough for a full on trip. but now i've got some recovering to do myself. the anxiety is what se
    2 points
  14. Well, listen, considering that u didn’t even get high and that u noticed change in ur hppd few days later, I think it’s very unlikely that the weed did smth. Look up the forums. Ppl say that smoking does make it worse but ofc that get high and start seeing the change in hppd almost str8 away. U mentioned trails. So what happened was that u got the trails and then u started feeling anxious and had dp/dr? That would Ofc mean that it’s not hppd per say but a neurotic reaction to the trails. Apart from weed, was there anything else? Maybe some psychological stuff?
    2 points
  15. Risperidone is a No No for hppd. In the farmacology section of Risperidone is actually a inverse agonist of the 5ht2a receptor ( the one that we think hppd is affected ) That means that it actually bind to the receptor without producing any effect. But to some already sensitive 5ht2a receptors this is actually wrong,because in such scenario activation seems to happen. I know because i was given risperidone and symptoms worsened. Stay away from that stuff. Is such a cheap and strong medication that's why they give it so much but it actually is dirt, there are other wa
    2 points
  16. Sounds like most of your issues are coming from the meds... I would taper down and just live a totally clean life for a while, get to understand your illness, see what makes you worse/better, try to de-stress etc Remember, saying no to a doctor is your absolute right.
    2 points
  17. If you give yourself more time to heal I think there's a good chance symptoms will become more stable. Not to say they don't vary but the frequency (at least for me) of intensification has gone down over time. I can still flare up from anxiety and lack of sleep but meditation has helped with that. I wouldn't read too much into your day to day progress this early, just go with it and know as long as you stay of drugs the symptoms will likely recede. Good luck!
    2 points
  18. Based off your reaction I would advise you do not take any more. most people with hppd do not respond well to antipsychotics. They often effect dopamine (maybe positive) but also they interact with the 5ht2a receptor. I am sure this is very intense feeling. You are going to get better with time and total drug abstinence. Do this for a few years (I know it must seem like a long time but it is not). you are lucky— you are young and the brain can heal at your age very quickly compared to when you are older. the only drugs I can think to recommend very early
    2 points
  19. Hi Justan— I just want to add that the brain is highly plastic at your age I know it sounds really dumb when “adults” say you shouldn’t drink and do drugs until a certain age but that is because your brain is actually still developing hahah. What adults should add, after that, is if you wait to do these things until your brain has cemented a bit, you will have a more enjoyable experience with substances over the whole of your life, and more likely (and most importantly to me) a greater baseline happiness. do you have hppd? No one here can tell for certain if you have or are s
    2 points
  20. Hey guys month 6 hppd journey things are better now. I have very rare visuals,but it's mostly visual snow and tinnitus. I found and i'm trying a herb which takes 8 to 12 weeks to work but might solve my problems finally. Its name is bacopa monnieri. One of the only herbs known to upregulate gaba receptors. Currently i use lemon balm and with increased usage i see my tinnitus quiets down and my visual snow is less. Lemon balm, Melissa officinalis, is an annual edible herb that’s native to Europe. Its traditional medical applications focus on the essential oil components
    2 points
  21. UPDATE: I am 90% better objectively. All symptoms have reduced heavily. The only thing that helped me recovery was time, absence off drugs, and doing new hobbies (neurogensis). This is not a joke. I had serious hppd a year ago, as all can see from my panicked replies.
    2 points
  22. Hi there, My name is Alex, I'm a third-year psychology student at University Greenwich (London, UK). Although I don't have HPPD, I'm very interested in understanding more about it. As such, my final-year research project is a survey investigating individual differences and HPPD. My research project is under the supervision of Dr. David Luke, a long-standing psychedelic researcher in the UK and author of many books on the subject. Dr. Luke is a senior lecturer at University of Greenwich and honorary senior lecturer at Imperial College London - the home of the bulk of psychedeli
    2 points
  23. Hi there, My name is Alex, I'm a third-year psychology student at University Greenwich (London, UK). Although I don't have HPPD, I'm very interested in understanding more about it. As such, my final-year research project is a survey investigating individual differences and HPPD. My research project is under the supervision of Dr. David Luke, a long-standing psychedelic researcher in the UK and author of many books on the subject. Dr. Luke is a senior lecturer at University of Greenwich and honorary senior lecturer at Imperial College London - the home of the bulk of psychedeli
    2 points
  24. StuffThatWorks is a research database founded in 2018 that provides insights on chronic disorders. The sufferers of the disorders provide various data such as their symptoms and the treatments they have tried. StuffThatWorks recently created a database for HPPD. If enough people join the community and answer questions, their machine learning algorithms will discover potential treatments for HPPD based on the trends in data. They will also find other things such as triggers, demographics, comorbidities, and early warning signs of HPPD. StuffThatWorks could also possibly provide data to med
    2 points
  25. We are now in a very strange world where if someone doesn't like X, it can be waved away as fake. It's the perfect stretch in reality for the person, as anyone who claims that X is real is also part of what makes it fake.
