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Showing content with the highest reputation since 05/18/2021 in Posts

  1. I want you to know it will get better. The first three years are the hardest. If you are on this forum you probably are at the point where you are considering medication. I have been lurking this forum for years and want to give back something, even if it's a small contribution. Lamictal: I was on 200mg a day before starting Keppra. I found this medication moderately reduced visual snow and tinnitus, but had no effect on panic attacks. If those two aforementioned symptoms are your main issues I reccomend this medication. Klonopin: I took this for 2 years at 1mg every day for 4 days t
    3 points
  2. After a decade of hard work, the Neurosensory Research Foundation (NRF) a which began with a group of HPPDer’s with moderate to severe forms of the disorder is pleased to announce that th HPPD research protocol has been approved. The NRF is accepting donations, 100% of which will go to fund it. https://researchers.mq.edu.au/en/projects/hallucinogen-persisting-perception-disorder-hppd-protocol-multimo Considering federal funds are non existent to pay for the research, it is up to us, family, friends and other loved ones to support it. Please donate here: https://www.neurogroup.or
    1 point
  3. I'm sorry to hear how difficult this time is for you. I will preface this with saying that I am not a doctor. I am currently on an SSRI (Zoloft) and have been for about 3 years with a great deal of success. I have had HPPD for about 12 years. These meds seem to interact somehow with HPPD for a period of time before an equilibrium is established. This applies to increasing the dose and reducing it (from my experience, everyone is different). The equilibrium can take time, especially if you've been on them for a while, remember for some people it can take 2-3 weeks to even feel them wh
    1 point
  4. I've gone 6 weeks a few times... I've also chatted to several top neurologists about this. I'll take their advice over "the benzo group" thanks very much.
    1 point
  5. Hey guys: Hope everyone is doing fine. I just want to keep you updated about my process and some of the improvements, obstacles and challenges I have faced in the last couple of weeks. I got home last week and had a talk with my parents about my symptoms, feelings, and the way to address this issue. Of course, they are confused, just as I was two months ago and still being from time to time. We had a chat to decide about my options. Neurologists, psychiatrists, there is a wide range of medical options here, as I live in large city, but not sure yet about what step I want to take.
    1 point
  6. It is going to be okay! Glad you're here. This forum is great source of hope for many people including myself.
    1 point
  7. It seems like all hallucinogens and psychedelics can cause it. "A vast list of psychoactive substances has been identified and linked with the development of this condition, including Magic Mushrooms (psilocybin) [21] and muscimol (Amanita muscaria (L.) Lam.) [22]; San Pedro cactus and Peyote (mescaline) [16,23]; ketamine [24]; dextromethorphan [25]; MDMA and MDA [26]; and cannabis and synthetic cannabinoids [27,28,29,30,31,32,33]. This condition has also been associated with the consumption of Ayahuasca, Datura stramonium L., Salvia divinorum Epling & Játiva, and Tabernanthe iboga (L
    1 point
  8. I would assume any hallugenic drug causes hppd, until proven otherwise. People have gotten hppd from just marijuana, an extremely mild hallugenic drug, so I assume that a stong hallucinogen like mescaline probably could also cause hppd
    1 point
  9. A few days ago was my sixth anniversary of getting HPPD. Crazy to think I've been making this post every year for the last six years. As I noted in my Five-Year Anniversary post my life has changed in ways I could have never imagined. The past calendar year has been the craziest of my life and I'm sure many feel that same way due to Covid. I did want to post a quick update as I've had a bit of a setback with my symptoms... Long story short I had to take two courses of antibiotics in February and then had a major allergic reaction to a cosmetic product I used for a few weeks which left me
    1 point
  10. This is a good list. I am setting up the space where people with HPPD, their allies or medical professionals can use to look up information about the big questions: What pharmacological treatments have evidenced based positive results? What medications are specifically CONTRAINDICATED for individuals with HPPD? The page would have 30 or so medications I would imagine. It could be broken down into a Professional and a Consumer Page. I think it would be nice if a more advanced write up with citations were included as a Continuing Medication Education "type" certification, which a lice
    1 point
  11. My HPPD Guide Hello guys, I have had hppd for 5 years now, and would like to share the experience i have with what works, and what does not. This guide is panned mostly towards people who have just gotten HPPD, but i hope even seasoned HPPDers will find something useful in this guide. My life with HPPD has been a long road of trial and errors regarding which supplements/meds that are helpful, and if this guide can be helpful to just one person in their Post-HPPD lives, then it has fulfilled its purpose. From my perspective the most important thing about hppd is beeing able to have cons
    1 point
  12. Quite a few people have tried to create some 'stack' / supplement threads that haven't really taken off. I thought I would start one under some headings, and hopefully provoke some discussion in finding something that works quite well. This is a work in progress, so please excuse the current incompleteness (many hands make light work ). Let's work on it together. Please help me refine it with suggestions, studies, things I might have missed etc. Eventually it would be nice to end up with a concise list of supp's and optimal doses based on group research and anecdotes. Generally I am
    1 point
  13. About time for a thread like this. I took about 4 grams of shrooms (twice as much as you should on your first time) in early january. Before that all I had done was drink and smoke weed a few times. I tripped really hard, I was in a completely diferent dimension talking to people who don't exist, and time had no meaning. At one point I became really scared that I wasn't going to come back and began freaking out trying to physicaly claw my way back into this world while my eyes were closed. Still the next morning I was fine and I looked at the trip in a positive way. Three weeks later I smoked
    1 point
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