    2 points
  26. Hey, I hope you're well. I do meditate and find it to be very helpful. For me it reduces anxiety and anything that does that will help with my HPPD. I have found that sticking to a regular schedule (at least once per day) with a comfortable position, over time provided some wonderful benefits. These include increased feelings of wellbeing, better memory and increased energy to name a few. As far as whether it will aggravate the symptoms, I wouldn't worry about that. If it does it's only temporary and in the long run is likely to do more good than harm. Also I have found that a
    2 points
  27. Yes I definitely have a habit of staring at stuff on days when the visual snow / lights & color changes / static lines / strobe light effect are worse (usually the day after drinking, or if I've had too much caffeine). The best way I get around this is by doing tasks that are simple, habitual, and that require some thought and action (so not just watching tv, at least for me), but not TOO much thought since the days when the visual snow are worse are often accompanied by brain fog. A common task I go to is cleaning. I put on a background podcast too that I may or may not listen to,
    2 points
  28. Hi all, I was a part of this community many years ago as a wee lad when my symptoms first began to settle. I thought I'd login to post an update as to the current mental state I'm in, what recovery (as good as can be) is like, and what you can expect if you're relatively new to HPPD. I first had HPPD symptoms after taking a one-time dose of mushrooms, I believe around 2 grams; the initial trip went fine, in-fact it was quite a lot of fun. After coming down, I didn't feel normal.. I felt strange, odd, different, but couldn't pinpoint what it was. It was like something had clicked, snapped,
    2 points
  29. Hello, I just made an account here. It's very bad. I wish I would be exaggerating but the amount of pain I am going through is unbelievable and I simply can't take it anymore. I have had mild HPPD for 2-3 years. It wasn't even that mild but I saw spiritual meaning in it and I actually enjoyed it. Well for the most part. Things got bad 8 months ago when I experienced a huge panic attack on LSD. I had Xanax and that drug literally saved my life that day. But next day I woke up feeling so anxious, hyperaware, it felt like the trip didn't even end. I ended up in the ER a couple days a
    2 points
  30. Maybe it's a good thing to let /hppd have all the "hey, i've had hppd for 26.5 hours now and was thinking about combining LSD and crack while shoving salvia up my ass, will this make me better or worse" posters
    2 points
  31. It is going to be okay! Glad you're here. This forum is great source of hope for many people including myself.
    1 point
  32. Thank you for sharing your story Marco. Life is not over when one contracts this condition and I really identify with a lot of what you said. Resilience is definitely as asset for people like us and I agree that the circumstances enable us to become more compassionate people especially when we recover. Keep your head up and continue to move towards what you want out of life. I wish you the best. Take Care, Nick
    1 point
  33. I used to have trails, geometric patterns in wood-grain/various surfaces, vision that looked very "fluid", micropsia, visual snow (this hasn't gone away, but it's never bothered me), and a visual that I think is DP/DR related and not related to HPPD, where people under flourscenet light looked demonic/dead-looking (could also be a PTSD response, the trip that gave me HPPD was a really bad trip where dying was a big theme). I can't give a precise amount of time that my HPPD has been gone because I started taking Klonopin within a year of getting the disorder, which masks the symptoms. I do
    1 point
  34. I hope you are right! I started lamotrigine with the combination of fluoxetine 40mg a day and I seem somewhat happier but my visuals are getting worse. I will continue to increase my dose until it’s not bearable. If this treatment doesn’t work I will be trying what you have recommended! Thanks!
    1 point
  35. Yes— imo this is inflammation. When I’ve had BAD hppd it’s felt like narcolepsy even. When the brain is under stress like this, endogenous cannabinoid activity also increases. Can add to that spacey sleepy feeling. low dose naltrexone, ibudilast, prednisone short term TAPER. Anything that reduces the following generally should help. Avoid herbs with complex mechanisms of action. You want very direct effects. interluekin-1b; il-b interleukin-6 , il-6 tnf-alpha; tnf-a ibudilast is your best bet IMO at getting a clear head real fast. Very safe profile. One o
    1 point
  36. My doc knows nothing about HPPD and I'm being treated for drug induced psychosis. I feel like I have both. I had many psychotic trips and I never really recovered from them. Sometimes I hear voices inside my head that are not my own, sometimes Im afraid they will take over my mind. I also have a lot HPPD symptoms. I rarely leave my house, can't live on my own anymore, can't even stay in my own house alone at night, my condition is very severe. I've been sober for a year, HPPD and the psychosis thing started 3 years ago at the same time. After a psychotic trip I was left with HPPD symptoms +
    1 point
  37. I wonder if there’s a way to quickly get more vitamins in. (Sulbutiamine, magnesium threonate.?)
    1 point
  38. Hello, I'm sorry to hear how much you're struggling. I myself contracted HPPD from excessive LSD and mushroom use but from what I have heard there are many cases of people recovering from MDMA use as well. You're still very early in your recovery, I know it might not seem like it but your best friend will be time. Also, you very young with a short history of drug use so I would say your chances of full recovery are pretty high. I tell everyone the same thing: Stop all drugs (even alcohol for a but if you can) Get as much sleep as you can Exercise regularly even if
    1 point
  39. Great to meet you as well brother, and thank you for reading my greeting post and my reply to your post, and for replying... I'm very excited about this whole forum and site, after just recently recovering from being in severe pain and being very ill I am finding my mind working better then it has in some time now so I decided to disseminate as much information to as many people that will listen now so that I get some of it out of my head just in case my mind clutters and fogs up again... It's also awesome to see that David S. Kozin is the creator, thank you so much David, I hope you're doing
    1 point
  40. Respiradone is a know trigger for hppd, many psychiatrist don’t know this so they prescribe it for the racing thoughts, I’m currently struggling with a terrible case or hppd and I spend a lot of time googling and searching because my doctors are just prescribing me things. I’m currently taking seroquel and lexapro, ssri’s also can trigger you or they can help you it just depends on the case. I would suggest trying it and if you see a negative result stop it immediately. But stay away from respiradone & hydros I’ve had terrible issues from them both
    1 point
  41. Hey, as I said last week, I was writing a research article reviewing what we know about the potential causes, and — by extension — treatments. I just published the article on my blog. It's very extensive, with each possible cause being discussed in detail. I hope it doesn't have too many inaccuracies, and that it helps some people. Both with treating their HPPD and with advancing research in the future. Thanks.
    1 point
  42. Hi Jat, I'm sorry to hear how much you're struggling right now. For me what helped recovery was staying busy, healthy and meditation. By healthy I mean: -stop drugs and alcohol -exercise -eating well -plenty of sleep -staying positive There is measurable evidence that our attitude affects our health both mental and physical. Another thing is somehow coming to terms and accepting the condition as it is today and knowing that no matter what, all things are impermanent and so your condition will one day be different. It's hard swallow but what else is
    1 point
  43. Feel free to DM me. I am going through withdrawal too. Have had HPPD for a long time as well. Among other health issues. So, I am familiar with the struggle.
    1 point
  44. Welcome. You dosed quite recently and the after shocks of a experience can linger. Give yourself some time. I'd also suggest you stop using drugs, at least for a while. You mentioned that you've done "hard" drugs infrequently (did i get that right?). However, the cannabis today is POWERFUL. Give it a rest for a while to see how you're doing. Also, don't panic! Try not to attribute every anomaly to hppd. I'm not a doctor, but at this point you symptoms sound relatively mild. I realize that they don't seem mild to you, but understand that hppd can be a debilitating condition. I'm not
    1 point
  45. i think it’s important to note that bpd has been very prevalent in my life, pretty much my whole life but REALLY was noticeable when i was about 12. i started smoking at 15 (way younger than i would EVER advise, but i was in a small town with no friends you know how it goes i’m sure) smoking was something that i just did because when i did i noticed that my emotions were that of a “normal person” it was just like taking paxil to help with anxiety because i also am obsessively paranoid (i gained this issue at 10) and thinking strangers were gonna kill me was not fun. so i was a constant weed sm
    1 point
  46. https://pubmed.ncbi.nlm.nih.gov/27046518/#:~:text=Glial cells such as microglia,to the extrasynaptic NMDA receptor. https://www.frontiersin.org/articles/10.3389/fnmol.2018.00414/full https://www.nature.com/articles/npp2016199 https://www.sciencedirect.com/science/article/pii/S2666354619300353 https://www.sciencedirect.com/science/article/abs/pii/S0197018613000363 https://www.mdpi.com/2073-4409/8/2/184/htm Just posting these for future reference and reading. It would appear that there is a possibility of glial cell dysfunction leading to increased levels of glutama
    1 point
  47. Indeed I often found conflicting information, especially when dealing with anecdotal reports. I always just erred on the side of caution when my hppd was in its acute phase. even in scientific research, there is a lot of bias. Wish it were otherwise. Best of luck in your research
    1 point
  48. Seems you certainly have VSS. I wouldn't say you have hppd, but the drugs are aggravating your "natural" vss symptoms a bit. Good that you don't have DPDR and sounds like it doesn't cause you any anxiety. My advice is pretty simple, enjoy life and leave drugs behind. You are likely to be prone to getting hppd and dpdr/anxiety, it's just not worth it.
    1 point
  49. When my computer is back up and running I can take a look at it. Im just waiting for a new processor, should be a couple weeks though.
    1 point
  50. I don't doubt that's true for you, as everybody varies, but I was here a long time before this current account, and in general a sizeable amount of people that have HPPD that end up using marijuana again end up with permanently worse HPPD symptoms. I feel it's not wise advise to give people to take weed, they may be unlucky and it can end up destroying their life even further. I do understand your point of view, I just personally feel like this is the wrong advice to be giving to him, especially right now.
    1 point
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.